The Summer Fellowship Award Program is designed to recognize PhD students conducting research related to scleroderma. The program encourages and fosters the next generation of researchers by cultivating students’ early interests in working to discover the cause and cure of scleroderma. The 2024 Pre-Doctoral Summer Fellowship Awardees are: Madeline Morrisson, Dartmouth CollegeNeerja Marwaha Bhagat Research Scholar FellowshipGraduate […] The post Announcing the 2024 Pre-Doctoral Summer Fellowship Awardees appeared first on National Scleroderma Foundation ..read more

For many in the scleroderma community, Cos and Ronni Shulman Mallozzi are household names. Together they served the scleroderma community for more than 30 years. Cos served as the Foundation’s Board Chair and his late wife, Ronni, who was diagnosed with scleroderma in 1990, played an instrumental role in promoting a merger between the United […] The post Announcing the Ronni Shulman Mallozzi Memorial Endowment appeared first on National Scleroderma Foundation ..read more

Upper Great Lakes Chapter Executive Director Randy Slikkers knows a thing or two about bee colonies and their hives. Randy is a dedicated bee steward in his spare time, but he carries his knowledge of what makes a successful hive into all aspects of his life. “Some of you all have heard me talk about […] The post Foundation Celebrates 2024 National & Chapter Volunteer Award Winners appeared first on National Scleroderma Foundation ..read more

The National Scleroderma Foundation, the leading patient advocacy organization serving people living with scleroderma in the United States, announced today that it will host the 2025 National Scleroderma Conference July 18-20, 2025 in St. Louis, Missouri. “We’re so excited to bring the rest of our scleroderma community here to the Heartland Chapter,” Rhonda Costa, chair of the Heartland Chapter said. “St. Louis is such a great place to bring people together and we’re excited to invite some new visitors to see all of the exciting things we have to offer here.” The National Scleroderma Conferenc ..read more

More than 300,000 Americans are living with scleroderma, but no two people experience this disease the same way. This June, as part of Scleroderma Awareness Month, the National Scleroderma Foundation is amplifying the voices of people living with scleroderma who will be sharing stories from their unique journeys with the disease. Scleroderma is a rare rheumatic disease that affects connective tissue and the vascular system causing fibrosis in the skin and the internal organs, which can be life-threatening. The cause is not yet known, and there is no cure. The face of scleroderma includes m ..read more

Please welcome Dionna Bartos to the National Scleroderma Foundation. She is no stranger to the Foundation, as she has served as a volunteer for nearly seven years prior to this new position. She is incredibly passionate about the Foundation’s mission and is eager to find a cure for scleroderma. “After losing my mom to scleroderma in 2001, I have been a volunteer for about seven years. I am looking forward to fully being part of the mission to advance medical research, promote awareness, and provide support and education to people with scleroderma, their families, and their support networks ..read more

To help people living with scleroderma locate the care they need, and to highlight the exceptional providers in the field, the National Scleroderma Foundation is launching a new logo for Designed Scleroderma Research & Treatment Centers. This logo will be used to note one of three designation levels the Foundation will use to recognize outstanding centers and programs. Designated Scleroderma Research & Treatment Centers Scleroderma Clinical Centers Specialized Centers All the centers and programs recognized by one of these tiers are considered exceptional. Work is being underw ..read more

Please join us in welcoming Brian Perkins as the Director of Communications. In this role, he will oversee all communications efforts for the National Scleroderma Foundation and its 13 chapters. Brian comes to us from St. Louis Community College and has been working in communications for more than 15 years. He is based in the St. Louis area and will work remotely. “It is an incredible privilege to join the Foundation’s passionate team. I am excited to support the leaders, the chapters, and the incredible community of volunteers that work relentlessly to improve the lives of people affected b ..read more

Please join us in welcoming Kryston Skinner as the Executive Director of the Pacific Northwest Chapter. Kryston joins the team on Tuesday, March 26. In this role, she will oversee the Pacific Northwest Chapter, and lead them in their programs, services, and fundraising efforts.  Kryston comes to us from iVet360 where she was responsible for the project management, consulting and marketing strategy for more than 30 veterinary hospitals. She is based in Portland, Oregon and will work remotely.   “Raised by a mother whose invisible illness remained undiagnosed for years, I’m deeply ..read more

Please join us in welcoming Lorraine Biaggi as the Executive Director of the Florida & Puerto Rico Chapter. Lorraine joins the team on Monday, March 25. In this role, she will oversee the Florida & Puerto Rico Chapter, and lead them in their programs, services, and fundraising efforts.  Lorraine comes to us from the Museum of Contemporary Art in North Miami. She is based out of the Miami area, and will work remotely.  “I am excited to join the Foundation and team as Executive Director for the Florida & Puerto Rico Chapter. Together, we will deepen our commitment to provid ..read more