Author: hwhite Subject: New Posted: Apr 18 2024 at 1:11pm I'm still here,  better than before ☺  and I'm beating this one up ..read more

Author: Karen_D Subject: Newly Diagnosed - Need Friend! Posted: Apr 15 2024 at 10:48am I had some trouble with mouth sores. The nurse told me to mix a teaspoon of salt and a teaspoon of baking soda in a glass of water to rinse my mouth with. It worked great and is so simple I starging doing the rinse every night before bed and after that I didn't have any trouble. The cold sore is probably just a cold sore, but I definitely recommend the mouth rinse. Keep up the fight ..read more

Author: Tammy O Subject: Newly Diagnosed - Need Friend! Posted: Apr 14 2024 at 12:46pm Thanks Karen. I will ask about that.  The steroids do give me great energy - but then I go through a little withdrawal in the day I stop taking them then and I sleep for hours!  I guess I just need to find a balance. Any tips on mouth sores?  I’m dealing with a lovely fever blister and not sure if it’s from meds or just brought on by stress and lack of sleep.  Happy Sunday to you!   ..read more

Author: Karen_D Subject: Newly Diagnosed - Need Friend! Posted: Apr 14 2024 at 12:13pm I skipped the steroids other than at the time of infusion, with my doctor's consent of course. If you are struggling with the steroids you might ask if you can do without.  ..read more

Author: Tammy O Subject: Newly Diagnosed - Need Friend! Posted: Apr 10 2024 at 10:21pm Hi Karen. My attitude webs and flows. Tonight is bad as after my 2nd treatment Tuesday morning it is now Wednesday evening and I still have not slept!  The steroids are kicking my butt and my mind is so jumpy!  And I’m suppose to take the oral steroids again in the morning!!??  I never lasted through a kid slumber party this long!  Haha  any suggestions?  Maybe I should go run a few miles.  ..read more

Author: Karen_D Subject: Newly Diagnosed - Need Friend! Posted: Apr 10 2024 at 9:01pm I'm glad to hear you are bearing up with the side effects. I had some neuropathy with taxol but it went away after I finished treatment and I hope yours will do the same. Hair loss is hard to deal with. I felt like my hair was never going to grow back, but it did. Get some cute hats and head coverings and a nice wig to see you through. It sounds like you have a good attitude and I admire you for that ..read more

Author: Tammy O Subject: Newly Diagnosed - Need Friend! Posted: Apr 10 2024 at 1:18pm Earlier I mentioned I was having lumpectomy on 3/29 as advised by my breast surgeon but after meeting my oncologist on 3/27 the plan changed.  In 3/29 I had surgery to put in my port only. And doc thought a better route would be to do chemo 1st.  On 4/2 I started with a 12 week plan of doing taxol every week. And then every 3 weeks they add in the keytruda & carbo platinum. I’ve had 2 treatments so far with no severe side effects. God is Good!  After this 12 week session I switch ..read more

Author: 1HarleyNurse Subject: Newly Diagnosed - Need Friend! Posted: Apr 10 2024 at 12:17pm Hi Tammy Please feel free to call me at any time. If you would like to talk at any time (day or night), I am amenable. Please respond to my personal email if you would like to have my phone number at Gigi.ellis07@yahoo.com. Since my diagnosis and treatment, I have attended and graguated from nursing school. I am now working as an ER nurse.  Don't lose hope ..read more

Author: Tammy O Subject: Newly Diagnosed - Need Friend! Posted: Apr 10 2024 at 12:43am Hi Karen. Thanks for reponding. I checked out for awhile. I could use someone to talk to. How do I listen to the Thursday forums?  ..read more

Author: Karen_D Subject: Newly Diagnosed - Need Friend! Posted: Apr 08 2024 at 12:58pm Hi Tammy, my diagnosis in 2022 was very similar to yours, and I'm just a year older than you. I had lumpectomy followed by chemo, finished chemo just over a year ago.  At this point I've completed my treatment and am actually doing well. It was a rough road for sure but I made it through and lately I've been joining in the Thursday Thrivers group and feeling like I really am thriving. Don't despair, you can do this! Call on me if you have any questions or want to share your experience. I h ..read more