02/06/24 Boules again
Ian's Myeloma Blog
by Ian Crisp
1M ago
First time at Ongar (or anywhere) for several weeks. Bone cement, rain, a bicycle race, more rain, and just cold weather have kept me away. But it was a fine sunny Sunday morning and I played two fours and my team won both. I played some good balls and the usual quota of rubbish ones weren't as bad as sometimes. Even better, bending down to pick the coche up was easier than it's been for a long time. Definite improvement there ..read more
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22/05/24 Results
Ian's Myeloma Blog
by Ian Crisp
2M ago
Just had the three-monthly blood test results in a 'phone call with my haematologist. No paraproteins, light chains normal, everything else normal except very slightly high calcium. So still in remission, very relieved again. Full body CT ordered for next time as a routine check ..read more
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28/04/24 Cement!
Ian's Myeloma Blog
by Ian Crisp
3M ago
 An early morning trip to London last Thursday morning, and straight into anaesthesia and the procedure. I gather it took a bit over two hours. Very small "incisions", just two 1mm holes very close together. All looking good now. "Before" on the left, "After" with the injected cement on the right. That gives me a lot more confidence in the mechanical stability of the joint. A completely unexpected benefit is that I can now get up from chairs much more easily, and can bend to pick things up off the floor again. Well, I could before, just about, but with a lot more difficulty than ..read more
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15/04/24 Good news, mostly
Ian's Myeloma Blog
by Ian Crisp
3M ago
I have my appointment for CT scan and pre-assessment at UCLH (Euston) on Wed 17th, probable surgery date for the cement injection Thursday 25th. Of course there were the usual NHS complications over contradictory messages about the appointment and arrival times. Sadly you just have to accept that as par for the course these days. At least it was all digital and not reliant on what now passes for second class post. Fifth class in a third-world country, more like. My blood sugar levels (HbA1c test) have drifted up gradually from high 30s (OK) to 41 and 42 (borderline "pre-diabetes") and now 45 ..read more
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25/03/24 Back to Boules
Ian's Myeloma Blog
by Ian Crisp
4M ago
First session of 2024 yesterday as the temperature was not too bad yesterday morning and for once it wasn't raining. Played two doubles matches, lost the first one 13-0. I was very very rusty and had trouble staying in the lane at first. But it started coming back in the second game and we won 13-8 and I played some balls I was very happy with. The four new pistes are now in use and we have fancy new scoreboards as well. Zoom right in to see them ..read more
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22/03/23 What's new?
Ian's Myeloma Blog
by Ian Crisp
4M ago
Time for what is now becoming a monthly update, and the answer to the "What's New?" question is not a lot. Or anything much. Still in remission. Still waiting for a date for the cement process. Mobility still not too good, keep aiming for a decent number of steps a day but they do get harder, range gets shorter and my speed over anything but perfectly flat ground gets slower. Often need to go and walk the corridors here to get the step count up - at least I can work up to a more respectable speed there, while running the old "Straight, square, balanced, even" mantra through my mind... Learned ..read more
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03/02/24 Cement
Ian's Myeloma Blog
by Ian Crisp
6M ago
Good news. Have had phone call with the surgeon at UCLH and he's agreed to do the job. I asked him about waiting times and he said "A bit busy at the moment with post-Christmas and strikes, but we don't usually have very long waiting lists". Whatever that means. Hoping to have it done before my next "follow-up" at RNOH Stamore on 4th July, which seems as if it might be a little pointless now ..read more
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19/12/23 Over
Ian's Myeloma Blog
by Ian Crisp
7M ago
Two more unarguable negative tests, yesterday and this morning. So I'm declaring myself Covid (and mask) free. And tomorrow I can resume my statin and amitriptyline, had to have eight days off them because of interactions with the Paxlovid ..read more
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17/12/23 Not such good news
Ian's Myeloma Blog
by Ian Crisp
7M ago
 Today's test showed a very faint second line. It's not over yet ..read more
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16/12/23 Negative
Ian's Myeloma Blog
by Ian Crisp
8M ago
 Paxlovid works ..read more
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