A recently published study is providing a close look at anti-LGI1 encephalitis which, after anti-NMDA receptor encephalitis, is the second most common autoimmune encephalitis. Anti-LGI1 encephalitis most often affects middle aged patients who come to medical attention because of the quick onset (over a few weeks to a few months) of memory loss. Less commonly ..read more

Making the diagnosis of autoimmune encephalitis (AE) can be very straightforward when the patient develops features that are highly characteristic of a particular AE. For example, a 30-year old woman with new onset psychiatric symptoms such as hallucinations or strange behaviors and who also has repetitive movements around their mouth in their face (known as ..read more

Dr. Alessandro Dinoto (University of Verona, Verona, Italy) was awarded a 2023 AEA Community Seed Grant for Investigating the role of complement activation and antibody subclasses in anti-LGI1 and anti-CASPR2 encephalitis: a pilot study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is ..read more

Dr. Helena Ariño Rodríguez (Vall d’Hebron Institut de Recerca (VHIR), Barcelona, Spain) was awarded a 2023 AEA Community Seed Grant for the investigation of Automated detection of autoimmune encephalitis using artificial intelligence. Learn more about her research and how it will impact those affected with autoimmune encephalitis. The start date for the award is August 1, 2023 ..read more

Dr. Robin van Steenhoven (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2023 AEA Community Seed Grant for the investigation of Seronegative autoimmune encephalitis: exploration of clinical and neuropathological characteristics. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September ..read more

Dr. Soon-Tae Lee received an AEA Community Seed Grant in 2021. Today, in honor of Research Network Month, he provides an update on his research with seronegative autoimmune encephalitis: clinical characteristics and courses, the effect of immunotherapy and its duration, and prognostic factors. The AEA Community Seed Grant program is funded by donations from the ..read more

Dr. Eoin Flanagan from the Mayo Clinic in Rochester, Minnesota and colleagues from multiple institutions have published this article demonstrating that more than one in five patients diagnosed with autoimmune encephalitis (AE) were misdiagnosed and that about half of these patients actually had a primary behavioral or psychiatric disorder. Red flags associated with receiving the ..read more

Whether you are living with AE, are a caregiver, family member, friend, physician, researcher, Board Member, MAB Member, program partner or sponsor or this is your first time ever to the Autoimmune Encephalitis website, we are excited you are here and ready to develop an attitude of gratitude! This program is inspired by a year ..read more

What Do You Know about Giving Tuesday and the AE Alliance? As Director of the AE Alliance, I first learned about autoimmune encephalitis and the Alliance three years ago and it was not until three months ago I began learning about GivingTuesday. Both organizations are doing good. Here’s a bit more detail about their histories ..read more

Dr. Matteo Gastaldi (C. Mondino National Institute of Neurology Foundation, IRCCS, in Pavia, Italy) was awarded a 2022 AEA Community Seed Grant to investigate the Cognitive teleRehabilitation in patients with Encephalitis of AutoIMmune etiology: CoRE-AIM study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September 1, 2022. You ..read more