What happens when the patient portal does NOT give full record access?
Participatory eHealth
by mariahagglund
1y ago
[This text is re-posted from the NORDeHEALTH project website] We have recently published a new paper analyzing data from the Swedish 2016 survey to users of the Swedish patient accessible electronic health record (PAEHR) “Journalen”: Hägglund M, Scandurra I. Usability of the ..read more
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Scoping review on patients access to mental health records
Participatory eHealth
by mariahagglund
2y ago
My PhD student Annika Bärkås shares first authorship for the first systematic scoping review study collating existing evidence about sharing EHRs or clinical notes with people treated for mental health conditions. It’s an excellent study, that I’m very proud to ..read more
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Recording from European Patient Forum 2021
Participatory eHealth
by mariahagglund
2y ago
I was very happy and proud to be invited by the BMJ to give an international overview of how patients’ are given online access to their health data (specifically the electronic health records). We had a great discussion, and the ..read more
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BMJ webbinar series
Participatory eHealth
by mariahagglund
2y ago
Tonight at 6 pm (Swedish time), I will the speaking in the fourth and last of a series of webinars organized by the BMJ on patients access to their health records. I will be giving an international overview and discuss ..read more
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Plenary Session at the European Patient Forum Congress
Participatory eHealth
by mariahagglund
2y ago
In a few weeks time, I will deliver a Keynote speech as part of a Plenary Session organized by the BMJ at the EPF Congress. The session is scheduled for October 26th 13.00-14.00 CET. Patients’ access, control and ownership of ..read more
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Swedish patients’ access to their psychiatric notes
Participatory eHealth
by mariahagglund
2y ago
I’m very thrilled that my PhD student Annika Bärkås has published the first paper for her PhD thesis! For a thesis in our field in Sweden, it is expected to have at list 4 papers in your PhD thesis, and ..read more
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Academic tourism and World Heritages
Participatory eHealth
by mariahagglund
2y ago
Do you miss travelling to conferences? I do. Of course I see the benefits of less travelling too – for environmental reasons not the least! We can meet online, it’s easier to squeeze into busy schedules, more people will have ..read more
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User Evaluation of the Swedish Patient Accessible Electronic Health Record – a long overdue publication
Participatory eHealth
by mariahagglund
2y ago
Finally! Data for this study was collected years ago, but we just never had the time to sit down and analyze it properly until last year. But we somehow managed to squeeze it into the pandemic schedule at last, and ..read more
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Work life balance (and vacation)
Participatory eHealth
by mariahagglund
2y ago
If it’s one thing I’m struggling with that has been even more difficult during the pandemic, it’s finding the balance between work and rest. As I’ve been working exclusively from home for the past year, this has been increasingly challenging ..read more
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Open notes will be the mandatory in the US
Participatory eHealth
by mariahagglund
2y ago
As of April 5th 2021, a new US policy is requiring immediate release of records to patients. The rule require US healthcare providers to give patients access to all the health information in their electronic medical records without charge. In ..read more
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