The POTScast
160 FOLLOWERS
Learn about Postural Orthostatic Tachycardia Syndrome (POTS). Gain insight from other patients and from top POTS doctors. Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. If you are living with POTS, you are not alone! You can learn more about POTS by listening to our..
The POTScast
2d ago
Sometimes we have to laugh so we don't cry. In this episode, cartoonists and married couple Mike and Jill Brook describe what made them create DoodleThru.com, how it helped them cope, and remark at the endless supply of absurdities that are available to chronic illness humorists.
You can see their cartoons at https://doodlethru.com/.
If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate
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The POTScast
1w ago
Dr. Theoharides is among the world's top mast cell researchers and speaks with Dr. Dempsey about his recent article reviewing how mast cells may drive dysautonomia and vice verse. They also cover a range of topics from mast cells' diversity to their role in autism, most effective mast cell stabilizers and much more. This episode is packed with advanced mast cell information.
Dr. Theoharides has a website here and his supplements can be found here.
You can learn more about Dr. Dempsey and her practice here.
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The POTScast
1M ago
Dr. Dempsey answers questions about MCAS and depression/anxiety/fatigue/brain fog; physical triggers; Kounis Syndrome; whether it's worth it to allow "small" flares in the name of pizza or other small joys; treatments such as stenting for venous compression; how long to try each antihistamine; and much more.
More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/.
If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.s ..read more
The POTScast
1M ago
Arianna was an athlete until POTS and has now developed a large following as a social media influencer. She's sharing her POTS journey with her audience, too! You can follow her here on TikTok or follow her here on Instagram.
You can read the transcript for this episode here: https://tinyurl.com/potscast198
If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate
Tell us what you think of The POTScast or s ..read more
The POTScast
1M ago
Dr. David Kaufman is renowned for working with the most complex patients and for his podcast on Patreon, Unraveled: Understanding Medical Complexity. He and Dr. Dempsey discuss the role of MCAS in ME/CFS and other complex disorders and how he starts unraveling these complex clusters of conditions. You can learn more about Dr. Kaufman and his practice here.
You can learn more about Dr. Dempsey and her practice here.
You can read the transcript for this episode here: https://tinyurl.com/potscast197
If you liked this episode, we hope you will click subscribe so that you don ..read more
The POTScast
1M ago
Jolie was first featured in episode 160, and she's back to talk about how she's doing, how she successfully manages her POTS, and some big news: She was chosen to be Miss Chattanooga, TN! In this role she is helping raise awareness of POTS and in the next few days (March, 2024) she'll be competing in the Miss Tennesee Pageant. Thanks to Jolie for using her platform and growing notoriety to help our community!
You can find Jolie on TikTok or Instagram at @JolieMayes.
You can read the transcript of this episode here: https://tinyurl.com/potscast196
If you liked this episode, we ..read more
The POTScast
2M ago
Meet Kelly from Maryland, a driven student who loves to read, plays the guitar and has plans to pursue neuroscience so she can study the intersection between the brain, one's mindset and POTS.
You can read the transcript for this episode here: http://tinyurl.com/potscast195
If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate
Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org ..read more
The POTScast
2M ago
POTScast listeners took a survey on podcasts and social support. Here are the results - podcasts can help individuals feel less socially isolated and provide them with informational and emotional support. Parasocial relationships between podcast listeners and hosts are also important.
You can read the transcript for this episode here: http://tinyurl.com/potscast194
If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate
Te ..read more
The POTScast
2M ago
Learn about the psychological experiences of POTS patients in this episode with Dr. Alissa Sheldon. Understand how to trust your symptoms and navigate through life despite challenges.
You can read the transcript for this episode here: http://tinyurl.com/potscast193
If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate
Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org!
Find out more ..read more
The POTScast
2M ago
Erin is working on her Master's degree in English, and loves to write. She's written stories about her journey with both lupus and POTS, which started in her late teens and early 20s, but her first love is fiction.
You can find her stories at https://vocal.media/fiction/waiting-room-lv3wu40jdv and https://www.artwifemag.com/short-stories/chinchilly
If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate
Tell us what you think o ..read more