In this episode of the Warriors of Dystonia podcast I talk with Shelby, who kindly chatted to me about her experience of living with Dopamine responsive dystonia (dopa responsive), which she was diagnosed with at the age of seven ..read more

In this episode, Sara Jane talks candidly about her experiences of life with Cervical dystonia, sharing the implications of the condition on her career as well as some of the lesser spoken ways that this type of dystonia can affect most people.  For me, talking to someone who has the same condition was very cathartic as it was the first time I had ever spoke to someone who was fighting an almost identical battle physically and mentally ..read more

In this episode of the Warriors of Dystonia Podcast Kate took the time to share her experiences of living with benign essential blepharospasm, which began four years ago. Benign essential blepharospasm is a rare form of dystonia that affects the muscles around the eyelids and results in involuntary eye spasms and can cause the eyelids to twitch, flutter or blink uncontrollably.  In some cases, such as Kate's, sufferers may be unable to open their eyes at all due to eyelid spasm ..read more

In this episode of the Warriors of Dystonia Podcast I had the pleasure of chatting to Tim, a father of a boy named Ellis, who has developed generalised dystonia.  Tim was kind enough to share their journey and experiences ..read more

This episode of the Warriors of Dystonia is Jakki's story.  Jakki is living with an extremely rare condition which combines three severe forms of dystonia, called "tetrahydrobiopterin deficiency generalised dopa responsive dystonia" There are very few documented cases of this form of dystonia around the world and Jakki is the only know person to have this in the UK.  She was diagnosed in 2009, but has had the condition since birth in 1968.  This is Jakki's story in her own words ..read more

The following podcast is with my friend Kerry from Huntsville, Alabama, who takes us on a journey through her experience with dystonia from its beginnings and issues with her hip to where she is today in 2021.  Kerry has been an avid supporter of this project and is now a close friend. This is her story. You can get in touch with Kerry over on Instagram at - search for DobbieKerry ..read more

The following podcast is with the fantastic Lindsay from North Carolina.  A passionate and caring advocate, determined to spread awareness of dystonia, being there for anyone that needs her, and being a true dystonia warrior. This is Lindsay’s journey ..read more

The following podcast is with my friend Andy, from Iron Mountain Michigan. This is his journey with FND and dystonia. From its terrifying and sudden appearance, to Andy’s treatments, coping mechanisms and his mission to spread love and awareness around the world ..read more

In this podcast, Eugene, a dystonia warrior living in Alberta, Canada, shares his journey with dystonia and talks about an amputation that was supposed to help with the condition ..read more

This is the first Warriors of Dystonia Podcast.  Karl, the founder of the Warriors of Dystonia, shares his story of Cervical Dystonia ..read more