Take a Step for TS
My Turner Syndrome Journey
by Lori Kobular
1M ago
Hello Friends! Why not join me and a couple of other Board Members of the Turner Syndrome Foundation and Take a Step with the Turner Syndrome Foundation! You are Invited! Gear up for an impromptu casual walk, a delightful event that strengthens our community and boosts awareness. It's time to rally your friends and neighbors to join us for this walk. Where's the fun happening? At the lovely Holmdel Park, Long Street, Holmdel, NJ 07733 When's the big day?  April 14, 2024, from Noon to 2PM Extra goodies for you ..read more
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Turner Syndrome Awareness Card Auction
My Turner Syndrome Journey
by Lori Kobular
4M ago
  Hello Fellow Crafters, Today I am sharing about the Turner Syndrome Awareness Card Auction!  For the last several years, I’ve been running the Turner Syndrome (TS) Awareness Card Auction as a fundraiser for TSF. As part of the Card Making Community, I know Card Designers from all over the world who donate their handmade cards for the Auction. These cards are made with love to help support TSF and our mission to improve the lives of TS females!   Cards are Special Today we live in a "throw-away" society where it’s more convenient to send a text or email rather than ..read more
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Turner Syndrome and Giving Tuesday
My Turner Syndrome Journey
by Lori Kobular
6M ago
   Hello Friends!! Happy Giving Tuesday!!  Giving Tuesday is the Tuesday after Thanksgiving here in the United States.  It is widely acknowledges as "global generosity movement unleashing the power of people and oragnizations to transform their communities and the world".   So on this Giving Tuesday I am asking you to give with your heart to the Turner Syndrome Foundation so that they can continue to do the excellent work of providing education of Turner Syndrome and its many medical affects to families and doctors alike. Giving Tuesday is a day to support g ..read more
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TS Awarness "Kickoff the Holidays" Card Auction
My Turner Syndrome Journey
by Lori Kobular
10M ago
  Hello Friends!! Today I am sharing a Halloween card I made for the Turner Syndrome Awareness "Kickoff the Holidays" Card Auction that I am hosting for the benefit of the Turner Syndrome Foundation, here in New Jersey!  It is a "Mission of Love" for me since my oldest daughter, Julie, was born with TS.  Over her 35 years we have encountered many doctors and educators who were not knowledgeable about TS and I feel that Julie missed out on important care because of this ~ so I am trying to bring as much awareness to TS as I can in hopes that the medical and education fields will ..read more
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   Hello Friends!! Happy Turner Syndrom...
My Turner Syndrome Journey
by Lori Kobular
1y ago
   Hello Friends!! Happy Turner Syndrome Awareness Month!!  Turner Syndrome is very near and dear to me and I do my best to spread awareness of TS for my TS Butterfly Julie and all the other TS Butterflies!  They deserve to get the best medical care and the best education and without the knowledge of TS these fields can't help them as much as they deserve! So I will continue on in my mission to bring awareness of TS to the world! And that brings me to another thing that is near and dear to me and that is the Turner Syndrome Awareness Card Auction that I host for the benef ..read more
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Turner Syndrome Awareness Card Auction for February 2023
My Turner Syndrome Journey
by Lori Kobular
1y ago
  Hello Friends, Today I am sharing the Card Auction logo with you to remind you to look out for the awesome Turner Syndrome Awareness Card Auction that will be taking place on my instagram page:  https://www.instagram.com/mulchlady6/ The card auction will start on February 1st at 9:00 am EST and will end on February 28th at midnight EST. All cards are handmade by Card Designers from all over the world.  They have made their cards with love and donated them to help me to raise funds for the Turner Syndrome Foundation in NJ.  It is a very small non-profit organizati ..read more
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The X Factor ~ Turner Syndrome Awareness Card Auction for February 2023
My Turner Syndrome Journey
by Lori Kobular
1y ago
  Hello Turner Syndrome Families and Friends!! I hope this email finds you happy and healthy!  I am writing to you today about my mission to continue to bring Awareness of Turner Syndrome to the world and to help the Turner Syndrome Foundation to continue to do more programs to educate the public, the medical field and educators to the ways the partial or complete missing X chromosome impacts the girls and women with TS!    The Turner Syndrome Foundation is a non-profit and the Card Auction is a huge source of funds  I will be hosting the Turner Syndrome Awarene ..read more
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February is Turner Syndrome Awareness Month
My Turner Syndrome Journey
by Lori Kobular
2y ago
 Hello Friends!! Turner Syndrome Awareness Month is coming up in February and I am hosting a Turner Syndrome Awareness Card Auction on my instagram page:  @mulchlady6 here is a link to that page:  https://www.instagram.com/p/CYZfjzWpvzK/ There are lots and lots of cards in the auction and they are made by Card Designers from all over the world!  You have to check them out!! Here is the flyer for the event: All money will go directly to the Turner Syndrome Foundation to help them to keep doing the wonderful work that they do of providing support and educational pr ..read more
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Help Me Reach My Goal!
My Turner Syndrome Journey
by Lori Kobular
3y ago
 Help me reach my goal!! I set out to raise $10,000 in support of Turner Syndrome awareness and I asked a few friends to join me by making a card that they love to be donated to the auction.  Actually, it was much more that just a few friends, it was a network of designers!  Card Designers from around the world rallied behind me to support my ambitious efforts, but I still need your help to reach my lofty fundraising goal. The Card Heroes Auction was held over the 4th of July weekend and because it was such a success, I opened it up again to run through July 31st.  New it ..read more
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Turner Syndrome Awareness Card Auction
My Turner Syndrome Journey
by Lori Kobular
3y ago
 Hello Blogging Friends!! I am here today to tell you about a fundrasier I am hosting for the Turner Syndrome Foundation.  With Covid affecting so many people with their incomes it has been a really tough time for the Turner Syndrome Foundation!  I called upon some of my wonderful, generous and caring crafty friends to help me with the Turner Syndrome Awareness Card Auction!  Of course they all said YES immediately!  The card making world is made up the best people on Earth!! There will be cards from many different Card Designers and I hope you will find it in your ..read more
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