Top academic researchers are rolling the dice on a board game demystifying dementia difficulties for carers and care professionals. The Dementia Inequalities Game has been developed by the University of Liverpool, the Lewy Body Society and SURF, in collaboration with people who have lived and professional experience of dementia. Dr Clarissa Giebel, Senior Research Fellow at the University of Liverpool and the NIHR Applied Research Collaboration North West Coast, leads the dementia research group at the Institute of Population Health, studying the inequalities in dementia diagnosis and care. D ..read more

As the first flush of ‘new year, new you’ fades, who’s looking for some motivation to keep going on the fitness front? Or are you a runner who loves the challenge of a big event? Running in support of a charity is a great inspiration when you hit ‘the wall’, as Dr Clarissa Giebel can attest. Last year the Liverpool University dementia inequality academic and keen runner completed the London and Chicago marathons, raising £1,000 of vital funds for The Lewy Body Society. She said: “It was brutal at about 30kms onwards, as it tends to be because it’s a very hard thing. And I just kept thinking ..read more

We would like to invite you to take part in the COBALT Trial. The COBALT Trial aims to find out if Memantine as a treatment for patients with Lewy Body Dementia improves overall health and function when given alongside an Acetylcholinesterase Inhibitor. Dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD) are complex illnesses with a wide range of distressing symptoms. Acetylcholinesterase Inhibitors (AChEI) are commonly used medicines (brand names donepezil, rivastigmine and galantamine) that can help people with DLB and PDD by improving day to day functioning and thinking ..read more

We are the only charity dedicated solely to Lewy body dementia in the UK. Through our application and review process we aim to fund the highest quality research so that we can make a real difference to the lives of people with LBD. We are pleased to announce that the call for applications to our 2024 grant round is now open. We welcome applications for projects that will increase our understanding of Lewy body dementia as well as improving care for people living with this condition and their families and carers. Opening date: Wednesday 7th February 2024 Deadline for applications: Friday 26t ..read more

On 17th October 2024 we are holding an event with a difference… We are going to have an event at Central Hall in Central Buildings, Oldham Street Manchester, M1 1JQ All to raise awareness of Lewy body dementia, the second most common type of dementia in older people. Lewy body dementia is a little-known type of dementia that is very different to the most common type, Alzheimer’s disease, and requires different support and treatment. It can be very challenging to live with and is often misdiagnosed. We want more people to know about Lewy body dementia so that those affected get better s ..read more

Together with other Lewy body organisations on the first World Lewy Body Day (Sunday, January 28), the Lewy Body Society is shining a light on the most common disease you have never heard of. We will be holding events in Westminster and Newcastle and posting on our social media channels.       The post World Lewy Body Day appeared first on Lewy Body ..read more

A Scarf For Lewy Belfast On 17th October we held our long-awaited awareness-raising event in Belfast, which was the second time we have wrapped ‘A Scarf for Lewy’ around a major landmark building.    The mile-long scarf which was lovingly knitted by volunteers last year and wrapped around the Royal Albert Hall in London was transported across the Irish Sea and unwound around the stunning concert venue Waterfront Hall.   We also had a new addition of over xx pomoms which had been knitted especially for this event and added some wonderful  add ..read more

A charity is calling for more awareness of ‘forgotten type of dementia’ to improve diagnosis, care, support, treatment and research this World Alzheimer’s Day (Sept 21). North West/Wigan based Lewy Body Society is the only UK charity dedicated to supporting people living with this form of dementia – known as “the most common type of dementia you have never heard of.” A new website platform now acts as a one stop shop for the charity to share a pool of resources for professionals and carers to utilise to improve the lives of those living with this neurodegenerative dementi ..read more

This time we are going to wrap a huge scarf around Waterfront Hall in Belfast. And again, our aim is to raise awareness of Lewy body dementia, the second most common type of dementia in older people. Lewy body dementia is a little-known type of dementia that is very different to the most common type, Alzheimer’s disease, and requires different support and treatment. It can be very challenging to live with and is often misdiagnosed. We want more people to know about Lewy body dementia so that those affected get better support, and there is more scientific research into the disease. As a cha ..read more

We are inviting people to knit a scarf and to join us at the Waterfront Hall, 2 Lanyon Place, Belfast, BT1 3WH, wearing their scarf, please do not post a scarf to us.    All to raise awareness of Lewy ... The post On Tuesday 17th October 2023 we are holding an event with a difference… appeared first on The Lewy Body Society ..read more