Natasha Green a member of SEDSConnective talks about severe migraines and how chronic illness has been a huge part of her life. She also talks about her hopes for the future and the link with neurodivergence, Autism, ADHD late diagnosis and pain. This is in the health magazine of The Telegraph. The link is here https://bitly.ws/3inYX ..read more

This information sheds light on the complexities of managing IBS in individuals with symptomatic hypermobility and underscores the importance of holistic support and understanding for those living with these conditions. We find many of our members who are neurodivergent (Autistic, ADHD, Dyspraxic, TS +) and have symptomatic hypermobility (EDS HSD) are prone to this.   IBS is quite a common disorder affecting the large intestine (colon) and sometime the smaller intestine and often accompanied by pain. Many people with symptomatic hypermobility or formally diagnosed (Ehlers-Danlos syndrom ..read more

by Jane Green MBE, Founder & Chair of SEDSConnective Traditionally, 2nd April has been known as Autism Awareness Day with jigsaw piece symbols and the colour blue.   Over the years the autistic community have said they do not believe in autism awareness as it’s a passive notion. You can be aware of anything and but it does not have meaning. So, Autistic people want acceptance because it means accepting autism as a natural part of the human experience (this is the neurodiversity paradigm). People are different. Everyone can be aware, but this doesn’t lead to ..read more

Image Credit: The Guardian. Photograph: Catherine Falls Commercial/Getty Images On the 19th March a study was published by BMJ Journals, The Guardian and The Daily Mail, suggesting that people with joint hypermobility might be at increased risk of long COVID, and may not have fully recovered. The study was led by our patron; Dr Jessica Eccles with researchers from Brighton & Sussex Medical School & Kings College London. The study looked at data from over 3000 participants in the Zoe Health Study and found that hypermobile people "...were about 30% more likely to be affected by long CO ..read more

11 March 2024, LONDON, UK – SEDSConnective, a volunteer- and user-led neurodivergent charity (evidenced as Autism, ADHD, Dyspraxia, Tourette’s +, and more), has launched the Neurodivergence Day on 11th March 2024. The annually celebrated day seeks acceptance for the neurodivergent community and is to also be known as Neurodivergence Affirming Acceptance Day alongside been the Neurodivergence Day. The charity encourages support from members of the community, and to join the conversation on social media using the hashtags - #NeurodivergenceDay, #ND, #NeurodivergenceAcceptanceAffirmingDay and #N ..read more

Dr Kana Grace, PhD Neurodivergent neurodivergence advocate and researcher Okinawa, Japan @kanabaletti https://linktr.ee/kanagrace Navigating life as a neurodivergent person often brings unique challenges, as I've discovered through my own journey. Despite consulting various medical professionals, many of my diverse physical symptoms remain a mystery. Ballet has been a significant part of my life since I was three, and paradoxically it camouflaged my neurodivergence and symptomatic hypermobility. However, everything started to shift when I stumbled upon information about connective tissue diso ..read more

https://www.youtube.com/watch?v=x7fkDA84xqc ..read more

Median Arcuate Ligament Syndrome (MALS) – the exhausting fight to find out the rare cause of your pain when your doctors tell you it's “...all in your head” by Sarah Clark, 39, Southampton Twitter: @sarah_clark_84 If you’re told enough times by doctors that “there is nothing physically wrong with you...", where do you draw the line between believing what your doctors tell you, or trusting your own “gut instinct” to find out the real cause of your pain? It took over 15 years of not being believed to finally get my Hypermobile Ehlers-Danlos Syndrome (hEDS) diagnosis in February 2020 - aged 35 ..read more

SEDSConnective Chair & Founder, Jane Green MBE FCCT recently joined Sally Nilsson on Frome FM Show; Love Your Mind Jane was invited On Air to talk about Ehlers-Danlos Syndrome and Symptomatic Hypermobility for autistic, ADHD and dyspraxic people. Love Your Mind on Frome f.m. 96.6 is dedicated to mental health and neurodivergence. Presented by Sally Nilsson, a psychotherapist, published author (The Man Who Sank Titanic), podcaster (The Neurodivergence and Mental Health Podcast) and public speaker. The show is a two-weekly programme covering a whole range of topics around mental health and ..read more

Having a history of any illness is hard, but when trying to advocate that your symptoms are not due to your history is even harder. Growing up I was that kid who was accident prone, sprained ankles, bruised, worked hard and played hard but would sleep for hours as an afternoon “nap”. I walked around with a fractured wrist for two weeks before doing anything – I was that accident prone no one believed me! Despite a happy childhood, from the years of 2015 – 2020 I was under the Eating-Disorder services due to living with Anorexia Nervosa. I was admitted to inpatient treatment, attended a day tr ..read more