Emily’s Entourage’s annual gala invites the public to join leaders in science and the cystic fibrosis community to make a meaningful impact by celebrating advances in research and supporting life-saving therapies for the final 10% still awaiting effective treatments. Philadelphia, Pennsylvania – October 2, 2024 – Emily’s Entourage (EE), an innovative 501(c)3 accelerating research for... Read More ..read more

The award recognizes Dr. McCray for his pioneering work in gene therapies and dedication to the final 10% of the cystic fibrosis community who do not benefit from current CFTR modulators. Lower Merion, PA — Sept. 30, 2024 — Emily’s Entourage (EE), a 501(c)(3) foundation accelerating research for new treatments and a cure for the... Read More ..read more

New, upgraded platform connects people with cystic fibrosis worldwide with new clinical trial opportunities, accelerating development of therapies for those who remain unserved by current CFTR modulators Lower Merion, PA – September 12, 2024 — Emily’s Entourage (EE), an innovative 501(c)3 accelerating research for new treatments and a cure for the final 10% of people... Read More ..read more

The funded project, led by research teams at the University of California, San Diego and the University of Pittsburgh, aims to advance phage therapy into clinical practice, standardize clinical trials to combat antibiotic-resistant pathogens prevalent in cystic fibrosis. Lower Merion, PA – June 13, 2024 — Emily’s Entourage (EE), an innovative 501(c)3 accelerating research for... Read More ..read more

Emily Kramer-Golinkoff, an individual with cystic fibrosis and co-founder of Emily’s Entourage, is the winner of this year’s Award for Leadership in Personalized Medicine presented by the Personalized Medicine Coalition. Lower Merion, PA – June 12 2024 — Emily Kramer-Golinkoff, co-founder of Emily’s Entourage (EE), an innovative 501(c)3 that accelerates research for new treatments and... Read More ..read more

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Noah Singer, parent of a child with CF.   We all have things that make us unique. Some of us are smart. Some of us are strong. Some of us receive... Read More ..read more

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Mel Kotlyar, an adult with CF.  Life often has a way of throwing us into a whirlwind of challenges and obstacles, but it’s how we navigate through them that truly... Read More ..read more

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Rebecca Mueller, an adult with CF. They say that life happens when you’re busy making other plans. In my experience of adulthood with CF, it felt more like disease progression... Read More ..read more

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Tré LaRosa, an adult with CF.  My approach to patient advocacy has changed over the years. As a kid, “patient advocacy” was in the clinic and in school, where I... Read More ..read more

During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights the story of Sophie Pierce, an adult with CF.   If I’m honest, I can’t imagine a life where I can fully “cross out CF” — cystic fibrosis (CF) is part of me. After... Read More ..read more