Hi, Any NK/T cell survivors out there? My husband recently started treatment and I’d love to hear any survivor stories. It’s rare(r) than other subtypes so it’s been hard to find stories for this specific subtype. ? submitted by /u/favorite_orange_cup [visit reddit] [comments ..read more

28f diagnosed with NSCHL 2B mid January. I am half way through treatment (4 sessions ABVD+ 8 AVD) and I shaved my head today. My buzzed head looks so crazy to me, but I’m not as sad as I thought I’d be. I have a fairly cheap synthetic wig that looks passable with a hat. I honestly don’t think I’ll wear it often, but it’s nice to have as an option. Just thought I’d share for anyone who is right behind me in the process and wants to talk haircuts. It’s been a crazy and surprisingly insightful journey. submitted by /u/dont-forget-scallion [visit reddit] [comments ..read more

I was diagnosed last year with Gray Zone lymphoma and did 6 rounds of R-epoch and then diagnosed with the remaining masses being Classic Hodgkin's where I did 2 rounds of Pembrose/GVD into a a clean pet scan but then did an autologous bone marrow transplant using BEAM. I was just released from the hospital on Day +11 and just wondering how long it took others for their taste to come back to normal. During my other treatments it was normally only screwy for a week or so but I'm currently on day 13 post chemo and its still making it difficult to eat as everything tastes bad. I know it will get ..read more

I was stage 3a classical Hodgkins at 20 years old. Im glad the treatment worked now looking forward to staying clean and getting back to my old self. submitted by /u/No-Solid-833 [visit reddit] [comments ..read more

Hello, I read a lot of posts from folks with symptoms. This isn’t meant to diminish those experiences. I wanted to add my experience to help others who are coming here cold with few or no symptoms. Obviously we’re in the minority, but that doesn’t make it any less terrifying. Recently I was diagnosed with NLPHL or Nodular Lymphocyte-Predominant B-cell Lymphoma. I’m calling what I feel cancer imposter syndrome. I’m scared as shit but I also feel guilty about it because I’m not in pain, I don’t feel sick, and my treatment plan sounds underwhelming. Before you say it, I know I’m blessed to have ..read more

I’m currently waiting to start treatment and was wondering if anyone has any advice before my treatment begins. I’m healthy but my body is really starting to hurt more and more everyday. [visit reddit] [comments ..read more

It's been about 40 days since he was diagnosed with T-Cell Angioimmunoblastic Lymphoma (CD 30 positive) stage 3. He's currently undergoing BV with CHP and has completed his first chemo session, 5 more left. Recently, he developed a fever and was hospitalized for 4-5 days. Physically, he's become very weak and has lost almost 20-25kg (45lb). I find myself constantly worrying about him, unable to escape the spiral of anxiety. I'm determined to make his suffering more bearable. Any tips, information, treatment journeys, or words of encouragement would be greatly appreciated. To everyone on this ..read more

Well I finished AAVD For stage 4b chl 6 weeks ago. Over the past 2 weeks I have felt a new lump develop at the base of my neck. I alerted my oncologist after a week and it became visible. He had me do an ultrasound and now is ordering a biopsy. I haven’t even had my end of treatment scan yet. He wanted to wait a full 10 weeks to scan me but now has moved it up to next week after the biopsy. I am terrified. One potentially positive thing is that I felt the lump shrink a lot over the past 2 days. It was about the size of a cherry but now is down to like a blueberry. Would a lump that is cancer ..read more

I know I indirectly wrote about this just a few days ago asking people how they cope with the emotional lows during the treatment process. This post is just going to be me venting about that same topic, pretty much. I have Stage 3 Classical Hodgkin and have my fourth immuno+chemo session (Nivolumab + AVD, not sure if there is a more common abbreviation to that or not) on Monday. The physical side effects have been generally tolerable, strong fatigue and mild nausea with body aches mostly. But I don't know if it is stress, biological effects of the treatment, resurfacing mental illness, or som ..read more

Hi so I just got my mid way PET/CT scan and I got back a Deauville Score: 1 and the masses are pretty much gone. At first my doctor thought I was Stage 2B due to occasional night sweats and a semi high sed rate. I went to a bigger cancer hospital and my doctor there seems to think it’s more likely that it not unfavorable and also is saying since the cancer is pretty much gone I should just do 2 more cycles of ABVD instead of 4 of AVD. Has anyone else had their doctor switch them from 6 cycles to 4? I’ve just seen most people say they got 6 cycles and that seems to be standard care. I’m just w ..read more