Don’t plan on it…
Just Shake It Off
by Nikki Louiselle
3M ago
I am a planner by nature. I love schedules and itineraries. Brackets and flow charts are a definite vibe. I love it when I have all the ducks in a row. Even if these days, my rows of evenly-lined ducks have been taken over by squirrels. And...I'm pretty sure they're all drunk. The post don’t plan on it… first appeared on Just Shake It Off ..read more
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Ignore the noise…
Just Shake It Off
by Nikki Louiselle
9M ago
Helping teens learn how to ignore the noise of bullies and mean girls I first wrote this piece on this night in 2019. Every year, I hope things have changed enough that I won’t feel the need to share it once again. Four years later…things have not changed enough. We need to do better. There are some times when it is really hard to “just shake it off”.  When my teens struggle with this…when it feels a little too heavy to just shake it off…we work together to discover and uncover other tools to help them navigate. Lately…we’ve been working to “ignore the noise”.  But, man alive…I ..read more
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Mixed signals…
Just Shake It Off
by Nikki Louiselle
11M ago
Finding a way to explain the mixed signals of Functional Neurological Disorder It’s been a minute since I’ve written. I haven’t known what to say without sending my own mixed signals. FND is confusing. Neuro PT is confusing. Cognitive Behavioral Therapy is confusing. Trying to explain any of this…starting with “what exactly is FND”…is confusing. But, the other night, when I was looking up some information about FND…I came across the social media accounts of another woman living with FND. And she explained it in the easiest-to-understand way I’ve heard or seen since I was diagnosed in March. Wi ..read more
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Community connections…
Just Shake It Off
by Nikki Louiselle
1y ago
To my Parkinson’s Disease partners and fellow PD advocates The post community connections… first appeared on Just Shake It Off ..read more
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Lifeline…
Just Shake It Off
by Nikki Louiselle
1y ago
When your own words become the words you once sought When I was diagnosed with Parkinson’s Disease just over five years ago, my world was rocked. At 45 years old….this disease was not even on my radar. I left the neurologist’s office that day with a whole lot of questions, very few answers, and not one single piece of educational information or literature. Nothing. information underload I am an information-seeker in the most normal of situations. Place me in unfamiliar territory and information is as crucial to my survival as breathing. In those early days following my diagnosis, the Parkinso ..read more
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Should i stay or should i go…
Just Shake It Off
by Nikki Louiselle
1y ago
A brief look at accessibility awareness Should I stay or should I go? You guys…I cannot tell you how many times, and how much time, I have spent contemplating this exact question over the last two years. But it is this post on Facebook, that I saw this morning, that has me talking about this now. how do i get in At the moment, I am nearly 100% reliant on a walker outside of my home. Over the last two years, there have been events that I have not been able to participate in and places that I have not been able to go to because I did not know if they were accessible. If you’ve been followin ..read more
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Getting closer…
Just Shake It Off
by Nikki Louiselle
1y ago
Getting closer to answers at the Cleveland Clinic through perseverance, communication, and patience I mentioned in my last Cleveland Clinic update that one of my November MRIs had revealed a tumor in my spine. However, until I had a consult with one of my neurologists, I was not clear on the significance of this tumor in relation to my symptoms. I had a virtual consultation with Dr. Shuaib on December 22nd. The tumor is located within my T10 vertebrae and is labeled an Intraosseous Hemangioma. Intraosseous Hemangiomas are benign vascular tumors that account for less than 1% of all bone tumors ..read more
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Cleveland still rocks…
Just Shake It Off
by Nikki Louiselle
1y ago
My return visit to Cleveland Clinic leads to a few more answers Yep…it’s true. Cleveland still rocks. When I got the call from the Cleveland Clinic appointment coordinator saying they were able to schedule all five of my in-person follow-up visits in one day…I was thrilled. And, once again, amazed. These people are scheduling magicians. But, when they said that day was the Friday after Thanksgiving…I was less than thrilled. However, everything fell into place and we had a lovely Thanksgiving with family on our way down to Cleveland. appointment day 7:45 am: At my virtual visit on Tuesday, 11/1 ..read more
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Totally eclipsed…
Just Shake It Off
by Nikki Louiselle
1y ago
Views of the November Total Lunar Eclipse from Charlevoix, Michigan Being married to a guy who loves the dark sky makes skies like Tuesday’s early morning expanse even more enchanting. Disclaimer: To be honest…I don’t even begin to understand the scientific logistics behind much of the magical final product. However…I know that weather forecasts are watched with hopeful diligence. Cloud cover is carefully calculated. And, geometric angles and degrees are meticulously measured. And…I DO understand the loads of fun, and little bits of frustration, that I get to have with that magical final produ ..read more
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Cleveland does indeed rock…
Just Shake It Off
by Nikki Louiselle
1y ago
As I share an update of my first trip to the Cleveland Clinic, I can also share that Cleveland does indeed rock Thank you to everyone that has reached out to me to ask about my visit to Cleveland Clinic. I’m a lucky girl to have so much support and love. And I found out for myself that Cleveland does indeed rock! We’ve been home for two weeks and I’ve been negligent in posting an update.  No excuses, but several reasons for the delay. One…I’m simply overwhelmed and still sorting and processing everything I’ve begun learning. Two…I was selected for jury duty right after we returned and the ..read more
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