And we’re back on the Rollercoaster!
Debs' Journey with Myeloma
by Deb Gascoyne
4d ago
So after my lovely hospital stay, my treatment changed from weekly to monthly. This was always going to be the case so not due to the illness. Perhaps unsurprisingly, I was a bit worried that when this happened that I ..read more
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A quick update
Debs' Journey with Myeloma
by Deb Gascoyne
1M ago
I realise that I haven’t updated on here to say that I’m home from hospital. I was let out last Sunday afternoon despite them not having any idea what had caused the infection (and my 02 levels to drop). But ..read more
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A Room with a View
Debs' Journey with Myeloma
by Deb Gascoyne
1M ago
Well it’s been a while since I wrote and lots has happened, including that I did that thing of turning 50! So I actually made it….now I’m planning my 60th ??. Wouldn’t that be an achievement. It was my birthday ..read more
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Navigating Myeloma in Dublin – The Up’s and Down’s of this week
Debs' Journey with Myeloma
by Deb Gascoyne
1M ago
Wow – what a fabulous time we had in Dublin. It was absolutely everything I could have asked for….and maybe even a bit more. The hospital were great and I had my treatment 2 days early so that we could ..read more
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A good result – LINKER MM3 – Week 6
Debs' Journey with Myeloma
by Deb Gascoyne
2M ago
I’m so pleased to have my results back – after 4 weeks (one cycle) of treatment, my paraprotein has come down. Not tonnes, but it’s reduced from 11.4 to 8.2 which is a good drop all in all. I’m so ..read more
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Emotions like a yo-yo – LINKER MM3 Trial – Week 5, Day 29
Debs' Journey with Myeloma
by Deb Gascoyne
2M ago
Wow I can’t believe how much support you’ve all sent me this week and I really am truly lucky to have people who care so much. I genuinely don’t expect it when I write these posts – they are very ..read more
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Hating Cancer, hating dex, hating life
Debs' Journey with Myeloma
by Deb Gascoyne
2M ago
I’ve never felt as lonely as I do at the moment. Yet all I can do is push away the people that love me the most. I think and hope it’s just the dex but I also think there’s an ..read more
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LINKER MM3 Trial – Week 3, Day 20 – Happy New Year.
Debs' Journey with Myeloma
by Deb Gascoyne
2M ago
Time to head into 2025. I can’t say it’s one of my better NYE’s and our plans are … absolutely nothing! Being in bed by 8.30 most nights puts pay to that, alongside feeling generally like I have a hangover ..read more
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LINKER MM3 Trial – Week 2, Day 8
Debs' Journey with Myeloma
by Deb Gascoyne
3M ago
Well I spoke too soon about the lack of dex rage. And I owe Nick a public apology for being a cow of a wife, for over-reacting to things, and for allowing the dex to affect us despite all of ..read more
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LINKER MM3 Trial – Week 1, Day 4
Debs' Journey with Myeloma
by Deb Gascoyne
3M ago
So I can’t say that the last few days have been particularly pleasant. After a good ‘day 1’ with no immediate side effects, Friday saw me hit my bed and stay there until last night. Hot and cold sweats, dizziness ..read more
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