Trial offered for LASN (phase 2) and Linsitinib (phase 2b)
Thyroid Eye Disease
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1w ago
Hi, TED patient UK here, moderate-severe case, eyes already impacted by high astigmatism and short sightedness (L -22, R -15). Diagnosed with hyperthyroidism in Feb, on Carbimazole for over 5wks,.and ..read more
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Can’t do Tepezza due to Ulcerative colitis history. Anybody in the same boat?
Thyroid Eye Disease
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1w ago
Has anybody been told that they can’t do Tepezza because of ulcerative colitis or IBD? My doctor told me it wasn’t an option, please let me know what you guys ..read more
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How long does it take for TED to become stable and inactive?
Thyroid Eye Disease
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1w ago
I want to get orbital decompression surgery but my eyes are worsening and the disease is active right now. How long did it take for the disease to become inactive ..read more
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Unsolicited Advice
Thyroid Eye Disease
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2w ago
What is the worst unsolicited advice you have received about your TED ..read more
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Positive Moments
Thyroid Eye Disease
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1M ago
Have you had a positive interaction with someone related to your TED? Have you had a doctor's appointment that made you feel great? Maybe a great day where symptoms didn't ..read more
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Tepezza
Thyroid Eye Disease
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2M ago
I’ve heard there’s a real possibility of a maintenance dose Tepezza in the near future. Pill or possibly an injection, I for one am all in if this happens and ..read more
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What do you want to know about TED?
Thyroid Eye Disease
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2M ago
What topics related to living with TED would you like to read or hear more about ..read more
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Looking for a Dr recommendation
Thyroid Eye Disease
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2M ago
I am brand new here. 2 years ago I was diagnosed with Visual Snow Syndrome. During my appointment with my neuro ophthalmologist, she also noted that my eyes seemed more ..read more
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Can someone help me understand TED
Thyroid Eye Disease
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2M ago
Hey people I’ve just signed up to this forum an I just wanted some advice and help really. Today I had a appointment with a ted doctor an he basically ..read more
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Will you take our In America survey and help others understand the impact of thyroid eye disease?
Thyroid Eye Disease
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2M ago
We are conducting our In America survey to learn more about the challenges of living with thyroid eye disease (TED). By taking our survey, you can bring awareness to the ..read more
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