EULAR and PReS have published a journal article detailing “the diagnosis and management of Still’s disease, comprising systemic juvenile idiopathic arthritis and adult-onset Still’s disease.” This combination will help to solidify that SJIA and AOSD are the same disease. It will also help clarify what treatment should look like, for those who have decent access […] The post Unifying SJIA and Still’s disease appeared first on Not Standing Stills Disease ..read more

The following is an excerpt of an article on Drug Discovery Trends, dated 9/9/2024: The company’s first AI-generated drug candidate, DC-9476, a selective Brd4 BD2 inhibitor, embodies this approach, showing promise in preclinical models of autoimmune diseases like rheumatoid arthritis (RA) and Still’s disease. In RA models, DC-9476 demonstrated superior efficacy compared to standard treatments, […] The post DeepCure’s AI Platform Creates Novel Brd4 Inhibitor appeared first on Not Standing Stills Disease ..read more

The following is a press release from ACR dated September 9, 2024: The ACR Encourages Patients with Rheumatic Diseases to Implement Self-Management Strategies to Improve Quality of Life American College of Rheumatology (ACR) experts identified research suggesting that patient self-management is not as prevalent as it should or could be despite the improvements patients experience when implemented. […] The post ACR Encourages Patients to Implement Self-Management Strategies #RDAM appeared first on Not Standing Stills Disease ..read more

At the beginning of this month, my partner and I attended a super-spreader event — GenCon. We masked the entire time, unless we were eating. But, those one-way protections were still not enough to save us. On the evening of Saturday the 3rd, while still there, my partner tested positive for COVID after only having […] The post I Caught COVID (and it’s still horrible) appeared first on Not Standing Stills Disease ..read more

The following is a press release from ACR dated June 24, 2024: The American College of Rheumatology (ACR) has submitted to the United States House Committee on Ways and Means Health Subcommittee a response to the recent subcommittee hearing, The Collapse of Private Practice: Examining the Challenges Facing Independent Medicine, highlighting issues facing private practices, including inadequate reimbursement for Medicare physicians, burdensome prior authorization policies, and the growing shortage of physicians in the workforce. In its letter, ACR notes that rising inflation, cuts to reimb ..read more

The following is a press release issued by ACR and dated June 12, 2024: The American College of Rheumatology (ACR), representing more than 9,100 rheumatologists and rheumatology professionals, applauds the reintroduction of the bipartisan, bicameral Improving Seniors Timely Access to Care Act by U.S. Senators Sherrod Brown (OH), Roger Marshall (KS), Kyrsten Sinema (AZ), and John Thune (SD) as well as Congressmen Ami Bera (CA-6), Larry Bucshon (IN-8), Suzan DelBene (WA-1), and Mike Kelly (PA-16). “The prior authorization process has become unmanageable for both doctors ..read more

The following is a press release from ACR dated May 28, 2024: The American College of Rheumatology recently launched Rheumatology for Primary Care, a new resource for primary care physicians (PCP) and advanced practice providers (APP) offering them expanded support and guidance to identify rheumatic diseases in their patients. As the healthcare professionals who often are the first to encounter patients experiencing symptoms consistent with autoimmune conditions like rheumatoid arthritis, gout, and lupus, the ACR hopes to supplement the decreasing rheumatology workforce with the support o ..read more

From more than 65 million patient records, researchers identified 1,346 children (median age at diagnosis, 11 years; 72.7% girls; 71.92% white; 5.5% Black) who were diagnosed with JIA-associated uveitis, most of whom had commercial insurance coverage (53.4%) or Medicaid (25.2%). After adjusting for race and insurance, researchers reported that risk for blindness was higher among boys (HR = 2.15), and when adjusting for sex and insurance, the risk for 20/200 or worse vision was 2.5-fold higher among Black or African American patients (HR = 2.54). Among patients with Medicaid insurance, the ris ..read more

The following is a press release issued by ACR on March 25, 2024: The American College of Rheumatology (ACR) today expressed strong support for several key measures included in the Fiscal Year (FY) 2024 budget. The budget allocates crucial funding to the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP) for research on arthritis risks, outcomes, and treatments among service members; secures a significant funding increase for the National Institutes of Health (NIH), the cornerstone of medical research in the United States; and extends the Conrad 30 program ..read more

The following is a press release issued by the ACR on March 11, 2024: The American College of Rheumatology (ACR) applauds Congress for passing legislation to mitigate the 3.4 percent reduction in physician payments outlined in the Medicare Physician Fee Schedule (MPFS) Final Rule for CY2024 but also calls on policymakers to seek long-term systemic policy changes that will provide more stability and predictability for providers. “While we commend Congress for this partial fix, rheumatologists remain concerned that without long-term reform to the Medicare payment system, maintaining access to qu ..read more