I am newly diagnosed. I am also deaf and had another cochlear implant placed. I had one in the left ear in 2019, not sure if it is connected, but a year later i had started having absence seizures. I have asked my neuro and he cannot confirm. I am teriffied these seizures will turn into grand-mal after this last surgery I had on April 11th. Any advice? I told my ENT surgeon and he said well oh great. submitted by /u/Some_Specialist5792 [visit reddit] [comments ..read more

She started having gran mal seizures in her early 20's. First one, then not another for a few months to a year or more later. The Dr's tried different meds over the years. She has been on vimpat and keppra for many years. Up until two days ago her last seizure was around 2010 when she had two over the course of two weeks. Very thankful over the past 14 years she hadn't had one until now. Seizure free for 14 years but migraines and brain fog / aphasia have become a common occurance a few times a month, seemingly around the time of her monthly cycle. The brain fog would often times be before a ..read more

How did you go about this? I have been tracking everything I can think of for months and can’t seem to find a consistent pattern. Thanks for any tips submitted by /u/PresentationGold1822 [visit reddit] [comments ..read more

Do any of you experience muscle spasms/ light fluttering before or after a seizure? I recently have been experiencing my upper lip and calf muscles lightly fluttering - barely visible but 100% it happens a few times per day. I’m leaning toward thinking this is dehydration or vitamin deficiency….but curious if this might be more common for those with epilepsy? For background, I had my first (and hopefully last) grand mal seizure 6 months ago. It was a full blown episode; lost consciousness, stopped breathing, CPR and 2 days hospitalization. Initially, I thought it was caused by “the perfect st ..read more

I've had epilepsy for 34 years, and vestibular migraines for 30 years. The symptoms often mirror each other so perfectly that it is very hard for me to tell them apart unless I have a tonic clinic seizure. But 2 days ago I had an incident that I've never experienced before. I was in Wal-Mart with my husband, and I could tell the lights were bothering me. I felt cognitively "off" and felt sort of detached from my body. Later that day (maybe 6 hours) I had been reading in bed. I remember I was going to get out of bed to get a drink and go to the bathroom. I recall getting out of bed, and gettin ..read more

I had absence seizures as a kid, from about 5 to 6 years old. I took medication (can’t remember what it was) and it eventually calmed down. I then had a grand mal seizure at 15 after coming off of Depakote. I’m pretty sure it was triggered by flashing lights. It was a one time thing, so I had the brilliant idea to stop taking epilepsy medication altogether. Fast forward to today, 4 years later. Had a grand mal seizure at work, an ambulance was called and I spent 5 hours in the hospital. This time it was pretty bad, I’m still very confused, can’t talk that well, can’t walk straight. My questio ..read more

I've been taking 400mg lamictal for a couple of years now with minimal side effects other than minor rash and mood swings. I just had my first seizure in a year and ended up in the hospital, so they added 2000mg of keppra. I started taking it last night and I'm wondering if there's anything I should be worried about from people who also take both. submitted by /u/JustBeingDishonest [visit reddit] [comments ..read more

My boyfriend has undiagnosed epilepsy. He has half assed his medical treatment and figure it all out. Hasnt started medicine even though he has had over 6 TCs in the last 3-4 months. I know all of that is on him. I can’t make him do anything he doesn’t want to and I know the fear of a diagnosis is hard to confront. He had another TC in his sleep last night. Bled all over and of course I took care of him and made sure he was ok. But it’s never any less traumatic than the first time. I asked him to take it easy today but he went off to work and plans of “going harder” because he doesn’t want to ..read more

A year ago our daughter, 7 at the time, had her first seizure. We didn’t even know it was a seizure. She had been experiencing abdominal pain for several days and after 2 ER visits to understand what the pain was, she woke up one morning and starting looking to the left, she stopped responding to my questions, I had to hold her in my arms to keep her from falling to the ground because she seemed like she was about to pass out. I called 911 and we were take back to the children’s hospital we’d been at the night before for the stomach pain. They determined she nearly passed out from the pain an ..read more

Well, as much as it killed me to see my wife laid up in a bed so miserable for the past few days, she's being released!!! Good news: she had seizures of all different types, from focal impaired to full tonic clonic, 7 total in 24 hours. Unfortunately, the worst ones happened before she even came off the meds she's prescribed. That also coincides with her stopping her keppra 2 days before, which was the original plan from the doctor. The keppra made her wildly angry and unable to control her emotions. Official diag is going to temporal lobe epilepsy Bad news: keppra seems to work to keep the s ..read more