Hypermobile-Type, Ehlers-Danlos Syndrome Learn the basics of a common body-type Hypermobile-Type Ehlers-Danlos Syndrome Hypermobile-type, Ehlers-Danlos Syndrome Hypermobile-type, Ehlers-Danlos Syndrome (hEDS) is one of 13 subtypes, and is not rare. Connelly et al. report that thirty percent of the population is hypermobile and a large portion of this group is noted to have “systemic effects secondary to connective tissue fragility.” Look at all of the best athletes; pitchers, gymnasts, swimmers, runners tend to be hypermobile. hEDS is passed down from your parents. They may not know the ..read more

Krewe Wellness An EDS Counselor who is here for you Our Star Ehlers-Danlos Counselor Kayla Scott is the Founder of Krewe Wellness I have always been accident prone and flexible. It wasn’t unusual for me to fall UP stairs (yes, I defy gravity) and lose balance while walking. It was commonplace for me to have an unexplained bruise, feel dizzy out of nowhere, or trip and fall outside the Superdome while walking with friends. It was fall 2021, when my tiredness felt like exhaustion, car rides were halted due to extreme nausea, any rigorous physical activity was followed by swollen joints ..read more

Hypermobility Tool Kit Equipment that can improve your quality of life Best Products for Hypermobility Supplements For multiple reasons, Ehlers-Danlos syndrome is associated with metabolic abnormalities in the context of a connective tissue disorder. To optimize health, the proper nutrition for collagen, the extra-cellular matrix (collagen glue), mast cell stabilization, fascia health and blood pressure regulation is needed. Most nutritional needs can be met with a strict diet based on your circumstances. However, early research is suggesting certain supplementation can help most patien ..read more

Hydration Is Key Dysautonomia requires ongoing treatment Understanding dysautonomia You need water with electrolytes to get blood in the right place in your body. Dysautonomia is a “misfiring” of the cardiovascular system. A subset of dysautonomia is called postural orthostatic tachycardia syndrome (POTS). Hypovolemia is a term that means low blood volume. Low blood volume can come from being dehydrated, or not having enough blood in the right part of your body. For example, you may drink enough water, but the water and blood may pool in your legs, leaving your gut and brain with littl ..read more

The Art of Massage Working the connective tissue is key Daily massage can provide temporary relief Regular massage is important if you are hypermobile or have a connective tissue disorder, such as Ehlers-Danlos Syndrome. Fascia, the supportive connective tissue of the body, surrounds muscle, bones, tendons, ligaments, and even internal organs. If there is a problem with fascia in the body it can cause significant pain because fascia has many bundles of nerve fibers that run through it. Interestingly enough, at the Tulane Hypermobility and Ehlers-Danlos Clinic, we use ultrasound imaging ..read more

EDS Dentists Here to Help We are looking forward to meeting you EDS Dental Care Experts Dr. William Shelton and Dr. Alexis Russell are the owners of Tulane Family Dentistry, an energetic, friendly, welcoming, vibrant dental office that serves to provide the highest quality dental care to our patients young and old, including pediatrics. We are passionate about respecting the individual needs of our patients, which begins with listening to our patients and educating them about their oral and systemic health. Our interest in Ehlers-Danlos Syndrome (EDS) is centered on the premise of know ..read more

Choose Wisely Love your body, treat it right Nutrition and Ehlers-Danlos Syndrome Kathy Garvey, MS, MBA, RD garveynutrition.com Nutrition and Ehlers-Danlos Syndrome  The links between nutrition and Ehlers-Danlos Syndrome (EDS) are undeniable.  So many complications and symptoms of EDS are gastrointestinal and food-reactive in nature that one would expect there to be a best diet for the condition. Unfortunately, there is no one, simple solution, but rather some general guidelines that can then be followed by a targeted, individualized approach to address specific symptoms an ..read more

Prepare for Surgery Certain precautions can improve outcomes Prepare yourself and surgical team for surgery The Tulane Hypermobility and Ehlers-Danlos Syndrome (EDS) clinic team is here to help prevent surgical complications in patients with Ehlers-Danlos syndrome. The most common complications that we have noticed involve prolonged wound healing and scar tissue formation around the surgical site or intra-abdominal. Co-morbidities common with EDS include POTS, mast cell activation spectrum disorders (anaphylaxis, allergies to medications) and complex regional pain syndrome. Here are a ..read more

Patient Story Danielle Purtell Her Story Danielle Purtell is a medical student at Tulane University School of Medicine who has survived medical school with Ehlers-Danlos Syndrome. She will graduate in 2022 and is excited to complete a Family Medicine residency. As someone with chronic illness and invisible disability, Danielle knows firsthand the importance of a strong and compassionate primary care doctor, and is honored by the opportunity to become one. She holds student leadership positions with the Louisiana Academy of Family Physicians and in many Tulane courses and organizations ..read more