How World-Famous Ballerina Michaela DePrince Broke Barriers By Refusing to Blend In
Living Dappled
by Erika Page
2w ago
Our hearts go out to the friends and family of Michaela Mabinty DePrince. She was an inspiration to many, and especially the vitiligo community.  We will always be in awe of her strength and confidence, and grateful for the awareness and representation she made possible for those living with vitiligo. As news of Michaela Mabinty… The post How World-Famous Ballerina Michaela DePrince Broke Barriers By Refusing to Blend In appeared first on Living Dappled ..read more
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Top 100 Vitiligo Resources for Anyone with Vitiligo
Living Dappled
by Erika Page
3w ago
Whether you’re new to living with vitiligo or have been diagnosed for years, you are likely here looking for the same thing—answers. Those answers might lie in education (like how to get a diagnosis), inspiration (like a confidence-boosting tee) or support (like finding a local group) depending on the challenge you’re facing or goal you’re… The post Top 100 Vitiligo Resources for Anyone with Vitiligo appeared first on Living Dappled ..read more
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Top 10 Moments of the 2024 USA World Vitiligo Day Celebration
Living Dappled
by Erika Page
2M ago
World Vitiligo Day is celebrated each year on June 25, a day to recognize the 1% of the world’s population living with vitiligo. The day is marked by celebrations and observations worldwide to raise awareness about the condition and honor the experiences of individuals who live with vitiligo. This year, the U.S. vitiligo community converged… The post Top 10 Moments of the 2024 USA World Vitiligo Day Celebration appeared first on Living Dappled ..read more
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This Dentist with Vitiligo Learned to Accept Her Skin—and Found New Passions
Living Dappled
by Erika Page
2M ago
Jennifer Reyes once spent a lot of time trying to disguise and “fix” her vitiligo. From large statement necklaces she hoped would draw attention away from depigmented spots on her chest to time-consuming trips to the dermatologist for UV treatments, she was willing to go to great lengths to avoid uncomfortable stares and unwanted comments… The post This Dentist with Vitiligo Learned to Accept Her Skin—and Found New Passions appeared first on Living Dappled ..read more
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6 Ways to Be an Advocate During Vitiligo Awareness Month
Living Dappled
by Erika Page
4M ago
With the naming of June 25th as World Vitiligo Day, June has become a month of advocacy and awareness for the vitiligo community. Only 1% of the world’s population has vitiligo—and that means that 99% of the world needs to know about this condition without a cure. Why does advocacy matter? Today we have more research, more treatments and more inclusion of vitiligo than ever before. But the story doesn’t stop there.​​​​​​​​ The reality is that those living with vitiligo are still being bullied and socially ostracized because of vitiligo; there are patients still waiting for better treatments, c ..read more
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Introducing Colorful Connections, a Multi-City Vitiligo Empowerment Event
Living Dappled
by Erika Page
5M ago
Last summer, two young women walked into CultureCon, a Los Angeles community event for Black and Brown professionals and creatives. By the time the conference ended the next day, they’d been inspired to launch their own version of the event—one focused on vitiligo. “It was so beautiful actually seeing black people in all fashions and industries come together,” said Briya Fitzgerald, Founder of Colorful Connections. “It had pushed me on the idea of having an event just as big for the vitiligo community. Next thing you know, me and [my co-founder] Vastia are mapping out what that would look like ..read more
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Introducing Camp Victory, a New Two-Day Summer Program for Children with Vitiligo (And Parents)
Living Dappled
by Erika Page
5M ago
Everyone living with vitiligo deserves to feel supported—and that includes the littlest of those living with the condition and their families. This year, the Global Vitiligo Foundation, a non-profit international organization dedicated to vitiligo advocacy, is launching Camp Victory, a new two-day summer program for children with vitiligo (and of course a parent or guardian, too). Taking place June 19-20, 2024 in Indianapolis, Indiana, the event precedes the World Vitiligo Day USA 2024 Conference and is the first children’s camp associated with the annual event. Here’s what you need to know ab ..read more
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‘More Than Our Skin’ Documentary Shares Inspirational Stories of Women Living with Vitiligo
Living Dappled
by Erika Page
5M ago
While vitiligo’s visibility on the internet and in fashion is constantly expanding from video games to models with vitiligo and more, representation of the condition has been notably absent from the silver screen especially when featuring the real stories of real people—until now.  Directed by Tonia Magras (a three-time Emmy award winner and seven-time nominee) and Calvin Lindsay, More Than Our Skin, released earlier this year, features the stories of five real women living with vitiligo and aims to raise awareness about the condition while also spreading the message that “skin does not d ..read more
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New UK Vitiligo Survey Highlights Social and Psychological Impacts of the Condition—and Calls for Change
Living Dappled
by Erika Page
5M ago
Opzelura. JAK inhibitors. Skin grafting. With all the progress for vitiligo within science in recent years, there’s less conversation about the flip side—the people living with the condition day to day. How much data do we really have about trends and commonalities among people living with vitiligo? Like, what’s it like trying to get a diagnosis or treatment? How has vitiligo affected your quality of life? What support do people living with vitiligo need? The answer has been, sadly: not much. And that’s exactly why a new study out of the UK is garnering attention. The Vitiligo Society, a UK ch ..read more
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Inside a Los Angeles Vitiligo Support Group Hosted by Two Expert Dermatologists
Living Dappled
by Erika Page
7M ago
Get cozy, grab a snack and get ready to talk—that was the invitation shared as the Los Angeles Vitiligo Support Group’s meeting opened on a January evening. The group’s second meeting since founding, the event had nearly thirty people in attendance both virtually and in-person at the Vitiligo Pigmentation Institute of Southern California. Leading the meeting were two renowned dermatologists and experts in vitiligo—Dr. Pearl Grimes and Dr. Nada Elbuluk. And their enthusiasm for supporting the globally based patients on the call was heartwarming.  “I’m here until we’re done!” exclaimed Dr ..read more
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