Perspective of a carepartner - George Ackerman
YOPN’s Living Well Starts Here
by YOPN
2M ago
The YOPN Podcast is thrilled to welcome George Ackerman to our community. George a PhD, is a dedicated advocate for the Parkinson's Disease (PD) community. Following the passing of his mother, Sharon Riff Ackerman, on January 1, 2020, due to complications from Parkinson's Disease, George has tirelessly worked to advocate and educate everyone about PD. In honor of his mother's memory, George initiated a movement with TogetherforSharon.com, distributing wristbands to commemorate her legacy. Join us, sit back, and immerse yourself in this enlightening show as George shares his insights and experi ..read more
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Rhythms of Resilience: Navigating Life’s Challenges with Carl Beech
YOPN’s Living Well Starts Here
by YOPN
3M ago
The Young Onset Parkinson's Network is delighted to introduce Carl Beech, a prominent figure on TikTok and the Chief Executive Officer of Spotlight YOPD, a non-profit organization in the UK. In addition to his role as CEO at Edge Ministries, Carl wears many hats – he's an author, keynote speaker, leadership consultant, and broadcaster. Importantly, he is a passionate advocate for raising awareness about young onset Parkinson's. What sets Carl apart is his openness, exemplified in his role as an open book. In this interview, he candidly discusses the profound topic of forgiveness, steering away ..read more
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Unveiling Resilience: Journeys Beyond Challenges
YOPN’s Living Well Starts Here
by YOPN
3M ago
The Young Onset Parkinson's Network is privileged to present a touching interview with Gavin Mogan. Imagine the shift from being the one in need of care to becoming the caregiver, all the while maintaining a unwavering focus on the positive aspects of life. Just a couple of months ago, Gavin faced the heart-wrenching loss of his wife, Amy, after a year-long battle with brain cancer. Keep your tissues close as Gavin shares how his journey with Parkinson's has prepared him to navigate through this difficult time and beyond ..read more
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Unstoppable Stories: Susan Scarlett and BJ Bement on Life, Love, and Triumph Over Parkinson’s
YOPN’s Living Well Starts Here
by YOPN
4M ago
This episode contains candid discussions about suicide and may not be suitable for younger audiences. The YOPN Podcast proudly features captivating interviews with two remarkable individuals, Susan Scarlett and BJ Bement. Susan Scarlett's love for life shines through every facet of her existence. She embraces roles as a wife, mother, daughter, sister, student, and friend. In 2015, she learned that she is also a Person with Parkinson's (PWP). Initially, the mention of "Parkinson's Disease" left her feeling numb, much like anyone else in that situation. However, Susan was swiftly enveloped by th ..read more
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Esther’s Story Part 2
YOPN’s Living Well Starts Here
by YOPN
4M ago
In the second part of the Esther Labib-Kiyarash  interview, she delves into the topic of hospital and emergency care for Parkinson's disease patients, drawing from her extensive experience as a Certified Professional of Healthcare Quality, where she has worked in both hospital and ambulatory quality management. Her background involves composing plans of correction and executing transformative changes within healthcare settings. Tune in to gain valuable insights from Esther as she discusses her ideas for enhancing the care of Parkinson's disease patients through education and various other ..read more
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Esther’s Story: Part One of Two
YOPN’s Living Well Starts Here
by YOPN
4M ago
Welcome to the YOPN Podcast.  Our guest today is Esther Labib-Kiyarash, a Certified Professional of Healthcare Quality with extensive experience in both hospital and ambulatory quality management. Esther's specialties encompass regulatory compliance, all facets of Quality Improvement, Lean methodology, and Continuous Survey Readiness. Additionally, she brings her expertise in Patient Safety and Patient Advocacy to the table. It's important to note that Esther also faces the unique challenge of living with Parkinson's disease. Remarkably, Esther chose to retire in September 2023, at the ag ..read more
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Thrive with YOPD: YOPD-CON 2023 Unveiled!
YOPN’s Living Well Starts Here
by YOPN
5M ago
Welcome to the YOPN Podcast! Today's guest is Jennifer Gillick, Program Manager of APDA Northwest Chapter, in this episode she unveils YOPD-CON 2023: Your Gateway to Thriving with Young Onset Parkinson's Disease! Join us at the Four Points by Sheraton Hotel in Seattle, WA, on October 14th and 15th, 2023, for this APDANW-sponsored event. Discover a wealth of family-friendly activities like hiking and dancing, and don't miss the evening reception with complimentary appetizers. The full-day conference on day two delves into crucial topics, including healthcare, nutrition, and financial planning ..read more
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The Parkinson’s Prison and the Hero’s Journey to Escape
YOPN’s Living Well Starts Here
by YOPN
5M ago
Today's episode holds a deeply personal significance for me. You see, I grapple with cognitive issues that make it challenging for me to articulate my thoughts clearly and concisely. It's essential to note that these issues aren't indicative of dementia or any similar condition. In fact, my thoughts remain as lucid as ever. However, after battling this disease for 17 years, I've encountered various hurdles when it comes to expressing myself effectively. This is where Robert Cochrane enters the picture, and he's been a game-changer for me and many others. Robert, with his impressive PhD backgro ..read more
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A Journey through Parkinson’s, Pictures and Love in :”Personality Crash”
YOPN’s Living Well Starts Here
by YOPN
6M ago
The YOPN Podcast is proud to present award winning photographer Safi Alia Shabikan. Check out her project Personality Crash: "Personality Crash" is a touching project documenting the author's father's journey through Parkinson's Disease, dementia, and Sundowners Syndrome. Initiated in 2013 to bring them closer before the illnesses took their toll, it uses powerful photographs to illustrate the challenges of caregiving and the father's resilience. This podcast explores the project's emotional depth, portraying the universal themes of loss and love when facing debilitating diseases. It showcases ..read more
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What I Didn’t Say - A Journey Through Parkinson’s by Matthew Moore
YOPN’s Living Well Starts Here
by YOPN
6M ago
The YOPN Podcast is excited to feature Matthew Moore, an actor, director, writer, and teacher who was diagnosed with Young Onset Parkinson's in 2019. Moore turned his diagnosis into an opportunity to raise awareness by writing the play 'What I Didn't Say - A Journey Through Parkinson's.' The play offers a front-row seat to the roller-coaster life of a Parkinson’s patient and their care partner. It's a profoundly honest and compelling story that invites us to ask the hard questions about hope, perseverance, communication, and the staying power of real love. As someone who has seen the play, I w ..read more
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