How to Revive Your Daily Life Routines
ALS and Wellness Blog
by
4d ago
  I’m one of those folks who follow a daily life routine. Simply put, it’s a series of predictable habits that bring structure to my life and help me maintain a positive attitude while living with ALS. But try as I might, my daily routines did not survive the recent holidays and even the month following! Of course, the fun, the fast tempo, and the visits from friends and family were all worth the sacrifice. But now it’s time to dust things off and revive my trusty daily life routines. Having daily life routines are important to everyone’s mental and physical health. Sure, variety is the s ..read more
Visit website
The Power of One Resolution
ALS and Wellness Blog
by
1M ago
  The new year is just beginning, and already my email inbox is overflowing with suggestions about the importance of setting goals and resolutions. But for those of us living with ALS, the traditional goals and resolutions for self-improvement often feel empty and frankly, useless. In truth, most of us are just glad to have made it this far and really have the goal - - to survive another year! But living in “survival mode” is unhealthy and ALS research points out that this can lead to feelings of hopelessness and giving up. Recently, while discussing resolutions and goals with a fri ..read more
Visit website
Laugh on Down the Road... Traveling with ALS
ALS and Wellness Blog
by
2M ago
                                             I’ve learned that humor is something we all need to incorporate into our days, especially for those of us who live with ALS. And one of the best ways I’ve found to learn how not to take life oh too seriously is to pack my bags and go on a short road trip - - although that's something I haven’t been able to do yet in these post-pandemic days. But whether you are traveling now or ..read more
Visit website
Finding the Funny Moments in Caregiving
ALS and Wellness Blog
by
2M ago
  ALS is certainly a serious condition, and there is nothing funny about it, but many funny moments can happen. For my caregiver husband and me, holding on to a sense of humor is such an important part of our relationship that we can’t imagine letting a day go by without sharing a laugh or two. Given that November is National Family Caregivers Month, let’s explore how laughter can benefit both the caregiver and the care receiver. Why laugh? Laughing is quick, it’s easy, and everyone can do it. Even though it may seem like an inappropriate reaction to a difficult situation, laughing ..read more
Visit website
Reframing Our Approach with a New Kind of ALS Diagnosis
ALS and Wellness Blog
by
3M ago
Although each patient faces a different journey with ALS, we all share the memory of the moment when we received our diagnosis. When I was told I had ALS, I expected to be assured not to worry and that I’d be back to normal life in no time. That didn’t happen. Instead, I was told I had an incurable disease. Then this was followed by a brief scientific explanation of the path of motor neurons from the spinal cord to muscle, which honestly at that point, tuned out. Why do so many doctors deliver negative news to their patients in such a manner? It could be because, as Allison Bulat share ..read more
Visit website
What (Not) to Say to a Friend Who Has ALS
ALS and Wellness Blog
by
5M ago
Whether I’m at a social gathering or in the middle of a lighthearted chat in the grocery store, there’s no doubt about it — people can say the darndest things! This is particularly true when they’re stymied over what to say to me about my ALS. Don’t get me wrong. I genuinely appreciate their heartfelt concern and sympathize with the challenge of finding the right thing to say. So, when they fall back to familiar phrases that may work well for other health conditions but not so well for ALS, I let them off the hook. However, in the spirit of raising ALS awareness and helping friends and fami ..read more
Visit website
Banishing My ALS Thought Loops and Living One Day at a Time
ALS and Wellness Blog
by
6M ago
Whether they find me by way of my personal blog, my writings for ALS News Today, or through the social media channels for the ALS community - - ALS patients find me! I always enjoy meeting and chatting online and learning a little bit about each person. Many are newly diagnosed ALS patients. So, besides wanting to learn as much as possible about ALS, they also tell me they are worried about their progressing symptoms, their future, and their ability to handle it all. Often, they ask how I’ve been able to cope with my ALS for the past 12 years, and I suggest they begin by avoiding getting ..read more
Visit website
How I Socked It to ALS
ALS and Wellness Blog
by
7M ago
  Last week for me, the letters A-L-S stood for “A Lot of Socks.” I tackled a project that would make living with amyotrophic lateral sclerosis easier for me right now, for my future self, gave me peace of mind, and yes, it involved socks. It all began when I was digging through my jumbled mess of a sock drawer and suddenly a scary Halloween horror movie image popped into my mind. I saw my future self with a frustrated caregiver who was trying to find two matching socks in the same messy drawer. Finally snagging two, she held them high and I, unable to speak or communicate due ..read more
Visit website
The ALS Game Board of Life
ALS and Wellness Blog
by
7M ago
  Like so many who live with this disease, I can remember the EXACT MOMENT I LEARNED I HAD ALS. I felt as if the rug had been suddenly pulled out from under me. My world changed with no possibility of turning it back. A new rule At that low point, a childhood memory bubbled up inside my mind; it was a special rule my father had added to the board games our family played together. His rule was that, at any point mid-game, he had the power to call out, “Rotate the board!” We dutifully complied by carefully turning the board halfway around. Suddenly, my winnings or points sat with another pl ..read more
Visit website
Surviving the Dentist with the New Normal of ALS
ALS and Wellness Blog
by
8M ago
  Living with ALS means learning to live with a whole new normal - - one that includes pondering whether or not to maintain regular visits to the dentist. With the dismal prediction of living only two to five years following an ALS diagnosis, plus the high likelihood of needing to rely on a direct-into-the-stomach feeding tube - - which avoids the need for teeth altogether - - many ALS patients think, “The dentist? Why bother?” And let’s be honest; who amongst us doesn’t secretly wish we could legitimately excuse ourselves from mandatory visits to the dentist any ..read more
Visit website

Follow ALS and Wellness Blog on Feedspot

Continue with Google
OR