I was diagnosed with Follicular Lymphoma in 2015 and after chemo and Rituxan treatments I went into remission. This past year my PET scan showed that the disease had returned. My doctor put me on a two year plan of Rituxan every three months of which I am half way through. I'm thankful that these treatments continue to work. My thoughts now are what can I do in my life that can keep me in remission. I am open to holistic and natural solutions and after doing some research I came across a new technology that uses phototherapy to help your body heal itself. I didn't find any info on how it may h ..read more

It's tough seeing my sister struggle, especially with young kids to care for. She just had her first treatment, and it's hitting her hard. I'm at a loss being so far away. I want to help, but I don't know how. I thought of reaching out to her community, friends, or other family members for support, but I'm not sure what else to do. Since she wants know one to know. [Content removed by CSN Support Team]. How do give support to someone that blames themselves for getting cancer ..read more

Can anybody fill me in on the latest indolent follicular lymphoma news. Every site I go to gives different info. I know they have come a long way in the past few years, but its hard to tell just how far when you are new to the site as I am. I was diagnosed stage 4 recently, but from what I read that is not a death sentence any longer. At least I hope not. most of my tumors are in my abdomen (largest 5cm).I have read the type of lymphoma I have is more of of chronic disease in this day and age. Some sites say they are making strides every day and others say it is a very slow progress in any new ..read more

Hello, My mom started mini r-chop for her lymphoplasmacytic lymphoma with richters transformation . Her first treatment went ok but she had a reaction to one of the meds which was stopped. Her white blood cell count went from 158 down to 29.5 the day after treatment. The number now is up a bit to 58 a week after treatment. I have no real experience with this type of treatment and am wondering if anyone knows if this is normal. Meaning a rise in the wbc after treatment. The doctor doesn’t seem concerned. I am just worried since she was really sick when she first started treatment with a signifi ..read more

Hello I was wondering if there are any support groups meeting in Connecticut that can help my 17 year old daughter cope. She says that nobody understands how she feels and we can’t possibly relate. I really hope to get her the help she needs here, so her life can have more meaning, and she can cope with having to relive the horrors of treatment that she went through ..read more

Hello, I had a neck CT for a follow up to parathyroid surgery I had in the summer, and the report came back showing "3 x 2 cm pathologically enlarged left supraclavicular lymph node. Pathologically enlarged bilateral level 1B lymph nodes, up to 15 mm in long axis diameter. Several greater in number than size lymph nodes in the remaining cervical chains are nonspecific." I am pretty sure this isn't thyroid related as I had a biopsy a few months ago and it was all benign. My primary care doctor told me I need a biopsy and I have since sent the reports and scans over to an oncologist and it is pe ..read more

Did anyone's teeth start to break so easily after receiving intensive radiation? I have completely lost most of my teeth and I get excruciating pain in my teeth for days and since I was homeless I didn't have the means to go to a dentist and check them out and I'm so afraid my smile is horrible I hate speaking to people I feel embarrassed to the core about them and honestly I would like to know I'm not the only one who experienced this ..read more

My never-boring, fifteen-year HL adventure has a new twist: I'm scheduled for a liver biopsy in about a month. My enzymes won't play right, and the gastro people want to find out why. I've already had a lot of lab and ultrasound work. It is NOT believed to be malignant in causality. Their best-guess is that it is a long term reaction to chemo and NSAIDS, but we shall see. Another factor is of course that modern medicine is lawyer and insurance driven, and any question left unanswered is regarded as a legal liability; doctor judgement is basically coopted by flow charts and statistics. The test ..read more

After 6 weeks of testing, my husband has been diagnosed with a rare cancer, mantle cell lymphoma. We are waiting for Mayo Clinic in Rochester to call us. We are in the small town of Ironwood in the upper peninsula of Michigan. Our oncologist is out of Chicago. He said he would start my husband on chemo here, while we wait. His hemoglobin was in the 7s last week and he needed 2 transfusions. We are scared that this is taking too long. Any advice ..read more

I'm set to have an autologous stem cell transplant next week. I finished six cycles of chemo and the chemo has beaten the cancer into remission. I have EATL lymphoma which is a T-cell lymphoma. I'd love to hear from anyone who has undergone the procedure. I don't really know what to expect other than the fact that the doctors have let me know it will be rough. For those who have gone through it, how were you feeling at the 3-month mark and the one-year mark? Were you able to function mentally during your hospitalization? Was it difficult dealing with the isolation? Any comments or insights wil ..read more