Hello all, My name is Emily and my family and I have recently joined the club no one wants to be a part of. My father was diagnosed with Stage IV Renal Clear Cell Carcinoma within the last six months and it’s been such a journey. My parents have been such warriors and I am trying the best I can to be a rock for them. However, given that I’m 24 years old and don’t really have any experience what-so-ever in this realm, I’m still trying to learn to cope on my own and how to be a solid support for my family. It’s never the right time to be diagnosed with cancer, but this moment was really a doozy ..read more

my mom just diagnosed with advanced abdominal fat pad cancer, ovarian primary. saw oncology first time yesterday. had undergone paracentesis 2 weeks ago good result and is feeling pretty good, eating good, but extreme fatigue. she is a diabetic and has had some fluctuations in blood sugar but now seems to have normalized. no pain as of yet, only mild discomfort. she is 97, declined chemo, on to palliative care after PET for a look see. i am her oldest, live 500 miles away, going to visit at her request "while she still feels good." i am a total basket case...have already alienated my brother a ..read more

My wife of 20 years was diagnosed in late 2022 with Melanoma stage 3. She had a mass removed that took part of her shoulder and a few lymph nodes as well (who knew there were so many). After trying immunotherapy and targeted therapy she is losing the battle. She fought hard, but the cancer spread to the brain and got in the brain stem. We are currently in palliative care at the hospital as she is in her final days. I would consider anyone going through this start your therapy and find a promising clinical trial as soon as possible that works with your therapy. A company called Elios is doing o ..read more

Hello. How can i make my husband more comfortable. His nausea is terrible. The patch and the ondestraton isnt really helping. He just finished last round. Thank you Lisa ..read more

Glad to be on this platform. My daughter was diagnosed with bilateral wilms tumour at the age of 1 year and 2 months. Surgery was done. She she currently 5years old and 3 months old. Serviving on half a kidney. How do l take care of that remaining kidney. Are there people with the same condition on this platform ..read more

Hi all! My mom has stage 4 lung cancer and had her first chemo treatment yesterday. I’m going down to see her in FL for her next treatment in March. She said she will probably lose her hair by then and wants to go wig shopping. I’ve heard there are places to go for free or discounted wigs. Does anyone know anything about this? There is an American Cancer Society office near her in Ft. Lauderdale. Thanks in advance ..read more

Warm hello to all, I'm new to this website. I was diagnosed with uterine papillary serous carcinoma (UPSC) stage 4B in 2017 (age 58). At the time, the statistics gave it 15% survival after 5 years. This statistic prompted me to almost immediately start to figure out what/how should I address things to start "wrapping up my life" so I could make things as easy/smooth as possible for my husband. So, I'm still around and I wanted to share what I've experienced, learned, advocated for when it comes to the topics in the subject line. All of these topics can dramatically affect the caretaker(s ..read more

Hi. I am new here. My husband and I are both sober. He has stage 4 metastatic cancer, and has been getting chemo for the last year. It was worse than either of us had imagined, but we got through clean and sober. My twin daughters were seniors in high school, and I was managing being there for their fun stuff: senior banquets, parades, prom. Gregg was sick and wanted to be there understandably, but being with him at my side at these events while trying to celebrate was surreal. I held it together baby! Now he is in complete remission, praise God, and it is all hitting me. I am still finding su ..read more

I'm trying to support the most important person in my life and for the first time I'm feeling helpless. I'm so afraid for her and I have spent my whole life trying to be the best big brother that I can be. I have always wanted to protect her and keep her safe but now I am feeling like a failure. I am trying so hard to be strong and give her everything that she needs and deserves but I am struggling to find even the right things to say to her. Today she was given her first real "Gut" punch when over half of her hair fell out in the shower. What can I possibly say to make it better for her? I ca ..read more

As you all know, my stepfather has the fibrosis disease. I am really here this morning to vent. Honestly. I think that no one will get it.... but I also see the purpose. My mom's chemo has been reduced by twenty percent and that has not even had enough time for me to digest. It freaks me the heck out and I have been getting anxiety. Time is going so freaking fast and I have yet to prove anything to her except that I will always be the same. I need her to know that I am okay and that I can do life responsibly... but I also fear thats when she would relax into ya know.... But I also am anxious a ..read more