I felt like a movie star years ago, walking into the Sean Parker Voice Institute in New York City. The halls were lined with signed photographs from famous actors and singers. Not being able to carry a tune made me feel out of place, but, hey, I was there to find out why I was often hoarse.  While I was sitting on the exam table, talking to the doctor, I cleared my throat. “Don’t do that!” she said.  “Clearing your throat is harsh on your vocal cords and can cause inflammation.  Instead take a sip of water. And, if you don’t have water available, try to suppress the urge.” I ..read more

Some with BE take showering precautions to limit exposure to steam that can harbor lung pathogens. This concern can make traveling tricky. So, let’s brainstorm about our bathing and showering options!! One solution is to find accommodations that have a bathtub. Another is to see if the accommodations have showers with a handheld fixture that allows one to target the water and minimize steam exposure.  This is my go-to method in my NYC apartment, and it works great! In addition, think about the following: *Let your tap, toilet and shower run for several minutes before using water ..read more

Some of us with bronchiectasis choose to take drinking water precautions to prevent bacterial infections. We drink water that is sterile. Options are: *Water from a Lifestraw pitcher or water bottle with filters (NOT a Brita filtering device).  *Water from a UV water bottle or treated with a Steripen *Bottled spring water  *Boiled water When traveling, some of these options might not be available or practical, but generally speaking, we can find one that works for us. I used the Steripen regularly during my trip in October to Italy and also when necessary bought bottled water. I ..read more

Planning for a trip? Here’s how to pack smartly for your self-care needs, especially those related to airway clearance. Know your limits: Consider how many bags you can handle comfortably. If you’re flying solo, packing light is key! Pack a carry-on specifically for your healthcare needs. Most airlines allow a medical bag with a doctor’s note. To vest or not to vest? Some people rely heavily on their airway clearance vest and will need to take it along on all trips and others have the option of traveling without it. Talk to your medical team about travel options without the vest. Vest ..read more

Struggling with lung issues? Choosing the right nebulizer setup can make a big difference! Several years ago, I upgraded to the Ombra system from Monaghan and Trudell International.  This more powerful system is what National Jewish Health (NJH), a top US lung hospital, recommends to their patients. While I haven't received care there myself, I trust their expertise. As a BE consultant, I often hear what clients treated at NJH are instructed to do. In all cases, they've been advised to use an Aerobika with an Aeroelipse XL cup and an Ombra compressor.  It's important to note that ..read more

A LETTER OF APPRECIATION TO MY DRIZZLE POT Dearest Drizzle, I apologize for calling you "glitchy" back in October while I was in Italy.  It seems I malfunctioned, not you!  I thought I had read the instructions carefully, but I missed the crucial step about needing to flip you upside down and change the voltage when abroad. While using you in our California rental, you've been working wonderfully.  Thank you for being such a reliable companion! Please forgive me, Linda #drizzlepot #airwayclearance #bronchiectasis #travelingwithbronchiectasis ..read more

This week we'll dive into travel essentials and how to pack them!    But first, a tip: budget $200 for self-care equipment.  Why?  Because: Peace of mind: Having the right tools keeps us confident, even if our routine changes. Preparedness: Extra airway clearance equipment ensures you're ready for anything. Comfort: Inflatable wedges and bed risers can make all the difference for a restful night's sleep, preventing reflux, and guarding against exacerbations. Equipment Sourcing Guide– *Steripen - Amazon (lithium batteries need to be in carryon) *Medela steam bags ..read more

In a previous post, we discussed the importance of pre-travel exercises for everyone. But for those managing bronchiectasis, preparing our body with stretches and strength training is extra important! Traveling often involves lifting luggage, long journeys, and unfamiliar environments, so being in good shape can make a big difference. But that’s not all! Effective communication plays a vital role too. Talking openly with your travel companions about your airway clearance needs and rest requirements can be a game-changer. Let them know you might need to schedule specific times for these act ..read more

⭐️⭐️BE-Practical Series⭐️⭐️ Oral microbiota is a hot research topic and within the next five years we will hopefully have a better understanding of the role these bacteria play in the lung microbiome. Although it is hard to believe, we have over 700 different types of bacteria in our mouths! Some are good, some not so good and some we aren’t sure of.  For those of us who have dealt with NTM infections like MAC, the good news is NTM are generally not found in the oral cavity. However, when we cough and secretions enter our mouth, they could end up on our toothbrush. A dab of dish so ..read more

Imagine this: Palm trees sway gently, the sun warms your back, and a cool breeze carries the scent of the ocean. Sounds like a dream, right?  Make it a reality at the Bronchiectasis/NTM happening in San Diego at the luxurious Fairmont Grand Del Mar this May 16th-17th. Join us for: *Meaningful connections with the bronchiectasis and NTM community *Invaluable updates from leading experts in interactive sessions *Learning opportunities whether you attend in person or virtually To register click here!! Thank you Amy Leitman and the non-profit Bronchiectasis/NTM Info and Research team ..read more