Today, Sara talks with Dr Maureen Michele, physician, life coach, and author of the book Reclaiming Life: A Guide For Parents of Chronically Ill Children. We dive deep into the essential aspects of advocacy and emotional resilience, particularly in the context of parenting chronically ill children. We discussed the "4 C's" - consciousness, curiosity, commitment, and courage - and how these principles give us as caregivers and our children the tools we need to manage our thoughts and emotions. Plus, Dr. Maureen shares helpful advice for effectively disagreeing and handling emotions during docto ..read more

There are emotional complexities and practical considerations of caring for children with disabilities or special needs during emergencies. In this episode, we discuss our conversations with our kids about emergencies, how we prepare for these inevitabilities, and how to recognize our personal needs to find emotional support during these crises. This episode will empower you to have a plan but prioritize your well-being while caring for all your children in these challenging times. Key Moments: [4:34] Censoring medical history for son, balancing information  [11:49] Mom's emotions and th ..read more

Carrie sat down with Kristin and Todd Evans to discuss their newly released book, How to Build a Thriving Marriage As You Care for Children with Disabilities. They talk about communication strategies for couples, how they manage stress, and the ongoing grief we experience as special needs parents. This episode offers practical advice and emotional support for couples facing similar challenges.  Ep. 166; May 21, 2024 Key Moments: [4:49] Lots of shame that we can feel as parents [11:14] Marriage struggles: we had hurt each other a lot [16:19] Deliberate moments and mindfulness relieve stres ..read more

Join hosts Carrie, Sara, and Amy as we take a deep dive into the grief we face as mothers of children with disabilities. In this episode, we talk about how grief can feel like fear or anger, the need to be honest with ourselves, and the transformative nature of lament. This topic is something you may not know that you need until you allow yourself the space.  Eps. 165: May 7, 2024 Key Moments: [4:23] Guilt says “I didn’t do enough.” [7:29] My anger is actually grief  [11:04} Why doesn’t God stop the pain [17:58] “Everything is not going to be ok, but we’re gonna get through it” Resou ..read more

We are excited to share Amy’s conversation with Michele Cushatt, an author, communicator, and 3-time cancer survivor. Michele's latest book, "A Faith That Will Not Fail," offers practices to strengthen faith during challenging circumstances. Amy and Michele talk about acknowledging and dealing with trauma honestly, offering hope. They also discuss the concept of lament and the practice of relinquishment.  Eps. 164 : April 16, 2024  Navigating Family Trauma: Finding Hope Amidst Hardship with Michele Cushatt Summary:  Key Moments: [9:20] Fear of letting go [18:34] Struggle to ..read more

We are honored to welcome the inspiring Kelley Coleman to our podcast. Kelley shared her deeply personal journey as a parent of a child with multiple disabilities and how she ended up writing her book, "Everything No One Tells You About Parenting." Her authenticity and wisdom shine through in this interview. We discuss the lack of information parents are provided on diagnosis and how there’s not one specific place a parent can go to find the info and support they need. We talked about the crucial aspects of caregiving in navigating the healthcare system, accessing financial support, and our ne ..read more

As caregivers, we are well acquainted with transitions, and very much so in regard to our children. In this collaborative, Amy, Sara, and Carrie discuss the difficulties of life transitions as parents. They talk about their personal experiences, including making medical decisions and educational changes. The challenges of balancing autonomy and outside influences, going against medical recommendations, and seeking guidance for decisions are all discussed. We hope this episode offers valuable insights and practical tips for you! Key Moments: [2:20] 4 different types of transitions [7:59] Planne ..read more

Being a parent to a child with special needs comes with its own unique set of challenges, and being misunderstood is a chief issue. As Amy, Carrie, and Sara share their personal experiences and insights, they provide valuable guidance on responding with grace and resilience when faced with misunderstandings…even though they don’t do it perfectly every time. They discuss the balance of speaking the truth and advocating for their children without being intentionally hurtful to others and not feeling the need to explain everything, instead using their child's trauma as an explanation only when ne ..read more

Summary: Sara opens up about the challenges of feeling misunderstood as a mom and caregiver to a son with disabilities. Her top 5 instances when she has felt misunderstood touch on assumptions about strength, the perpetual feeling of needing to do more, finding a balance between identity and the constant impact of the diagnosis, and more. We know you’ll feel seen by listening to Sara’s honesty. So, grab a cup of coffee and prepare to dive into the heartfelt truth in this episode.  Key Moments: [1:54] “You’re so strong!” and “I couldn’t do what you are doing!” [7:02] Believing in God but ..read more

As parents of special needs kids, we have felt the weight of being misunderstood. In this episode, Carrie shares her experience with people who have made assumptions about us or our children and how it affects us as parents. She explains three things she wishes people understood about her parenting journey and three ways to handle ourselves when we have been misunderstood. Experiencing this life can be lonely, and this episode will give you some practical ways to manage the complex feelings that come.  Ep.158: February 13, 2024 Key Moments: [0:52} A hospital experience I’ll never forget ..read more