Dr. Ileana Howard is the Medical Co-Director of VA Puget Sound, an ALS Association Certified Treatment Center of Excellence, and will be joining us at our ALS Nexus conference to share her insights while exploring actionable steps to dismantle barriers to access, from advocating for policy changes to fostering community partnerships, to ensure everyone living with ALS has access to state-of-the-art care ..read more

We've shared the story of Wendy and Michael Wilson, a family affected by ALS; but, they both still volunteer their time with us, serving on the local community leadership council in Oklahoma and other committees focused on care services and caregiving ..read more

A proposed new Department of Transportation (DOT) rule, spearheaded by Transportation Secretary Pete Buttigieg, aims to address the issue of air travel for passengers who rely on wheelchairs, including people living with ALS ..read more

This month, Calaneet Balas, ALS Association President and CEO, and Scott Kauffman, Association Board Chair, joined several board members with ALS and some who have lost loved ones to the disease to meet with members of Congress in House and Senate leadership positions and participate on appropriations committees that will decide how federal dollars are to be spent ..read more

In recognition of National Volunteer Month, we’re shining a spotlight on the many different ways you can get involved by providing help, support, and hope to the ALS community. Volunteering is a powerful way to make a positive impact in any community. And when it comes to supporting people impacted by ALS, each and every volunteer action makes a difference ..read more

Renovation Hunters joined the fight against ALS when they took on an extensive cabin renovation to help a family impacted by the disease in Pennsylvania. The series includes three exciting episodes of the reno beginning tomorrow, April 5, at 8:30 p.m. on the Outdoor Channel. Read more about the family’s journey and don’t forget to tune in to watch ..read more

Dana Julian's great grandfather passed away from ALS and is part of her "why" she volunteers for the cause. Read more about how she got involved with the ALS Association ..read more

ALS Nexus brings together the perspectives of the ALS community to connect, collaborate, and change the future of ALS. This is more than a conference – it’s an opportunity to spark new ideas and accelerate progress towards our goal of making ALS a livable disease until we can cure it ..read more

Thanks to our Seed Grant Program, 16 ALS researchers now have up to $50,000 each to gather the preliminary data they need to propel their research in promising new directions, which can ultimately lead to new treatment options, approaches that optimize current care, or ways to help prevent ALS altogether ..read more

ALS presents its own set of nutritional challenges that must be addressed when considering what makes up a healthy diet, and these challenges change as the disease progresses. As we approach the end of National Nutrition Month, we wanted to take a look at some of the many nutritional needs for people living with ALS and how they are sometimes different ..read more