Endometriosis.org
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Endometriosis.org is the global platform which links all stake holders in endometriosis - one of the most common causes of pelvic pain and infertility in women. We deliver up to date, evidence based, information and news about endometriosis, to provide the knowledge that empower women to make informed decisions about their treatment options.
Endometriosis.org
3M ago
Robert Taylor died on 22 January 2024. He was a brilliant and passionate scholar, visionary in science and reproductive medicine, and someone who was committed to finding pain relieving solutions for those with endometriosis.
We pay tribute to a scientist, who tirelessly worked to discover how to ease the pain of those with endometriosis, through his investigations into the molecular and cell biology of the human uterus and placenta, with an emphasis on endocrine and paracrine regulation of chemokines, cytokines, and neuroangiogenic growth factors in endometriosis.
The above description of Dr ..read more
Endometriosis.org
5M ago
Denmark has led the way in terms of implementation of (state-funded) centres of expertise for the care of those with endometriosis since 2001. Now its national support organisation is on the state budget.
Endometriose Fælleskabet (the Danish national support organisation) together with national clinicians, researchers, scientists, and advocates in endometriosis succeeded in securing an open hearing on endometriosis with the parliamentary select committee for health on 15 November 2023.
The powerful hearing can viewed here (by those who understand Danish).
Less than two weeks after the hear ..read more
Endometriosis.org
5M ago
Australia was the first country to develop a roadmap and blueprint to tackle endometriosis in a nationwide, coordinated manner. This blueprint is outlined in the National Action Plan for Endometriosis (NAPE), created from a partnership between government, endometriosis experts and advocacy groups.
Serious investment has been committed by the Australian government to move the field of endometriosis forward – a significant milestone, which is now being replicated by other countries.
Details of investment in endometriosis in Australia, the allocation of funds for which initiatives – and progress ..read more
Endometriosis.org
5M ago
The launch of a French national strategy for endometriosis is the second such national initiative, following Australia’s development of a National Action Plan, and it is an important milestone for the cause of endometriosis.
The French President, Emmanuel Macron, made the announcement of the national strategy in January 2022 – a rare declaration from a government leader. He tweeted:
It [endometriosis] is not a women’s problem, it is society’s problem. The national strategy we’re launching brings hope for a better quality of life for millions of women and girls.
What is the French nat ..read more
Endometriosis.org
8M ago
Researchers at the University of Oxford, in collaboration with 25 research institutions in 11 countries, have published the largest study to date of the genetic basis of endometriosis [1].
This study included DNA from 60,600 women* with endometriosis and 701,900 controls. It revealed compelling evidence of a shared genetic basis for endometriosis and other causes of pain (seemingly unrelated to endometriosis), including migraine, back pain, and multi-site pain.
Why was this study conducted?
We know that endometriosis can run in families, and therefore that genetic factors (heritability) play a ..read more
Endometriosis.org
8M ago
If you are undergoing a diagnostic laparoscopy for the investigation of chronic pelvic pain and have not previously had endometriosis diagnosed during surgery, you may be able to help with the ESPriT2 study. Why is this study needed?
At the moment, there is no strong evidence that surgery to remove superficial peritoneal endometriosis (SPE; the commonest type of endometriosis) improves painful symptoms and quality of life.
This study will help to determine whether removing SPE improves painful symptoms and quality of life, which surgical approach may be best (ablation or excision), or whether ..read more
Endometriosis.org
8M ago
The Endometriosis Awareness Promotion Project (EAPP) is a multinational and multi-center epidemiological study which, over three years (April 2022-March 2025), will investigate the fundamental concepts on menstrual pain (cyclic/acyclic) and endometriosis, its personal/social impact and effect of education on improving it among young women based on self-reported questionnaires.
This is an extended programme of the previous EAPP study that used medical and nursing students as the study population and is already completed and the results published in RBMO [1].
Professor Khaleque Khan (project coo ..read more
Endometriosis.org
8M ago
If you are a woman living with endometriosis, or you suspect you might have it and are scheduled to have surgical treatment, you may be eligible to participate in the ROSE study.
ROSE study researchers are exploring what causes endometriosis and if a better treatment can be developed. If you’re a woman living with endometriosis, or you suspect you might have it and are scheduled to have surgical treatment, you may be eligible to participate in the ROSE study.
Inclusion criteria
You must be at least 18 years old
You may not be pregnant or breastfeeding
Your immediate family (siblings, p ..read more
Endometriosis.org
8M ago
Psychological researchers at The University of Melbourne are investigating shared factors that contribute to the development and maintenance of depression, anxiety, eating symptomatology and sexual dysfunction in endometriosis. These are common but overlooked symptoms in this population. Why we are doing this research
Research has consistently revealed that high levels of depression, anxiety, and eating symptoms are prevalent among individuals diagnosed with endometriosis. Moreover, these psychological symptoms frequently co-occur, and this psychological comorbidity has been associated w ..read more
Endometriosis.org
8M ago
Endometriosis Awareness takes place across the globe during the month of March with a mission to raise awareness of a disease which affects an estimated 200 million worldwide.
The pain of endometriosis can be devastating; it is the biggest cause of infertility in women, and carries a huge personal and societal burden!
Together we are poised to take action on behalf of those affected by endometriosis.
Please join in and be part of the global solution!How are you and your organisation going to make a difference? your activities and together we can truly m ..read more