Fibromyalgia Advocacy for Research Funding Continues
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by Melissa Talwar
1w ago
Fibromyalgia Advocacy continues as Fibromyalgia Team Leaders head to Washington, D.C.!  Our dedicated group of fibromyalgia advocates set out on new adventures to meet with Congressional leaders in Washington, D.C., to secure increased funding and support for fibromyalgia research, treatment, and awareness. This significant event marks a pivotal moment in the fight against a condition that affects millions yet remains largely misunderstood. For this trip, we met with Congressional leaders on the Appropriations Committee and districts in New York, South Dakota, Illinois, South Carolina ..read more
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Neuroinflammation
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by Melissa Talwar
2M ago
Neuroinflammation is a complex biological response to injury, infection, or disease within the brain or spinal cord. It involves the activation of the central nervous system’s (CNS) immune cells, as well as the influx of peripheral immune cells, and the release of cytokines, chemokines, and other inflammatory mediators. While neuroinflammation is a normal defense mechanism intended to remove harmful stimuli and initiate healing, chronic or uncontrolled neuroinflammation can contribute to, or exacerbate, neurological diseases. Here’s what is known about neuroinflammation: Role in the CNS Prot ..read more
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Fibromyalgia Blood Test Lawsuit
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by Melissa Talwar
2M ago
It’s challenging to write this blog and not have an opinion. This is important fibromyalgia news that the community needs to read through. If you have taken the fibromyalgia blood test in the past, I’d love to hear from you. Here are some updates and understandings: The Center for Science in the Public Interest (CSPI) has filed a lawsuit against EpicGenetics, accusing the company of making false and misleading claims about its diagnostic tests for fibromyalgia and a condition it calls “Immune Deficiency Disease” (IDD). The lawsuit alleges that EpicGenetics’ FM/a Test, claimed to be “99 percent ..read more
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Fibromyalgia Advocacy in 2024
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by spfmfamily1
2M ago
Join Us in Amplifying Fibromyalgia Advocacy in 2024!  As we step into a new year, our commitment to fibromyalgia advocacy has never been stronger. We are poised to launch the largest grassroots effort yet, working closely with our national Fibromyalgia Delegates to bring about the change that is long overdue. The neglect of fibromyalgia by the NIH cannot continue. We demand urgent, sustained investment in fibromyalgia-specific research, clarity from the NIH to better equip clinicians, and amplified support for awareness initiatives. Stay Connected and Amplify Our Voice: We’re taking our a ..read more
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Fibromyalgia Organization Year In Review 2023
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by Melissa Talwar
4M ago
Huge group hugs to the fibromyalgia community, caregivers, clinicians, researchers, and all of our Support Fibro friends! As we bid farewell to 2023 and welcome the promise of a new year, I wanted to take a moment to reflect on the incredible work that the Support Fibromyalgia Network and our friends have done over the past year to support those living with fibromyalgia. It is with great pleasure that I write this letter of review, commending the dedication and impact of the organization. Our team and friends have continued to be a beacon of hope for individuals affected by fibromyalgia. We ha ..read more
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Understanding Glial Cells in Fibromyalgia
Support Fibromyalgia Network
by spfmfamily1
4M ago
Fibromyalgia is complex and the root cause mechanisms are still poorly understood. Research into the role of glial cells in fibromyalgia has been ongoing. It’s an exciting and emerging area of study that needs more funding. Glial cells play essential roles in supporting and maintaining the function of neurons, which are the primary signaling cells in the nervous system. There are several types of glial cells, each with its own distinct functions. The two main types of glial cells in the Central Nervous System: Astrocytes: Astrocytes are the most abundant type of glial cell in the CNS. They ha ..read more
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Fibromyalgia Giving Tuesday 2023 – Grow With Us!
Support Fibromyalgia Network
by Melissa Talwar
5M ago
Join Us This Giving Tuesday to Make a Difference in the Lives of Fibromyalgia Patients!  This Giving Tuesday, we invite you to be a part of a compassionate movement dedicated to changing the lives of those affected by fibromyalgia. Fibromyalgia is more than just chronic pain; it’s a daily challenge that millions face, often in silence and without adequate support. Our national nonprofit, Support Fibromyalgia Network is committed to providing patient resources and a supportive community to everyone living with fibromyalgia. But we can’t do it alone – your support is vital. Why Give? Suppo ..read more
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Fibromyalgia Community Conference is BACK!
Support Fibromyalgia Network
by spfmfamily1
5M ago
Support Fibromyalgia Network and friends are back for their innovative and nerdiest Fibromyalgia Community Conference yet.  The Fibromyalgia Community Conference is a groundbreaking all virtual, free, and global conference dedicated to the latest advancements in fibromyalgia patient care, advocacy, and research. This premier event is set to take place online from November 30th to December 9th. Registration is now open at FibromyalgiaConference.com With an anticipated audience of patients, researchers, and healthcare professionals from around the world, the Fibromyalgia Community Conferenc ..read more
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The Fibromyalgia Health Professionals Conference Goes Virtual!
Support Fibromyalgia Network
by Melissa Talwar
7M ago
Great news to all our fibromyalgia friends and community members. The Fibromyalgia Health Professionals Conference has now gone completely virtual! It’s been an adventure traveling at the moment and we are disappointed we don’t get to meet everyone in-person this time. We appreciate the hard work from the Texas Center for Lifestyle Medicine on this collaborative event. Live stream tickets are now available for the conference taking place October 5th – 7th, 2003. Register Now This is designed for all patients, healthcare professionals, and community members seeking to deepen their expertise i ..read more
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Freedom From Fibromyalgia Summit!
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by spfmfamily1
11M ago
Get ready to join over 40+ experts in functional medicine, pain management, nutrition, and other specialities for the Freedom From Fibromyalgia Summit! It’s all online and free for each day. REGISTER HERE to claim your FREE spot! Don’t forget to grab some of your bonus items. The Freedom From Fibromyalgia Summit, brought to us by DrTalks, is an online, 7-day summit during which attendees can see a complete picture of fibromyalgia portrayed by many health specialists. The presenters for this event will not only provide a general picture but will also delve into the various branches of the condi ..read more
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