A call to federal government for equitable access to a promising high-risk neuroblastoma treatment Friday 12 April 2024 Neuroblastoma Australia, together with the Australian and New Zealand Children’s Haematology and Oncology Group (ANZCHOG) and Australian paediatric oncologists, has written to request the federal government urgently consider providing interim funding for Australian children with high-risk neuroblastoma to access eflornithine, a recently approved US Federal Drug Administration (FDA) treatment. Around 50 children are diagnosed with neuroblastoma in Australia each year, of which ..read more

We’re excited to announce we have been selected to participate in Beyond Bank’s Double Donation Campaign this March. The Double Donation Campaign is powered by the Beyond Bank Australia Foundation, the charitable arm of Beyond Bank, which works closely with not-for-profit organisations across Australia to ensure that they have the support they need to grow and prosper. This is the fifth year for the successful fundraiser, which saw more than $330,000 going back into the local community in 2023. Over 48 hours from 7:30am on Wednesday, 13th March (EST), every donation made to Neuroblastoma Austr ..read more

Australians have been able to fundraise on Facebook for a while, Instagram hasn't offered the same feature...until now!    Instagram has recently introduced a new feature that allows you to fundraise for great causes, like Neuroblastoma Australia, directly on the platform.  It's very user-friendly and starting a fundraiser only takes a few minutes.  You can generate a fundraiser to any occasion, large or small. Some examples might be: A birthday fundraiser where friends and family make a charitable donation instead of a gift Fundraising for a special challenge or activity ..read more

We’re thrilled to welcome award-winning chef and restaurateur, Jean-Christophe Novelli, as a Neuroblastoma Australia ambassador.  Jean-Christophe Novelli, one of the UK’s top French chefs, renowned for his passion, culinary expertise and innovation. He started his career early in life, working in a bakery in France from 14 and has since gained nearly 50 years of experience in the hospitality industry winning many awards along the way.  Jean-Christophe is also loved for his charismatic TV appearances on shows such as Hell's Kitchen, Bravo’s Chef Academy USA, Guest Judge on Top Chef US ..read more

In October last year Neuroblastoma Australia made a submission to the Senate Inquiry into Equitable Access to Diagnosis and Treatment for Rare and Less Common Cancers, including neuroendocrine cancer. The Senate invited Neuroblastoma Australia, along with other representatives from the rare and uncommon cancer community, to make a short 2-minute opening statement at its public hearing on Wednesday, January 31.  Neuroblastoma Australia CEO, Lucy Jones, delivered a statement that summarised the charity's views and highlighted issues relevant to the inquiry. Lucy was joined by Julia Sammut ..read more

YouTube Video https://www.youtube.com/watch?v=PCHY2mFhwsM This year's Neuroblastoma Australia Christmas Appeal features a very special boy called Henry. Henry's parents, George and Steph, shared their family's story on Sky News in support of the Appeal. We thank George and Steph for their bravery in telling their story. Their experience underlines why we desperately need to find a cure for neuroblastoma. You can help us fund vital research by donating to Henry's Christmas Appeal: https://www.neuroblastoma.org.au/appeal/christmas-appeal-2023 ..read more

Parent perspectives provide important guidance to scientific researchers. Understanding the impact and outcomes of current neuroblastoma treatments on children and their families helps researchers define project objectives and desired improvements. Jen, a parent in our neuroblastoma community, recently made a successful submission to the Pediatric Research Journal to outline her concerns and questions about current treatment options, and underline key considerations for future research. Jen’s child, Li, was diagnosed with stage 4 neuroblastoma at just 8 months. Jen was told to expect a “...hea ..read more

Our special thanks go to our Fundraising Heroes community, who spend many hours raising vital funds that go towards research into better treatments for children affected by neuroblastoma. Special thanks go to: Natalie who has been raising funds and awareness for neuroblastoma for over 8 years, after being inspired by a little boy named Jai. Natalie is fundraising in 2022 by running the Kangaroo Island marathon - 42km for her 2 Many 2 Young Appeal, whilst wearing her legendary 2-2 (tutu). Team Ethan who took part in Run2Cure 2022 in memory of their 2-year old Ethan who was diagno ..read more

Dylan Aldous is raising funds for Neuroblastoma Australia by completing the half-marathon in the upcoming 2023 RACV Solar Great Ocean Road Running Festival. Taking place on May 20 and 21, the festival offers participants a range of exciting challenges, including an ultra marathon and 12km trail run.     Dylan’s newborn son, Rory, was diagnosed with neuroblastoma earlier this year. Rory was Dylan's inspiration for undertaking the challenge,  “It has been a difficult time for us as a family and we are very grateful for the support that we have received from our beautiful frie ..read more

With Shopnate, you can raise funds for neuroblastoma with a click. Shopnate is an online platform that enables you to raise money for Neuroblastoma Australia simply by shopping online. You can support our charity without any additional cost by buying from retailers who are part of Shopnate. This includes retailers such as ebay, ASOS, Booktopia, The Iconic, Petbarn, Nike, and HelloFresh. Shopnate donates a percentage of the amount you spend to your chosen charity. You can also install the Easy Fundraiser app. With this app, you don’t have to always shop through Shopnate to donate to Neuroblasto ..read more