Wonderful work @LH , very profound ..read more

Thanks for starting a new chat @LH ? Sorry to hear you're having a rough time of it, and I hope you're able to find a new equilibrium soon ..read more

@LH that sounds really awesome! How on earth did you arrange it? I’d love to have somebody with a really quiet/peaceful dog come to visit regularly, even maybe a therapy dog, just so I could get snuggled by it basically. But I’ve never been able to figure out how to set it up ..read more

Thanks for sharing @coco - while it would be much better if it wasn't happening, the silver lining for us from Long Covid is that there may be enough overlap between it and ME/CFS that the research going into that may benefit us. There certainly are strong similarities in many of the symptoms. But whether it does or not, it's really sad seeing so many people being hit by Long Covid ..read more

Hi @Lilah-Ward As far as I'm aware there's no robust scientific evidence to support the use of DNRS as a treatment for ME/CFS. "Brain training" in various guises has been around for a number of decades now, and were it an effective treatment for ME/CFS, they should have plenty of evidence to support this. There are claims made, of course, but it is important to bear in mind that anyone can claim anything on the internet. I'm not fully confident (I'm a bit PEMmy, and my brain could be sharper), but from my rough memory the current physiological findings in terms of what's awry in ME/CFS would n ..read more

@Glimmer I'm mostly getting to sleep okay after I take it. There has been some being awake in the early hours lately, difficulty getting back to sleep then, but at this stage I hadn't been thinking that was from the LDN. Too many variables in my life as usual to be able to really accurately link cause and effect - eg in these few weeks, also had heatwave, some overexertion on household tasks, some situational stress ..read more

Hi everyone, I came across the work of Dr. Scott McMahon & Dr. Ritchie Shoemaker recently and believe that the CFS diagnosis I have received from a rheumatologist may actually instead be CIRS. I say this because, after hearing of their work treating people exposed to water-damaged, mould-infested apartments, I realised that my condition seems to worsen when I am in my apartment, which currently has issues with water leaking from the apartment above. The problem that I've come up against is finding the products with which to test the potential mould situation in an alternative apartment. Th ..read more

Sorry your suffering river. Have you seen a gastro entorologist? I think they're called. a digestive system specialist. Either ever, or recently? I'm concerned for you and your symptoms ..read more

Been viewing the still new website recently on dark mode and just want to say wow, it's really great. Can we have a dark mode for the forum, please ..read more

part 3: I'm feeling really poorly today ? ? Crappy crappy brain tired and makes me so emo when I can't function. At least my body is doing better, for which, again, I am REALLY grateful for the shorter physical pem. Only other thing I can do is go back on keto diet which is just soooo boring and restrictive and hard work food prep wise. but it does help my mental clarity... it's really the mental recovery and PEM in the first place. Sorry I'm just feeling so awful today and can't do anything mentally ? I hate feeling powerless like this and i need to have a bit of a sook ..read more