Ingrid chats to Dustin Raynor, better known as professional wrestler Dustin Bozworth. Dustin shares his story living with cystic fibrosis from childhood, to pro wrestling, to reality TV on ‘Stone Cold’ Steve Austin’s Broken Skull. It’s an inspiring conversation and he’s a very unique and ambitious person. We’re proud to have spent time learning more about his amazing life story so far. --- Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message ..read more

Ingrid shares their journey during a recent hospital admission and Orson gives his views on the whole adventure --- Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message ..read more

Ingrid sits down with Bella Powell, a young woman with CF who was the first in New Zealand to get Trikafta thanks to the late Sir Bob Elliott – who gave her this gift of life during his final months by funding the drug for her. Following on from our last episode with Patrick Gower who broke the Trikafta story here in NZ, Bella shares her side of the story – her childhood in hospital, facing declining health in her teens and then becoming the face of the CF awareness and Trikafta campaign in New Zealand, to her journey working in some of the biggest and best theatrical productions in Australia ..read more

Ingrid sits down with the well-respected and much-loved New Zealand journalist Patrick Gower to talk about the part he played in highlighting the need for funding of Trikafta for New Zealanders living with Cystic Fibrosis. This is a highly emotive interview and Paddy was very generous with his time. He shares how his experience getting to know the NZ CF community has changed his life and what it was like to finally be able to announce that Trikafta had been proposed to be funded in NZ from April 2023. We acknowledge that not all people with CF can take or will be eligible for Trikafta. Please ..read more

In this episode, Ian and I review the brilliant film Never Better and chat with its writer-director Julianne Fox. Julianne, who has CF herself, filmed Never Better in late 2020 and received great reviews when it played at film festivals. W#e chat about how the project got started, her life with CF and more. We hope you enjoy this episode of the podcast. Head back to our blog to read our full review of Never Better. Follow Never Better on Instagram for information on when and where you can watch the film. --- Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/messa ..read more

In this episode, Ian and I get to grips with life with a CF toddler. It's a general update on how CF affects our everyday life, plus a few tips on navigating a few milestones as your little CFer grows up.  As always, we end up blowing off steam with many fits of giggles. We hope you end up finding some of this info useful regardless of our gaffs or at the very least we manage to make you smile. Love the podcast? Support us through buymeacoffee.com/wtcfpod Find us via the links shared or on the platform links below or search What The CF! A Cystic Fibrosis Podcast where ever you get your po ..read more

Most of the New Zealand CF community know Lizzie McKay, a 30-year-old person with CF who works for CFNZ as a Communications Coordinator.  Her friendly and bubbly nature makes her easy to like but her story is not an easy one to hear as a mother of a little one with CF. In this episode, we discuss Lizzie's role at CFNZ and the organisation where she's found a whole new family. She also shares very candidly her journey to getting a lung transplant aged 21. If you are new to the world of CF maybe don't start with this episode as a discussion around transplants could be too confronting. Howev ..read more

Chris Macleod is a Candian with CF who was one of Canada's first patients on Kalydeco ten years ago. He’s now 52 and has advocated for CF for many years. He’s also written a book called Beating The Odds: 11 Lessons to Overcome a Health Crisis and Lead a Resilient Life. We talk about his life with CF, his career as a Lawyer and how that's helped him advocate for the Canadian CF community and how his book can help us all become more resilient. You can follow Chris on Instagram as @chrismacleodbto Get your hands on a copy of Chris's book at https://www.beatingtheodds.ca/ Love the podcast? Support ..read more

Welcome to Season 2 or What the CF! We're so happy to be back and ready to share lots of CF stories about treatment with you.If you're part of the CF community and not aware of Trikafta (or Kraftrio) then you've been living under a rock! This 'miracle' treatment isn't yet funded in New Zealand and we want that to change ASAP.  Edward Lee is a 39-year-old PWCF living in Wellington. He self funds Trikafta and is celebrating two years on this life-changing drug. I wanted to speak to Ed to find out more about his life with CF and his journey to getting Trikafta. Many of you will know him from ..read more

Ingrid chats to Eilís Moroney, the author of 'Our Baby Has 65 Roses' and mum of a little person with CF -  two-year-old AibhÍn, about diagnosis and how writing a book was her coping mechanism. Listen to the podcast for your chance to win a copy of the book, and email your answer to wtcfpod@gmail.com. You can also purchase the book here. Find out more about CFNZ here to access resources. What the CF! A Cystic Fibrosis Podcast was born out of a curiosity to learn more, support others, tell stories and share experiences while we navigate our own CF journey. Series one of the podcast will foc ..read more