ALS Ohana
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Our ultimate goal is to help persons with ALS, their families, significant others and caregivers attain a quality of life that is meaningful and achievable. Our services are directed primarily to help families of pALS through sharing of information, referral, training, emotional/social support, and advocacy.
ALS Ohana
3y ago
Please Tune in today (May 28th) at 7:00PM for the 2021 ALS Community Lei of Remembrance at the State Capitol ..read more
ALS Ohana
3y ago
The two drug combination called AMX0035 was conceived 7 years ago by two college students. A study of 137 patients showed the drug slowed progression of ALS paralysis by about 25% more than a placebo the article states ..read more
ALS Ohana
3y ago
Join us virtually today by clicking HERE If you want to donate and support TEAM ALS OHANA click HERE ..read more
ALS Ohana
3y ago
For everyone who missed the video premier of the “Lei of Remembrance” Memorial Ceremony, 2020 you can still watch it on Youtube. Please click on this site: Many thanks to the ALS Foundation of Hawaii, ALS Association Golden West Chapter, MDA Hawaii and With Grace 5K For your continued supportRead More ..read more
ALS Ohana
3y ago
Oahu Windward ALS Support Group – Kailua- November 4 4:00PM – 6:00PM St. Christopher’s Episcopal Church 93 N. Kailua Drive Oahu Leeward ALS Support Group – Caregiver Party!- November 12 5:00PM – 7:00PM Ilima at Leihano 739 Leihano Street Oahu ALS Meeting & Vent Support Group – HonoluluRead More ..read more
ALS Ohana
3y ago
ALS Support Groups Please click HERE for the calendar of ALS Association Golden West Chapter Support Groups for August 2019. What Can you Expect? – Tips and practical solutions for navigating everyday challenges of living with ALS. – Resources for exploring options and making decisions throughout the diseaseRead More ..read more
ALS Ohana
3y ago
Join Team ALS OHANA and walk with us September 14th at Kapiolani Park as we raise funds and awareness for Hawaii’s ALS community Click HERE to join our team! Event: Hawaii Walk Date: September 14, 2019, Walk Check-in: 8:30AM, Walk Start: 10:00AM Where: Kapiolani Park YOUR GENEROSITYRead More ..read more
ALS Ohana
3y ago
THE HAWAII ALS COMMUNITY PRESENTS In Memoriam: A Lei of Remembrance Friday, May 25, 2019 4:30 PM – 7:30 PM Hawaii State Capitol Grounds 4:30 PM Sign Waving 5:00 PM In Memoriam: A Lei of Remembrance Welcome by Ronaele Whittington O’li: Kumu Keahi Renaud Reading of Names: Jade Guess, Rachael LoebigRead More ..read more