The Hydrocephalus Association (HA) is pleased to announce the 2023 Hydrocephalus Association Scholarship Award Recipients. We would like to thank everyone who applied for a scholarship and congratulate those of you who were selected this year. HA’s scholarship program was established in 1994 to provide financial assistance to capable and promising teens, young adults, and adults who live with the ongoing challenges and complexities of hydrocephalus. Since the scholarship program was established, HA has awarded 253 scholarships to future leaders of our community. We are proud to honor these rem ..read more

The Westin Anaheim Resort was ablaze with excitement and purpose on November 10, 2023, as the Hydrocephalus Association (HA) commemorated four decades of impact, dedication and support for our community at our 40th Anniversary Gala. The event brought together a diverse ensemble of researchers, physicians, industry partners, individuals living with hydrocephalus, their families, and esteemed supporters for an enchanting evening that blended celebration, gratitude, and a resounding call for progress. The night unfolded with an atmosphere of warmth and socialization, fostering connections among a ..read more

  Updates with the Congressional Pediatric and Adult Hydrocephalus Caucus  We have great news for everyone! We recently met with staffers from each of our two caucus co-chairs, Representative Lloyd Doggett (TX-37) and Representative Chris Smith (NJ-4). We discussed a variety of issues, including the reconstitution of the caucus for the 118th Congress, the 2024 schedule for Hydrocephalus Caucus briefings, the Congressionally Directed Medical Research Program (CDMRP), and challenges associated with transition from pediatric to adult care within the hydrocephalus community. Both staffer ..read more

  [Dallas, TX, October 4, 2023] — The Hydrocephalus Association (HA) and the Rudi Schulte Research Institute (RSRI), hosted an impactful research workshop in Dallas, TX, at the end of September. HA, the largest organization for hydrocephalus patient advocacy and private research funding, hosted a gathering of more than 60 distinguished professionals, including scientists, educators, engineers, neurologists, neurosurgeons, and patients, coming together to explore cutting-edge advancements in hydrocephalus treatment research. The only known treatment for hydrocephalus is brain surgery. The ..read more

  Was this article helpful? Yes No Submit Cancel Thanks for your feedback ..read more

In medical research, innovation is the catalyst for change, the driving force behind medical breakthroughs that transform lives. At the heart of this innovation are dedicated individuals and teams tirelessly working to make a difference. Today, we are thrilled to shine a spotlight on those remarkable individuals who have been selected as the recipients of the 2023 Hydrocephalus Innovator Awards. Awards That Drive Progress The Hydrocephalus Innovator Awards are a testament to the spirit of innovation within the scientific and medical community. They provide a platform for visionaries to turn t ..read more

  Hydrocephalus included in the CDMRP CRRP  Our House champions were able to secure a provision in the recent House Defense Appropriations bill that will make hydrocephalus eligible for the Combat Readiness Research Program (CRRP) under the Congressionally Directed Medical Research Program (CDMRP). The CRRP focuses on research relating to forward-deployable solutions that address life threatening conditions for service members on battlefield settings. This includes solutions for mitigating or quickly measuring the impact of a traumatic brain injury (TBI), one cause of hydrocephalus ..read more

[Bethesda, MD, September 29, 2023] – The Hydrocephalus Association is proud to announce that our steadfast financial stability, unwavering commitment to accountability, and transparent practices have earned us a prestigious Four-Star Rating from Charity Navigator. This esteemed designation establishes the Hydrocephalus Association as a certified ‘Give with Confidence’ charity, affirming that our organization effectively utilizes donations in accordance with Charity Navigator’s rigorous standards. Charity Navigator stands as the largest and most respected independent charity evaluator in the U ..read more

The Hydrocephalus Association has achieved the pinnacle of recognition by being named a 4-star charity through Charity Navigator, marking the highest possible rating within their esteemed system, utilizing the Encompass Rating System. We are thrilled to share this remarkable accomplishment with you, our cherished supporters.   What is the Encompass Rating System(ERS)? The ERS is a comprehensive evaluation framework that meticulously assesses nonprofit organizations’ performance across four pivotal domains, aptly named “beacons.” These beacons are: Accountability & Finance: This beaco ..read more

  Let us introduce… Please help us welcome Davis Kaderli to our Advocacy Team. Davis recently joined HA as the Advocacy Engagement Manager. He will manage our advocacy work and focus on strengthening HA’s relationship with federal lawmakers. Some of his work will include overseeing policy research, tracking relevant legislation, and working to strengthen House membership in the Congressional Pediatric and Adult Hydrocephalus Caucus. He will also focus on building our Hydrocephalus Action Network – our advocacy program dedicated to empowering members of our community to advocate for all th ..read more