Diet survey
Narcolepsy UK Blog
by
4M ago
If you would like to take part, you can access the survey or by scanning in the QR code ..read more
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IAPO launches survey to identify unmet patient needs
Narcolepsy UK Blog
by
5M ago
The IAPO (International Alliance of Patient Organisations) are conducting a survey. They put out the following release about it and asked us to share it with our network ..read more
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Temporary closure over festive period
Narcolepsy UK Blog
by
6M ago
In a crisis, please ring 07920 650 552 and leave a message ..read more
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Second call out - Study on the quality of life and costs of narcolepsy and idiopathic hypersomnia
Narcolepsy UK Blog
by
6M ago
Initially we did a call out in September. We have had a good response but would love to see a few more as it’s closing soon. If we could get to 100 responses it would be great ..read more
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Helpline support is a "lifeline"
Narcolepsy UK Blog
by
7M ago
Our Helpline supports many people in many ways - why not give us a call 0345 4500 394 (We do not have a person ‘live’ 24/7 but leave a message of just a number for us to call back). No question is too small all have equal respect ..read more
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LAST CHANCE TO PARTICIPATE: Situational Sleepiness Scale Study
Narcolepsy UK Blog
by
7M ago
We at Narcolepsy UK are excited to share with you again research that aims to improve how we help children with narcolepsy in the future and, more importantly, how you can get involved ..read more
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Volunteer bill posters
Narcolepsy UK Blog
by
8M ago
Ask a teacher school to put one up at school, take one to work or any other sensible place you can put one up. and print them in colour or black/white or we can mail them to you ..read more
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You are not alone in this
Narcolepsy UK Blog
by
8M ago
At one level, there is some truth to this. Hypersomnias like narcolepsy and IH are spectrum disorders, so everyone’s experience of these sleep disorders is completely unique. On the other hand, the very same spectrum nature means that everyone with a diagnosis of narcolepsy and IH has a lot in common ..read more
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Backpacking with narcolepsy
Narcolepsy UK Blog
by
8M ago
Last year, aged 27, after cajoling my body into working a 9-5 job for several years, and having relied on a concoction of medications to get me through each day, I decided to request a career break to go travelling around Southeast Asia for three months ..read more
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Temporary unavailability of Helpline
Narcolepsy UK Blog
by
8M ago
Please be aware of these dates. We apologise for any inconvenience this may cause ..read more
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