Genetic Variations Involved in a Third of CRPS Cases
Pain News Network » CRPS
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7M ago
CRPS/RSD is difficult to treat and there is no known cure. Some patients have found relief through show that an SNP in 4 genes (ANO10, P2RX7, PRKAG1 and SLC12A9) was “more common than expected” in patients with CRPS for at least a year (CRPS-1) than it was in the fibromyalgia/back pain group. geneticist at the Cambridge Institute for Medical Research.  “Our data support an underlying genetic predisposition to CRPS-1 in up to a third of cases, with this effect being most prominent in males.” women are more likely to have CRPS ..read more
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Pain Patients Get ‘Substantial Relief’ from Scrambler Therapy
Pain News Network » CRPS
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10M ago
Like other pain treatments, scrambler therapy doesn’t work for everyone. About 10 to 20% of  patients have no analgesic response -- a risk many would be willing to take, if it means freeing themselves from a lifetime of pain. The New England Journal of Medicine on her recovery. So did a local TV station ..read more
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Painfully Stepping Over the Line
Pain News Network » CRPS
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10M ago
Cynthia Toussaint is the founder and spokesperson at , a non-profit dedicated to bettering the lives of women in pain. She has lived with Complex Regional Pain Syndrome and 19 comorbidities for four decades, and has been battling cancer since 2020. Cynthia is the author of “Battle for Grace: A Memoir of Pain, Redemption and Impossible Love ..read more
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‘Take Care of Maya’: The High Cost of a Mother’s Love 
Pain News Network » CRPS
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10M ago
, a non-profit dedicated to bettering the lives of women in pain. She has lived with Complex Regional Pain Syndrome (CRPS) and 19 co-morbidities for four decades, and has been battling cancer since 2020. Cynthia is the author of Cynthia Toussaint is the founder and spokesperson at “Battle for Grace: A Memoir of Pain, Redemption and Impossible Love ..read more
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By Pat Anson, PNN Editor
Pain News Network » CRPS
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1y ago
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By Dr. Forest Tennant, PNN Columnist
Pain News Network » CRPS
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1y ago
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The cost of every week of treatment — about $3,000 — is typically not covered by insurance, which does not make it any easier on Justin or his family. If anyone knows this, it’s Philip Robert, one of the Spero Clinic’s CRPS patients in 2016.
Pain News Network » CRPS
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1y ago
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By Pat Anson, PNN Editor
Pain News Network » CRPS
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1y ago
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Ketamine Gets FDA Orphan Drug Designation for CRPS
Pain News Network » CRPS
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1y ago
It was the worst thing I’d ever heard, so I began sobbing. What he said wasn’t actually cruel, it was honest. He could see that my body was broken by work comp care that included two botched neurosurgeries and one spinal discectomy-fusion surgery that came far too late to be a good thing.  I was left with intractable pain and nerve damage, which would be diagnosed as Complex Regional Pain Syndrome (CRPS) Type II. The CRPS is not regional at all, but spread to the whole body, thanks to the impact on my spinal column and brain. I would later also learn that I was born with Ehlers-Danlos Syn ..read more
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I’m Living Proof That Effective Pain Management Can Heal
Pain News Network » CRPS
by
1y ago
It was the worst thing I’d ever heard, so I began sobbing. What he said wasn’t actually cruel, it was honest. He could see that my body was broken by work comp care that included two botched neurosurgeries and one spinal discectomy-fusion surgery that came far too late to be a good thing.  I was left with intractable pain and nerve damage, which would be diagnosed as Complex Regional Pain Syndrome (CRPS) Type II. The CRPS is not regional at all, but spread to the whole body, thanks to the impact on my spinal column and brain. I would later also learn that I was born with Ehlers-Danlos Syn ..read more
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