Our congratulations to Dr. Stavros Tsagkaris, from the Evelina London Children’s Hospital in London, UK and the David Marsden Award 2024 for his paper: Metabolic Patterns in Brain 18F-fluorodeoxyglucose PET Relate to Aetiology in Paediatric Dystonia On Saturday 29 June Dr. Tsagkaris was presented with the award by Dystonia Europe Executive Director Monika Benson at ..read more

By Dr Jean-Pierre Lin, Evelina London Children’s Hospital, London, UK The award of the Dystonia Europe David Marsden Prize to Dr Stavros Tsagkaris represents a significant recognition of the importance of our work in investigating brain activity patterns in childhood and adolescent dystonias1, 2 representing a 20-year project to carefully unravel the mechanisms of dystonia ..read more

The cervical dystonia patient journey was published two years ago. Currently is is being translated into more languages. These are published on the ERN-RND (The European Reference Network for Rare Neurological Diseases) website. https://www.ern-rnd.eu/disease-knowledge-hub/dystonia/ We hope that this patient experience map will support patients who are newly diagnosed as well as other dystonia patients and ..read more

  The year 2024 begins with a new book: The Manual of Botulinum Toxin Therapy, one of the best-selling botulinum toxin books, has now been published in its third new edition by Cambridge University Press. ‘We are delighted that this book has been able to establish itself over the years as the standard work on ..read more

My story started the summer of 2009, with much discomfort in my eyes. January 2010 I had to stop working and was on sick leave due to extreme sensitivity to light and headaches. I was burned out. I was examined for Sjögren’s disease, infection and different illnesses of the eyes without any results. My eyes ..read more

It is now over a year that you have been missed and you will always be missed. Your legacy and work live on in so many of our projects and activities. We are always so grateful for all you have done for the dystonia community. You brought energy, inspiration and a new vision to our ..read more

The following article, makes reference to certain companies and their products and any opinions expressed should not be taken to be the views of Dystonia Europe or its        members. The article are written by respected authors and are provided for the information of Dystonia Europe News readers.   The next-generation DBS technology is now available in a ..read more

After twelve (!) years of waiting and five (!) years of preparations we finally gathered in Dublin to convene the Samuel Belzberg 6thInternational Dystonia Symposium. After the Barcelona meeting in 2011, we heard that it was the best dystonia symposium people had ever attended; we hear now that the 6th one was even better! Three days ..read more

The Finnish Dystonia Association celebrated its 25th anniversary in September in Pori, Finland. As a nationwide organisation, we chose a new city as a venue. Approximately 50 members gathered to meet each other, to receive and provide peer support and to listen to interesting presentations by neurologists, physiotherapists, and rehabilitation psychologists.       A ..read more

On Sept. 30th Associazione per la Ricerca sulla Distonia (A.R.D.) organised the 4th National Dystonia Day. In order to increase visibility and attention towards dystonia, in 2020 we decided to create a National Day to be held on the last Saturday of September, preceded by articles or interviews published via various means of communication. The ..read more