Are you an adult living in Australia diagnosed with cluster headaches? Your experience is crucial for shaping the future of cluster headache research! Join our study conducted by The George Institute for Global Health, UNSW, and share your valuable insights. This survey will take about 10-15 minutes and will help prioritise future research areas based on your perspectives. For more details and to participate, please click https://unsw.au1.qualtrics.com/jfe/form/SV_9nv76r3o53XCjQi  Your input can lead to better understanding patient needs and guide treatment development. Thank yo ..read more

Has anyone used / had success with GammaCore (https://www.gammacore.com)? I am thinking of getting a prescription, but it's VERY expensive and not covered by insurance. Wanted to see if anyone had experiences with this in the community.  Thank you!    ..read more

Hi all! It’s been a long time. Happy to report I’m cluster and shadow free for almost a year now. Keeping my fingers crossed to continue this trend. My fiancé and I are taking the plunge. We are leaving FL and moving to Raleigh North Carolina! Looking for good recommendations for headache specialists or neurologists in the area and O2 suppliers.    thank you!  ..read more

Hi my name is Chris and was recently diagnosed with cluster headaches.   Before NY doctors appointment I was convinced I had an aneurysm or tumor.   So thank God it turned out to be CH, never thought I'd say that, and am trying to figure out my path.  My GP said h3 thought it was CH but referred me to a neurologist.  Neurologist asked a bunch of questions and agreed it was CH. I've tried D3, loratidine, caffeine, praying, and sumatriptan.   I still take D3, loratidine, have an emergency caffeine drink of 200mg in my room at all times, and sumatriptan.&nb ..read more

Hey all, I'm set to travel by plane to NYC from Toronto, Canada on Wednesday of next week (April 24) and I've got nothing but dead ends trying to get Oxygen tank rentals. I'm only going to be there for a few days so was hoping for 2x D tanks and 2x E tanks.   I just need the tanks, I have a regulator and mask I can bring with me. ANY LEADS ..read more

Was reading a study that linked autoimmune disorders as higher in adhd people and biological siblings, curious if there may be a link to clusters? How many here know they have adhd or are pretty sure ..read more

So I’ve been dealing with…whatever I have…since I was 12. I’m 39 now.    I’ve read through these forums before, as has my wife, who is now pushing for me to trying a dosing protocol. I’m writing this now at the start of an episode.    the problem is, as I read everything about cluster experiences on here, I question whether it’s even what I have. I’ve been diagnosed with Clusters, but over the years that diagnosis has changed multiple times, with it most recently landing on Cluster again. What is challenging for me is that it feels like I haven’t seen another experience qui ..read more

hey everyone, thanks for accepting me into this group i have been misdiagnosed with migraines for years. The past 4 years i have been experiencing what i now know is episodic cluster headaches. it starts off with one attack a day and shortly escalates to 8+ attacks a day. I am on day 14 and going to the emergency department today to beg to see a neuro, get scans done and try the oxygen. I have had scans when i was 15 (25 now) and nothing was found. i have a referral to see a neuro but cant afford it/the wait times are too long for me. i have trialed numerous preventatives, currently trialling ..read more

Please be aware that all of these people on this site are your average every day moron that doesn’t have a clue. I wouldn’t believe a single thing that any of these idiots have to say. It’s unfortunate that those who actually run this website don’t put any worthwhile information on it. What’s the use? I personally believe it is a scam and will be deleting my account as soon as possible. Thanks for nothing close to Buster, you worthless pieces of garbage!  ..read more

Hi guys. It's been a while. I know I'm not around often, but I'm back with a new question. I can remember about 12 years ago, desperate for answers and hitting the search bar for some kind of oasis, and right away I found ClusterBusters. Some of the greatest and informative group of understanding souls I have ever met. I am glad to report that I have been successfully busting and pain-free for over 4 years, however I am curious about analog psilocin and/or psilocybin in being effective. I've come across some chocolate bars for sale in our local store and I did get a very trippy effect off of t ..read more