PSPA Podcast
13 FOLLOWERS
The PSPA Podcast will provide discussions and information for people caring for someone living with rare brain diseases, PSP, or CBD.
PSPA Podcast
5M ago
As rare diseases, we know diagnosing PSP & CBD can be difficult.
In the second episode of series two of the PSPA Podcast, we talk to Dr Boyd Ghosh about how PSP & CBD are diagnosed, what the challenges can be and what he hopes are for the future to improve diagnosis of the conditions ..read more
PSPA Podcast
6M ago
In the first episode of our second series of the PSPA Podcast, we talk to Gilda who has been diagnosed with CBD.
Gilda talks about her symptoms, her diagnosis and how she has adapted her home and hobbies to ensure she remains active and independent, for as long as possible.
Tune into Gilda's personal experience and planning tips today ..read more
PSPA Podcast
10M ago
Today we’re joined by Jules Brown, PSPA Helpline Manager to talk about the support we can offer to your and your family ..read more
PSPA Podcast
10M ago
In our 13th episode we speak to Kathryn Embree, the PSPA volunteer who runs our Youth Support Group. Here Kathryn talks about the importance of peer support and the benefits of the group ..read more
PSPA Podcast
10M ago
PSPA Carers Support Group facilitator, Jacqui Ede joins us as we celebrate Carers Week and our podcast being live for one year! Jacqui also shares a ten minute relaxation session with listeners at the end of the podcast ..read more
PSPA Podcast
10M ago
In this episode we talk to Scott Smith about the inspiration behind his Ed’s Lace Awareness campaign and how he feels about it relaunching in 2022 ..read more
PSPA Podcast
10M ago
Katy Butterill joins us for this episode to share why she chose to take on a walking challenge in honour of her mum, who is living with PSP ..read more
PSPA Podcast
10M ago
Ewan Phillips joins us to share his experience of Advance Care Planning with her mum, who was living with a diagnosis of PSP ..read more
PSPA Podcast
10M ago
OT Julie Cummins joins us for the seventh episode of the PSP podcast to advise about making adaptations in your home. Julie draws from her experience as an OT but also from her personal experience of PSP too ..read more
PSPA Podcast
10M ago
Samanta and Chris join us to chat about their experience of voice banking with SpeakUnique ..read more