I had a TT with neck dissection in June 2023 and RAI last September. My lung nodules did not take up the RAI. My cancer was DNA tested, and they know it's an RAI-resistant strain that is aggressive. My 6-month check found my lung nodules have grown ~2-3mm (the largest is now 15 mm). I am scheduled to now see another oncologist to discuss treatment. What am I in for on meds? Cost? Side effects? What's the 5 or 10-year survival rate ..read more

I live in Portland, OR. Need FNA of thyroid and want to go where test and results will be most accurate. Where should I go? OHSU Thyroid Center or an interventional radiologist at Providence or Legacy hospitals ..read more

Hello all, I had a TT with neck dissection in Nov 23. I currently have medastinal level 3 nodes (2)that are enlarged. I had 200 RAI on 3-27-24.The previous chest C/T shows micro lung nodules. I was looking for anyone that had experiences with this? Treatments, etc. Thank you in advance ..read more

I’m mid 40s, had severe hypothyroid symptoms for about a year, then a partially obstructed airway which led me to this diagnosis: papillary thyroid cancer (follicular variant) diagnosed post-op. Thyroidectomy in September 2023 and just got my TG results. It’s 5620 ng/dL, which is much higher than expected range. I don’t see my endocrinologist until Friday and I’m trying not to worry. Any predictions or similar experiences ..read more

Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now), radiating up behind their ear and giving you a sore throat and it still come back as benign after surgery? Or does pain usually mean cancer ..read more

Hi everyone, does anyone have experience with Lenvima? I am interested in learning more about the side effects and how soon you might have started to see results on this med? This is for idione refractory metastatic thyroid cancer ... w lesions on the brain. Thank you.     ..read more

I had an ultrasound on my thyroid nodule which came back as TI RAD 5. The size of the nodule is .61 cm. Was told to wait a year and have another u/s. I had and still have other symptoms, which is why I went to see my doctor in the first place. Swollen and, at times, painful neck, difficultly swallowing, hoarseness in voice, strained voice, weight loss, and at times difficulty breathing. Just had blood work done and came back with very low Vitamin D, low iron and high B12. I am type 2 diabetic which is being treated with diet. My non-fasting glucose was 88 three days ago. I am an advocate for m ..read more

any one have tall cell thyroid cancer id like to hear your story ..read more

I have read that this is extremely rare having both cancers at the same time. Has anyone else here dealt with this ..read more

Am available as a resource for emotional and/or mental health support for cancer patients and families in general and specifically for throat cancer patients and survivors. We are not alone ..read more