The Power of Community: The White Ribbon Project
The Research Evangelist
by
3y ago
The Greek meaning of evangelist is "bringing the good news." It's why I call my podcast the Research Evangelist Podcast. I love to share stories about people in life sciences who are doing amazing work to advance cancer research. And it's why The White Ribbon Project has captured my attention. The White Ribbon Project is a grassroots movement of lung cancer patients, advocates, clinicians, researchers friends and families with a mission to change the public perception of lung cancer by spreading awareness that anyone with lungs can get lung cancer. No one deserves lung cancer whether you smo ..read more
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Online Cancer Communities and Serendipity
The Research Evangelist
by
3y ago
I've often told friends that I believe in serendipity. One definition of serendipity is "the occurrence and development of events by chance in a happy or beneficial way." Or even better maybe, "an aptitude for making desirable discoveries by accident." It's like saying "it's a small world." That happens to me a lot, but the world is not small unless you make the effort to actively connect with people and engage in real human conversations. And if you use the online tools available in the way they were meant to work, like Twitter, you can make real human connections by sharing what you care abo ..read more
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The Upside-Down Cake
The Research Evangelist
by
3y ago
  The COVID-19 pandemic has forced me to think a lot about my work and in particular one of the events that I co-founded, FRAXA Biotech Games. Pre-pandemic and in years past, the event was a fun gathering of scientists in the biotech community in Cambridge to network, make some new friends and compete in lawn games. Then COVID made it impossible to get a large number of people together (we were expecting 500+ people). So we changed the event to a virtual gathering. And it changed the way that I thought about this event...it became even more about shining a light on the people in the life ..read more
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If It's Not Pink, Will Anyone Notice?
The Research Evangelist
by
3y ago
Every year in New England when the calendar turns to September we feel the change in the weather start to feel like fall. I start to think about the rest of year and what I can do to make a difference. November is Lung Cancer Awareness Month (LCAM) and it's just around the corner. And it comes on the heals of the annual pink washing that will take place in October for Breast Cancer Awareness. I always thought I did my part as a lung cancer survivor and advocate to "raise awareness" during November. But have I made a difference? On self reflection I don't think that I have done as much as I cou ..read more
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Now More Than Ever
The Research Evangelist
by
3y ago
I keep going back to that phrase. Now more than ever. As a research evangelist, patient advocate and lung cancer survivor, these things define who I am and shape everything I do and every project I am involved with to bring impact on the world. As a champion for research, I want to share positive stories about the people in research labs and life science companies who do brilliant things. Though I am but one voice, my voice comes from a perspective of a patient who survived cancer living a life full of gratitude and building trust. I believe now, more than ever, the world needs to appreciate t ..read more
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Building Communities of Cheerleaders, Ambassadors and Advocates
The Research Evangelist
by
3y ago
Ever since my lung cancer experience, I've been on a journey to try to be more grateful. To me living a life of gratitude means appreciating everything more and expressing that to people that I care about. I'm far from perfect at doing this, but I try my best to express my gratitude to others, to let them know that when they do things to help me, it means a lot to me. This gratitude journey started with my wife Missi and our three boys after my lobectomy and follow up treatment. It also has led me to find interesting people in my work life. People that go out of their way to volunteer to help ..read more
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In Your Face! ...It's Not Just Pie In The Sky
The Research Evangelist
by
3y ago
When speaking with people about cancer research over the years I often heard that a cure, or even advanced targeted treatments (especially for lung cancer) are just "pie in the sky" thinking. Of course, in my response now, I point to precision medicine approaches to treatment now available due to advances in genomic understanding about specific mutations in cancer. I heard the exact same thing a couple years ago when speaking with a parent of a child with Fragile X syndrome who asked me if using CRISPR to treat Fragile X was just "pie in the sky" - as in, is there a chance it could work, or is ..read more
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Do We Really Need Another TV App?
The Research Evangelist
by
3y ago
I read an article today in Vulture, the culture and entertainment site from New York Magazine about how Quibi, the long-hyped, mobile-centric streaming platform devoted to short-form programming had raised $1.75 billion. Quibi, the brainchild of Jeffrey Katzenberg, the former Disney studio head and DreamWorks co-founder, had promised to reinvent television by streaming high-quality content in ten-minute-or-less chunks to “the TV in your pocket.” Given that  Quibi reportedly lost 90 percent of early users after their free trials expired, it seems like another example of a ton of money in ..read more
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Be Kind to Cancer Patients
The Research Evangelist
by
3y ago
If someone who works for you (or with you) is diagnosed with cancer, please be considerate of the emotions he or she is going through. I was just thinking back to when I was diagnosed with lung cancer and what it was like to go to work. It was not like anything I ever experienced emotionally. A cancer diagnosis will consume every waking moment. I've heard people say that they throw themselves into their work to keep their mind off of what is happening in their personal life. That sounds great but it's not reality for many people like me. I remember the call from my doctor when he told me I h ..read more
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Betting On Great Researchers
The Research Evangelist
by
3y ago
Have you ever met someone that just gives you a sense of confidence that anything is possible? I've met many researchers over the years and some of them just fill me with such hope that I feel that given the funding necessary to advance their ideas, a breakthrough would happen. I don't say this naively to suggest that it's just about money. Because I know that money doesn't solve all problems and in research there is no sure bet. But in medical research, often times good ideas stay in the minds of scientists due to lack of sufficient resources to do the experiments that could make huge advance ..read more
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