Lewis Capaldi & Tourettes – Good Morning Britain TV Interview!
TicTastic | Life with Tourette's Blog
by admin
9M ago
Lewis Capaldi’s powerful performance at Glastonbury left 17-year-old musician Wilamena emotional because of the impact it will have on raising awareness of Tourette’s. GMB TV Yesterday, Monday 26th June 2023, I was invited to the ITV Good Morning Britain TV studio in London to discuss live on air what it’s like to be a musician with Tourette’s Syndrome and to speak to the challenges that Lewis Capaldi is experiencing in his life with late-onset Tourette’s Syndrome. Lewis Capaldi’s very moving set at Glastonbury Festival, where his tics escalated and started to impact his ability to sing, has ..read more
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Lighting up Green for Tourettes & ITV Westcountry TV interview: My Tourettes Awareness Month 2023
TicTastic | Life with Tourette's Blog
by admin
10M ago
This month has been busy for the Tourette’s Syndrome community as it was Tourette’s Awareness Month from the 15th of May to the 15th of June. Seeing everybody has made an effort to raise as much awareness as possible is fantastic. Tourette’s Action ran a fundraising project called ‘Move for Tourettes’, which many people from across the country participated in.  On June 7th, Tourette’s Syndrome Awareness Day, there was a ‘Turn it, Green, for Tourettes’ night. This year many landmarks were lit up green to help spread awareness. I wrote to the iconic St Michael’s Mount in Cornwall and was ex ..read more
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NJCTS Tim Howard Leadership Academy
TicTastic | Life with Tourette's Blog
by admin
1y ago
In the summer of 2021 I was lucky enough to discover an online conference held by NJCTS – New Jersey Centre for Tourette’s Syndrome, aimed at building confidence in young people suffering with Tourettes syndrome and enabling them to advocate for themselves and others, out in the community.  Because it was an online course, this meant that I could join in even though I was in the UK and there was a 5-hour time difference. Initially, I imagined myself joining in for a little while and then sneaking off to bed when I had listened and heard enough… this however didn’t happen and I found myse ..read more
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Channel 4 – ‘Britain’s Tourette’s Mystery…’
TicTastic | Life with Tourette's Blog
by admin
1y ago
Hello everyone, I hope that everyone is ok and having a good summer. Sadly today I am going to address something that has caused a huge negative impact on the Tourette’s community recently. On July 19 2022 Channel 4 broadcasted a documentary called “Britain’s Tourette’s Mystery…” presented by Scarlett Moffatt that has caused outrage within the Tourette’s community due to the disgraceful, inaccurate and untruthful ‘facts’ that were shared in the program. It is appalling how much damage can be caused when an already misunderstood neurological condition is once again falsely represented in the m ..read more
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Tourette’s Awareness Month 2022
TicTastic | Life with Tourette's Blog
by admin
1y ago
This month has been Tourette’s Syndrome awareness month and I worked hard to spread the word and educate as many people as I could, in as many ways as I could!  What is Tourette’s Syndrome? Tourette’s syndrome is a neurological condition that causes a person to make involuntary sounds and movements called tics. It usually starts during childhood but can also have a late onset in teenagers and adults. Many tics are painful and can result in sufferers being wheelchair bound from tics in their legs, broken teeth from teeth grinding, damaged necks from head throwing and various cuts and brui ..read more
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I will be LIVE on BBC Spotlight News at 6.30pm today!
TicTastic | Life with Tourette's Blog
by admin
2y ago
Hello everyone, I am really excited to let you all know that I will be live on BBC Spotlight News TV this evening at 6.30 pm 15th February 2022 I hope that you are all well and happy new year, as this is my first blog post of 2022 due to a few hectic weeks at school with my GCSE mock exams. However, I can gladly say that they are now over and things are back to normal once again. I am planning some upcoming blogs on Tourette’s Syndrome and the impact on GCSE exams and how I am preparing for these so keep a look out for those over the coming weeks. Some of you may be aware that last year ..read more
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TicFest 2021!
TicTastic | Life with Tourette's Blog
by Wilamena Dyer
2y ago
Hello everyone,  I hope that you are all having a good summer so far and enjoying the sunny weather when you can.  As some of you may already know, I have previously been to something called Ticfest which is run by the charity Tourette’s Action. It is where families that have children with Tourette’s Syndrome have the opportunity to spend a weekend together doing fun activities and sharing knowledge about their experience dealing with Tourette’s Syndrome. It allows the children to meet other kids with TS (Tourette’s syndrome) who are going through and dealing with the same issues as ..read more
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Find out why Cornwall Mind needs your support and bid in their art auction this weekend
TicTastic | Life with Tourette's Blog
by Wilamena Dyer
3y ago
I am so lucky to have support from the NHS and school for my Tourette’s Syndrome, OCD and anxiety and it really helps me, but what happens as I get older? Students and adults can really struggle to access enough support. Typically a student in higher education might only be offered six sessions of support in an academic year – when do you choose to take those sessions? To fill the gap there are mental health charities and services, and in this new report for BBC Spotlight I take a look at Cornwall Mind and find out why their fund raising art auction is so vital for them and their service user ..read more
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The BBC have selected me, and the story I submitted for the BBC Young Reporter competition to be one of the winners!
TicTastic | Life with Tourette's Blog
by Wilamena Dyer
3y ago
The BBC have selected me, and the story I submitted for the BBC Young Reporter competition to be one of the winners! The BBC said “More than 2,500 young people aged 11-18 submitted original and interesting story ideas to the competition, which is in its third year. It gives young people the chance to make their own story with BBC programme teams, producers and reporters.” My report is titled “Tourette’s, Music & Me” and investigates how musicians with Tourette’s find their tics disappear when playing and performing. It also challenges the stereotype of Tourette’s Syndrome and raises aware ..read more
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Ticmas day 12 Who knows my Tourettes better?
TicTastic | Life with Tourette's Blog
by admin
3y ago
Hello everyone, Today was the last day of Ticmas because it is Christmas Eve! I hope that you have enjoyed being able to watch a new video everyday. I am proud of myself for managing to do it! For the last Ticmas video my family and I sat down in front of the Christmas tree with Christmas jumpers and mulled wine (obviously mine was non-alcoholic due to my age and medication) to find out which member of the family knows my Tourettes and tics the best. Watch the video to find out who wins! Here is the link if you haven’t checked out yesterday’s video on music and Tourette’s Syndrome yet. Merry ..read more
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