#BeyondHAE Podcast: A Day in the Life of Bryn
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
2M ago
We are thrilled to introduce a fresh new interview series on the #BeyondHAE podcast! Our "Day in the Life" episodes will delve into the experiences of young individuals with HAE, spanning from diagnosis to treatment management and their everyday routines. In this episode, we shine the spotlight on Bryn who was diagnosed at 16. HAEA Youth Leader Kobe takes the reins, guiding us through a Day in the Life of Bryn. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and c ..read more
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#BeyondHAE Digging Deeper Interview Series: Studying Abroad with HAE (Nathan)
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
2M ago
The #BeyondHAE Digging Deeper Interview series continues this month with our guest, Nathan who chats with HAEA Youth Leadership Council Member Noah about what it's been like for him growing up with HAE. Nathan joined us from his study abroad program in Switzerland where he is attending college. Nathan discusses what it's been like studying abroad with HAE and what he did to prepare for his time away from home. If you're thinking about traveling internationally or applying for a study abroad program, you won't want to miss this episode! This is Nathan's story. This youth produced podcast is br ..read more
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#BeyondHAE Digging Deeper Interview Series: The Parent Perspective (Nikia)
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
4M ago
This month's #BeyondHAE Digging Deeper Interview Series features HAEA Youth Leadership Council Member Sophia who interviews Kia who is both diagnosed with HAE but who is also a caregiver to her son Noah. This episode focuses on Kia's expereinces as a parent caring for her son Noah. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠www.haea.org⁠. Thank you to ..read more
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#BeyondHAE Digging Deeper Interview Series: Overcoming Barriers to Pursue A Passion for Filmmaking (Natalie)
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
6M ago
This month's BeyondHAE Digging Deeper Interview Series features HAEA Youth Leadership Council member Noah who interviews Natalie, a award winning filmmaker who has HAE. In this episode, Natalie talks about what it was like for her growing up with HAE, and how she pushed beyond her diagnosis to achieve her goal of becoming a filmmaker and starting a family. This is Natalie's story. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn mor ..read more
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#BeyondHAE Digging Deeper Interview Series: Studying Aborad with HAE (Nathan)
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
8M ago
The #BeyondHAE Digging Deeper Interview series continues this month with our guest, Nathan who chats with HAEA Youth Leadership Council Member Noah about what it's been like for him growing up with HAE. Nathan joined us from his study abroad program in Switzerland where he is attending college. Nathan discusses what it's been like studying abroad with HAE and what he did to prepare for his time away from home. If you're thinking about traveling internationally or applying for a study abroad program, you won't want to miss this episode! This is Nathan's story. This youth produced podcast is br ..read more
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#BeyondHAE Digging Deeper Interview Series: I am a young adult with HAE (Mariel)
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
10M ago
Continuing with the #BeyondHAE Digging Deeper Interview Series, this month's episode is hosted by Youth Leadership Council member, Kobe who interviews Mariel, a young woman with HAE who talks about growing up with unexplained symptoms and her journey to finally getting a diagnosis in her 20s. She talks about how she has adjusted her outlook on life to find the positive in being part of the rare disease community. This episode is now available to watch in video format on Spotify. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a pati ..read more
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#BeyondHAE Digging Deeper Interview Series: My brother has HAE (Avery)
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
10M ago
We kick off the year with a new series  of the #BeyondHAE podcast called "Digging Deeper". Each episode in the series will feature an interview from either someone diagnosed with HAE or someone whose loved one is diagnosed as we dig deeper into their experiences with HAE. This episode is hosted by HAEA Youth Leadership Council member Sophia who interviews 10 year old Avery. Avery is a caregiver to her older brother Jack who has HAE. Avery talks about what it's been like for her to support her brother on his HAE journey, and highlights how she has gotten involved to help raise HAE awarenes ..read more
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#BeyondHAE: HAEA Round Table: Young Adults (Kayla, Jack, and Morgan)
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
10M ago
As we wrap up the year, we are thrilled to welcome three young adults with HAE to share their experiences living with a rare chronic condition. This episode was recorded as part of the HAEA Round Tables and covers topics ranging from overcoming challenges at school, coping with HAE through puberty, dating and relationships, and more. Listen now to hear directly from young adults who share stories about their personal triumphs and challenges as they navigate life with HAE. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient adv ..read more
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#BeyondHAE: My HAE Diagnosis and Management Journey (Ally)
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
10M ago
Ally is our host for this month's episode of the #BeyondHAE Podcast series. Ally goes into detail as she talks about the ups and downs of her personal HAE journey and how she navigated through school while managing her condition. She talks about how getting involved in the HAEA youth community and advocating for the condition has impacted her life and helped her to feel more comfortable with her diagnosis. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiv ..read more
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#BeyondHAE: Commemorating HAE Youth Advocacy Month with a talk about advocacy and awareness
#BeyondHAE Youth Produced Podcast
by US Hereditary Angioedema Association
10M ago
This month's episode is all about advocacy and awareness as we head into October and kick off HAE Youth Advocacy Month. We hear from three HAEA Social Media interns, Ally, Gabby, and Morgan who talk about how their desire to learn about advocacy and raise awareness about HAE resulted in building lifelong bonds with a community of people who understand their journey. The girls talk about the importance of advocacy and how it's impacted each of them personally. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organiz ..read more
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