Psychiatric Manifestations of Autoimmune Encephalitis
Autoimmune Encephalitis Blog
by Alanna
1w ago
January 25, 2023 | Written by Dr. Hannah Ford. Edited by Dr Mastura Monif, Dr Loretta Piccenna, Ms Sarah Griffith, Ms Tiffany Rushen, Ms Amanda Wells (consumer representative) and Ms Sasha Ermichina (consumer representative). A message from IAES Blog Staff: It is our honor and pleasure to present to all of you an overview of typical psychiatric manifestations of autoimmune encephalitis This overview is by the esteemed team at Monash University in Australia & lead by Dr. Mastura Monif, who is a member of IAES’ Medical Advisory Board. We are proud to be in collaboration w ..read more
Visit website
What are the different types of autoimmune encephalitis?
Autoimmune Encephalitis Blog
by Alanna
1M ago
December 28, 2022 | by Sophie Liebergall, PennNeuroKnow and IAES Collaboration A message from IAES Blog Staff: The staff at IAES is proud to present to all of you another wonderful article/blog from the amazing team at PennNeuroKnow. Since 2019 IAES has been extremely lucky to be in partnership with the PennNeuroKnow(PNK) team to help us all better understand complex medical issues related to AE and neurology in general. The talented PNK team continues to keep us up-to-date and help clarify the complexities we face each day along our AE journey, and we are eternally grateful! You c ..read more
Visit website
My letter to Santa ATTENTION: YULETIDE BUREAU WISH DEPARTMENT
Autoimmune Encephalitis Blog
by Alanna
1M ago
  December 24, 2022 | Tabitha Andrews Orth  My letter to Santa. ATTENTION: YULETIDE BUREAU  WISH DEPARTMENT Dear Santa, As you know, I have given great thought to my Christmas wish this year.  I hope I have made your ‘NICE LIST”, as my wish is in the form of a favor. Since I am awake, due to insomnia from the IV Solumedrol infusion I received yesterday afternoon, I thought it was a good time to write you. I guess I didn’t need to tell you that, since you see me when I am sleeping, and you know when I am awake. LOL:) Sometimes the lessons we need to learn to grow our so ..read more
Visit website
Holiday Gift Guide for Those with Neurological Issues
Autoimmune Encephalitis Blog
by Alanna
1M ago
December 14, 2022 | by Sarah Watts. Illustration by Jeannie Phan. Republished with permission from Brain & Life Magazine  A message from IAES Blog staff: The holidays are a busy time for everyone. For those of us with neurological issues and for those that care for us, this busyness may seem overwhelming at times. In 2021 Brain & Life magazine published an article that may make one part of the holiday season a small bit easier and much more fun.  They published an article that provides a fun and useful list of gifts for those with neurological issues. It is our s ..read more
Visit website
How does the brain heal from autoimmune encephalitis and why is there so much variability in the healing process?
Autoimmune Encephalitis Blog
by Alanna
2M ago
December 7, 2022 | by Kara McGaughey, PennNeuroKnow A message from IAES Blog Staff: The staff at IAES is proud to present to all of you another wonderful article/blog from the amazing team at PennNeuroKnow. Since 2019 IAES has been extremely lucky to be in partnership with the PennNeuroKnow(PNK) team to help us all better understand complex medical issues related to AE and neurology in general. The talented PNK team continues to keep us up-to-date and help clarify the complexities we face each day along our AE journey, and we are eternally grateful! You can find out much more about this ..read more
Visit website
Fatigue and Autoimmune Encephalitis: You’re Not Alone
Autoimmune Encephalitis Blog
by Alanna
2M ago
November 30, 2022 | by Vanessa B. Sanchez, PennNeuroKnow   Introduction Imagine you just pulled out a load of laundry from the dryer, and as you begin to get into the groove of folding clothes, out of nowhere, you have a profound loss of energy (1). What you are experiencing is called fatigue. Fatigue is different from drowsiness or sleepiness. For example, drowsiness is the need for sleep whereas sleepiness is the likelihood of being able to fall asleep (1, 3). To clarify, fatigue is the overwhelming feeling of tiredness, weakness, and a complete lack of energy (3). Fatigue impact ..read more
Visit website
A Mother’s Wish for a Mighty Miracle’s 7th Birthday
Autoimmune Encephalitis Blog
by Alanna
2M ago
November 24, 2022 | By Janine Samuela-Carasus Introduction from the IAES Blog Team: As we wrap up caregiver awareness month and in the spirit of this season’s giving of thanks, the staff at IAES wish to share with you this beautiful story of hope and the true power of those that care for us the most. Each AE Warrior is here today because of those that care for and love us. We are thankful beyond words. We hope you find this story as inspirational as we have, and we truly hope you all have a wonderful Thanksgiving! To read more of Zoe’s story and her family please enjoy the first blog in thi ..read more
Visit website
5 Ways to Answer “How Can I Help”
Autoimmune Encephalitis Blog
by Alanna
2M ago
November 23, 2022 |  By Michelle Seitzer of Caregiving Advice A message from IAES Blog staff: In the US, Thanksgiving Day and week are upon us. And we have much to be thankful for. For those within the AE community, we cannot thank all those that care for us, in any capacity, enough! As we round out Caregiver Awareness month and head into a holiday season of joy, peace, and grace, may we all continue to be aware and be thankful for all we have been given.  Michelle Seitzer founder of Caregiving Advice has graciously offered to let us share her article regarding ways to help those ..read more
Visit website
Caregiver Honorable Mention
Autoimmune Encephalitis Blog
by Alanna
3M ago
November 8, 2022 | By Mari Davis Introduction from the IAES Blog Team: For all Autoimmune Encephalitis warriors, it is our caregivers, friends and loved ones we rely on every single day in our AE journey. We rely on these amazing people for everything from giving  words of encouragement, to a ride to doctor’s appointments, to help us relearn how to walk and talk and to simply be there by our side. We are honored and proud to add another one of these amazing sentinels to our list of Honorable Caregivers list.  —– I, Mari Davis, would love to nominate my husband, Geoff Davis. Geoff ..read more
Visit website
Rare and Seronegative Autoimmune Encephalitis
Autoimmune Encephalitis Blog
by Alanna
3M ago
October 28, 2022 | Written by Dr. Nabil Seery. Edited by Dr Mastura Monif, Ms Tiffany Rushen, Dr Loretta Piccenna, Ms Amanda Wells (consumer representative) and Ms Sasha Ermichina (consumer representative). A message from IAES Blog Staff: It is our honor and pleasure to present to all of you an overview of how autoimmune encephalitis can affect cognitive abilities. This overview is by the esteemed team at Monash University in Australia & lead by Dr. Mastura Monif, who is a member of IAES’ Medical Advisory Board. We are proud to be in collaboration with Dr. Monif and her te ..read more
Visit website

Follow Autoimmune Encephalitis Blog on Feedspot

Continue with Google
OR