Hi everyone, This is my first time posting in this group. I apologize if I am posting something too triggering or upsetting, and I understand if this post is removed. My friend, who has endured CFS for 25 years and who just turned 50 last week, sent me an audio message today, saying that as of two days ago, she decided to stop eating and starve herself to death. She said she loved me and she was calling to say goodbye and thank me for having been a good friend. I have been friends with her since 2001, although I have not seen her since she moved across the country ten years ago. My first inst ..read more

Hello!! I am new to CFS (diagnosis wise, I’ve had this for almost 2 years) I know very little about it apart from the symptoms. I’ve heard about a thing called pacing… what is it?? If anyone has any articles explaining it I would love that. Thing is I also suffer from POTS (I am very educated on it) and it seems like these two conditions really clash with each other. Honestly I don’t even know how to write this I’m really struggling with wrapping my head around everything so I apologise if this sounds pointless. submitted by /u/That-Trainer-4493 [visit reddit] [comments ..read more

I have been feeling sad lately about my health and I remember seeing this youtube video that I want to re-watch. The young guy talked about what happened to him. He was academically doing well and very physically fit and all of a sudden becomes disabled. I remember specifically he said he got a virus from a swimming theme park and he had this air of optimism about him. He knew his situation was kind of fucked but he accepted and tried his best to live his best life. He was white, British, young, had hair down to his shoulders, he is thin, he had pictures of him cycling and images of his physi ..read more

The app I have been using seems to be failing me, any ideas on what iPhone apps to use? submitted by /u/SnooCakes6118 [visit reddit] [comments ..read more

I have a double appointment at the GP on Monday (UK national health service). I've done a lot of reading about CFS and I'm certain that I have it. I've written out notes ~2 pages worth connecting my symptoms to diagnosis criteria so I'm hoping I will receive a CFS diagnosis. Is there anything else I should do to prepare? I've had bloods done & they were fine save for a minor deficiency in vitamin D - I've been taking the recommended supplements but it hasn't fixed anything. I've included the things that I struggle with the most and hope I get some kind of medication for (bad brain fog &am ..read more

"This Podcast Will Kill You" actually did a pretty decent job with their episode on ME/CFS. No one is ever going to capture the experience and symptoms perfectly, but I thought they did the illness justice in their research and overall attitude towards it. The hosts are well educated PhD and PhD/MD levels, so their opinion and willingness to speak out does matter. I can't link the episode but here is the page where they have the episode info. Please note that they note that some of the citations listed contain bad/wrong/outdated info - and that it was just part of them researching the history ..read more

I'm so painfully bored all the time I'm absolutely miserable. The only thing I can do is scroll my phone endlessly which I hate doing because social media depresses me. I don't know what else I can do. I don't have the concentration or motivation to read, play video games, or watch shows. Things like word searches are painfully boring too. Idk if there's anything I can too, if I'll ever feel any sense of enjoyment from anything again or accept that I'll be bored out of my mind and miserable for the rest of my life. submitted by /u/StrawberryMacaron021 [visit reddit] [comments ..read more

I will be interviewing Dr Martin L. Pall PhD of Washington State university. He is an expert in chronic fatigue syndrome/myalgic encephalomyelitis, mitochondrial dysfunction, multiple chemical sensitivities, dementias, and much more. What are you interested in knowing? Lmk in the comments. submitted by /u/c0bjasnak3 [visit reddit] [comments ..read more

How do you become a master of your own mind and stop ruminating? Im pretty severe; bedridden….. there are a lot of difficult things in my life; I’m always worrying…… submitted by /u/Jojo-0404 [visit reddit] [comments ..read more

I’m not diagnosed but developed severe fatigue after Covid. Does anyone else have primarily physical triggers for PEM. Very rarely does mental exertion trigger PEM, though aggressive noise can. I have a diagnosed neurological disease as well but have been told my fatigue is too extreme for my disease. I develope PEM very easily from physical tasks but can read complicated books, use the internet etc and not get PEM. submitted by /u/Seaofinfiniteanswers [visit reddit] [comments ..read more