Danvers, Mass. – The National Scleroderma Foundation, the leading nonprofit funder of peer-reviewed research to discover the cause, understand the mechanisms, and overcome scleroderma forever, is proud to announce that, thanks to generous donors, the 2023 GivingTuesday event brought in over $100,000 in donations to support the scleroderma community.  GivingTuesday, a global generosity movement unleashing the power of people and organizations to transform their communities and their world kicked off the generosity season this year by inspiring people to give back on Nov. 28, 2023, and thro ..read more

Chicago, Illinois – The National Scleroderma Foundation, the leading nonprofit funder of peer-reviewed research to discover the cause, understand the mechanisms, and overcome scleroderma forever, spent Thanksgiving Day participating in the 27th Anniversary Edison Park Turkey Trot in Chicago. The event, attended by 6,000 people, provided an opportunity for the Foundation to raise awareness for scleroderma as well as funds to continue researching the cure for the disease.  “On the very holiday dedicated to giving thanks for our blessings, we had over 6,000 blessings right there in front of ..read more

Danvers, Mass. – The National Scleroderma Foundation, the leading nonprofit funder of peer-reviewed research to discover the cause, understand the mechanisms, and overcome scleroderma forever, is proud to announce that Amgen, formerly Horizon Therapeutics, in honor of the Foundation’s 25th anniversary, has generously committed to match up to $25,000 in donations for the 2023 GivingTuesday event. Launched in 2012 as a simple idea to create a day that encourages people to do good, GivingTuesday is now a global generosity movement, unleashing the power of people and organizations to transform the ..read more

Danvers, Mass. – The National Scleroderma Foundation, the leading nonprofit funder of peer-reviewed research to discover the cause, understand the mechanisms, and overcome scleroderma forever, announces they have received a Four-Star Rating from Charity Navigator for the seventh consecutive year.  This rating designates the National Scleroderma Foundation as an official “Give with Confidence” charity, indicating that the organization is using its donations effectively based on Charity Navigator’s criteria.  “Our Four-Star Charity Navigator Rating is further validation of our commitme ..read more

Danvers, Massachusetts – The National Scleroderma Foundation, the leading nonprofit organization providing support and education to people with scleroderma, their families and support networks, recently announced the promotion of Ashley Pruett, M.Ed., to Vice President of Community Engagement. “I am delighted to see Ashley take on this new role, which is critical to the Foundation’s success going forward,” shared Mary Wheatley, CEO of the National Scleroderma Foundation. “By building a robust leadership pipeline from the grassroots level to our national committees and board, we can ensure the ..read more

Bellevue, Washington – The National Scleroderma Foundation, the leading nonprofit funder of peer-reviewed research to discover the cause, understand the mechanisms, and overcome scleroderma forever, announces that the 2024 National Scleroderma Conference will be held July 19-21 in Bellevue, Washington, just nine miles east of Seattle, at the Hyatt Regency Bellevue.  “After such a successful 2023 Conference, we are so excited to start planning a follow-up event that will reach and connect even more people affected by scleroderma,” said Mary Wheatley, National Scleroderma Foundation CEO. “H ..read more

The National Scleroderma Foundation is excited to announce that we are realigning our chapters, allowing us to elevate our commitment to providing true coast-to-coat coverage for those affected by scleroderma and their caregivers. Supporting the journeys of all individuals who are affected by scleroderma has been and will continue to be our top priority. Broadening our reach ensures everyone within the United States affected by scleroderma has access to support, programs, and resources, and to help each individual find their best path. As part of the organization’s five-year strategic plan, th ..read more

The National Scleroderma Foundation has conferred 14 awards at the Volunteer Awards Recognition luncheon hosted by Desiree James, Chair of the Florida & Puerto Rico Chapter ORLANDO, JULY 15, 2023 — The National Scleroderma Foundation hosted their 2023 Volunteer Awards Recognition luncheon at the National Scleroderma Conference in Orlando, Florida. Each year the Foundation recognizes volunteers for their outstanding work in support of its mission to advance medical research, promote disease awareness, and provide support and education to people with scleroderma. This year, the Foundati ..read more

The National Scleroderma Foundation has conferred 14 awards at the Volunteer Awards Recognition luncheon hosted by Desiree James, Chair of the Florida & Puerto Rico Chapter ORLANDO, JULY 15, 2023 — The National Scleroderma Foundation hosted their 2023 Volunteer Awards Recognition luncheon at the National Scleroderma Conference in Orlando, Florida. Each year the Foundation recognizes volunteers for their outstanding work in support of its mission to advance medical research, promote disease awareness, and provide support and education to people with scleroderma. This year, the Foundati ..read more

Now patients, caregivers and healthcare professionals have an easy and effective way to search and match to scleroderma clinical trials. DANVERS, Mass. & RALEIGH, N.C., June 14, 2023 (Newswire.com) – Carebox, a leading provider of clinical trial matching solutions, and the National Scleroderma Foundation – a 501(c)(3) charitable organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma – today announced the launch of a Carebox Connect experience optimized for scleroderma clinical trials. The new web app ..read more