I am due a procedure in the near future that requires a general anathestic but I have heard this may affect my Parkinsons? 2 posts - 2 participants Read full topic ..read more

Parkinson’s Europe is developing a multimedia online campaign aimed at raising awareness and dispelling myths and misconceptions around OFF periods in Parkinson’s, and how these impact quality of life. As part of this campaign, they are gathering brief video testimonies from people with Parkinson’s about their experience with OFF periods. If you want to participate, please send a brief (30’’ max) video of yourself explaining how OFF periods impact you and what you do to cope with them. As a guidance, you can answer one or more of these questions: Do you experience OFF periods? How often? H ..read more

I wasn’t sure where to post this as it is a bit of a random question but on the basis it seems to work for me, I thought wellbeing was a good a category as any. Like many of us I live with my feet freezing. I have however become increasingly aware, and it is most easily noticeable to me when doing my exercises, that if walking and needing to turn it is an easier and smoother turn if I turn anticlockwise. To go clockwise tends to stop me in my tracks. I am left sided dominant and as a leftie it is more natural to me to do what the right side dominant majority often consider wrong or awkward etc ..read more

Prosoma 500mg contains carisoprodol, the active ingredient of a medication.It works on the principle of muscle relaxation and hence falls under the major category of muscle relaxant medicines. Prosoma works by blocking pain sensations between the nerves and the brain, thereby helping to relax muscles and alleviate pain. This helps to reduce the sensation of pain and allows the muscles to relax. 1 post - 1 participant Read full topic ..read more

Let me explain the 100% bit. I can walk and when I can I do and at 52yo I was not ready to consider a Mobility Scooter… Now more and more days I cannot walk very far or safely, lots of balance issues which is why we have converted the house so I don’t have to tackle stairs anymore (I am a nightmare on steps); add that to my 2 days a week job soon to end (I’ve been off for 8 weeks and OH and HR has been initiated so I know where it’s going)… I am on my own in the day with Wife at work Son at school so my Wife suggested it… ARE YOU ABSOLUTELY JOKING, I’m 52 Well 4 weeks on from getting one and ..read more

My Dad has been diagnosed with Parkinsons for a few years now and has recently started to get extreme and painful pins and needles in his hands. One hand has now also swollen. The pain is worse of a night. We have contacted the GP to make an appointment but wondered if others had also experienced this and whether there was anything you found helpful to relieve the symptoms? Thanks Katie 3 posts - 2 participants Read full topic ..read more

Hello All, I will be embarking on a 150 mile trek in Nepal, going to heights of 6000m, I am raising funds for PUK, any support no matter how small would be very much appreciated please click to donate Just Giving 1 post - 1 participant Read full topic ..read more

Hi my dad got diagnosed with Parkinson’s over 5 years ago. He is getting progressively worse with full body tremors and shakes. His memory is also fading since he has been diagnosed with dementia also. My mum is his main carer. He is 73 and my mum is 70. Due to his forgetfulness she gets really frustrated to the point she shouts at him. I’ve told her she needs to deal with this in a different way as he is only going to get worse. She is not coping very well even after all the years he has been diagnosed. My 12 year old daughter was there this afternoon when she shouted at him which made her ve ..read more

hi guys i was wondering if any one ells has this symptom. first thing when i wake up my hole body feels like it is shaking on the inside and it takes me a bit to move but once on the go is seems to go away till i relax 1 post - 1 participant Read full topic ..read more

hello my husband has been under the Neurologist , had CT scan , DAT scan , bloods taken , eyes tested (at hospital), ect, the Neurologist wanted the DAT scan to rule out PD, but all his symptons seem to be with PD . he has tremor mainly in his left hand but sometimes both hands , his left arm does not swing when walking , he sometimes has trouble with his speech, he is drooling , trouble swallowing , and started to drag his one foot and limping he cannot walk far any more he gets drained of energy quickly he has started to suffer with restless leg in the evening , he seems to be stopping , his ..read more