COVID continues to be a concern if you are immunocompromised or have a weakened immune system because of a medical condition or a treatment for a condition. This is the case if you have myasthenia gravis, and are taking immuno-suppressant medication. The Centers for Disease Control continues to recommenf that those who are immunocompromised or have a weakened immune system because of a medical condition or a treatment for a condition keep their vaccinations up to date. In late 2022, Linda Loland and Victor Yipp both experienced worsening MG breathing and swallowing symptoms when they contracte ..read more

Speaker: Pritikanta Paul, MD, Department of Neurology, UI Health/ University of Illinois at Chicago Register Now! Emerging Therapies for MG Tuesday, October 25, 2022; 6:30pm Central Speaker: Pritikanta Paul, MD, University of Illinois at Chicago After years of research and clinical trials, a number of new therapies for myasthenia gravis have arrived or will do so soon. Instead of suppressing a person’s entire immune system (as with drugs like prednisone, azathioprine, and others), these therapies target and interrupt the immune system missteps caused by MG. For many, this means quicker res ..read more

Useful information…at your fingertips. Topic Title Contributor Published Financial assistance for MG patients – Sept 30 2022 Staff 2022 Sept MG Activities of Daily Living (MG-ADL) Scale Kourosh Rezania, MD 2022 Sept Patient Experience with Pyridostigmine Staff 2022 Sept Update – Myasthenia Gravis and Coronavirus Conquer MG Medical Advisory Board 2020 Dec Myasthenia Gravis and Telemedicine Rabia Malik, MD 2022 Oct MG Clinical Trials: Your Questions Answered Rabia Malik, MD 2020 Jan IVIg, Plasma Exchange, and Emerging MG Treatments Ryan Jacobson, MD 2019 July Men’s &a ..read more

Are medical costs overwhelming you? These programs may provide relief. Click the links to learn about who’s eligible and what each program covers. Status (open/ waitlisting/ closed) is current as of September 30, 2022: The Assistance Fund is accepting new enrollments for individuals who have myasthenia gravis. This program helps with out-of-pocket medical costs. The National Organization for Rare Diseases (NORD)‘s financial assistance program is temporarily waitlisting MG patients. (In other words, get on the waitlist.) NORD helps with the cost of insurance premiums, office visits, medicati ..read more

With a disease like myasthenia that fluctuates from day to day and even more from month to month, it can be challenging to get a clear picture of a person’s illness. Your doctor can assess your myasthenia with several different tracking tools. One of these measures is called the MG Activities of Daily Living scale, or the MG-ADL. The MG-ADL scale assesses the impact of MG on your daily functions. Physicians use this tool to score a patient’s MG symptoms based on the patient’s recall of symptoms during the prior week. A person’s score can range from zero (normal) to 24 (most severe). You can us ..read more