PKD International
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Find the latest information on Polycystic Kidney Disease, dietary needs, treatments, interviews from experts and more. We are a global alliance of patient organizations worldwide dedicated to ending Polycystic Kidney Disease (PKD).
PKD International
2y ago
Great news for women suffering from polycystic liver disease or PLD! The Dutch Expertise Center of polycystic diseases from the University Medical Center of Groningen (the Netherlands) received a grant worth 800.000E to set up a trial into the effect of anti-estrogenic therapy on PLD in women ..read more
PKD International
2y ago
The first-ever PKD European Patients Day was held on Saturday 18 September 2021 ..read more
PKD International
2y ago
Polycystic Kidney Disease PKD) affects over 12.5 million children and adults worldwide ..read more
PKD International
2y ago
The report from the 2014 KDIGO Controversies Conference on ADPKD has been published ..read more
PKD International
2y ago
PKD International and the European ADPKD Forum (EAF) launched the first ADPKD Patient Route Map at the ERA-EDTA 2018 Congress ..read more
PKD International
2y ago
The European ADPKD Forum (EAF) has published a “Multidisciplinary position statement on autosomal dominant polycystic kidney disease (ADPKD) care ..read more
PKD International
2y ago
All patients, caregivers and health professionals are invited to join the SONG-PKD Delphi panel to help agree the core outcomes which should be included in all future ADPKD (autosomal dominant polycystic kidney disease) research ..read more
PKD International
2y ago
The first European ADPKD Patient Summit, was held in Brussels on 15–16 March 2019. This unique event was designed to promote patient-centred care by providing an interactive forum for patients and experts to discuss ADPKD care, research and advocacy ..read more