ASAMI Study: Findings from a worldwide expert agreement on factors influencing Alopecia Areata severity.
Australia Alopecia Areata Foundation Blog
by Sheridan
2w ago
What are the key factors that determine Alopecia Areata severity? IMPORTANCE: Current measures of alopecia areata (AA) severity, such as the Severity of Alopecia Tool score, do not adequately capture overall disease impact. OBJECTIVE: To explore factors associated with AA severity beyond scalp hair loss, and to support the development of the Alopecia Areata Severity and Morbidity Index (ASAMI). Source ..read more
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Revamped Grant a Wig Program: $700 Grant Offered for Young Wig Recipients
Australia Alopecia Areata Foundation Blog
by Sheridan
2w ago
Since 2012, the Australian Alopecia Areata Foundation (AAAF) has provided crucial support to young individuals and families dealing with alopecia through their Grant A Wig for Kids program. The program has expanded to assist various demographics, including university students and those over 55, thanks to donor contributions. Emphasizing personal choice, the program offers a $700 grant annually to... Source ..read more
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Applications for AAAdventure Camp is now OPEN and we want YOU to join us!
Australia Alopecia Areata Foundation Blog
by Sheridan
2w ago
What is the AAAdventure camp? It’s super fun, filled with memorable experiences, and a fantastic opportunity to meet other kids with Alopecia Areata. Plus, it’s a chance to have an absolute blast! Where is the camp in 2024? We’re thrilled to announce that the 2024 camp will take place at The Summit Outdoor Adventure Park. What will we do? Prepare for exciting activities like Go-Go-Stop, Half Pipe... Source ..read more
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Say congratulations to Jess and Stacey!
Australia Alopecia Areata Foundation Blog
by Sheridan
1M ago
Jess and Stacey have swapped positions! As of 2024, Jess is the Tasmania and Stacey is the Tasmanian Branch Manager and Jess is a Support Ambassador. Stacey joined the AAAF in November 2018 after having lived with Alopecia for over a decade. She volunteered as a Support Ambassador for 5 years and then transitioned to the role of Tasmanian Branch Manager in early 2024. Source ..read more
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Hair Cut Announcement
Australia Alopecia Areata Foundation Blog
by Sheridan
5M ago
Chel and Vesna, our Founder, Treasurer and Secretary donated their long locks at our Victoria Open Day. Thank you for being such amazing role models and supports to our community! Source ..read more
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Arthur is running 100km!
Australia Alopecia Areata Foundation Blog
by Sheridan
5M ago
This is Arthur, who will be undertaking a 100km run (wow!!!) in support of AAAF this coming February 2024. He has already raised almost $2000 in donations, the momentum is building and it’s time to get more people involved! Arthur wrote about his Alopecia Story: “Since 2017, Alopecia has been a significant part of my life, a journey marked by both challenges and resilient times. Source ..read more
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RAISE November 2023 is here!
Australia Alopecia Areata Foundation Blog
by Sheridan
5M ago
Dive into the empowering stories and latest updates in the November 2023 issue of Raise Magazine! Meet our amazing committee, explore job opportunities, stay informed on research updates, and more. View the latest issue through this link: https://aaaf.org.au/wp-content/uploads/2023/11/Raise-November-2023-1. Source ..read more
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RESEARCH UPDATE: The social, psychological, and economic burden of alopecia areata on adolescents and adults over the age of twelve-survey and questionnaire
Australia Alopecia Areata Foundation Blog
by Sheridan
5M ago
The study is investigating the socio-economic burden of Alopecia Areata (AA) on adolescents, adults, and their caregivers/partners. This analysis will be used to generate Quality-Adjusted Life Years, a quantitative measure for how patient’s lives are impacted, which may facilitate assessments for the TGA and potential reimbursement through the PBS by detailing cost-effectiveness of AA treatment. Source ..read more
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Amy M has won AAAF 2023 Supporter of the Year!
Australia Alopecia Areata Foundation Blog
by Sheridan
6M ago
Congratulations to Amy M, our AAAF 2023 Supporter of the Year! Your dedication to raising awareness for Alopecia Areata and engaging your community is truly inspiring. As a token of our appreciation, we’re gifting Amy a $100 gift voucher. Thank you for making a difference! Source ..read more
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AA clinical trial for adolescent age 6-18, evaluating the safety and efficacy of Baricitinib.
Australia Alopecia Areata Foundation Blog
by Sheridan
6M ago
This is for all forms of Alopecia Areata (including Totalis and Universalis) There is one study currently recruiting: JAIO Clinical Trial of Baricitinib for Alopecia in 6-18yo (https://clinicaltrials.gov/study/NCT05723198?cond=Alopecia%20Areata&term=JAIO&rank=1) As well as another study due to start recruiting in 1-2 months: M23-716: Clinical Trial of Upadacitinib for Alopecia in adolescents (>12)... Source ..read more
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