Faces of ALS: Redefining advocacy for a new generation
Les Turner ALS Foundation
by Ashley Rosenbrock
5d ago
Please join us at the Hope Through Caring Gala on Saturday, Feb. 18, where Brian and Sandra will be our guests of honor alongside fellow awardee First Bank Chicago and people living with ALS like Ken Avick. By attending the Hope Through Caring Gala, you make it possible for the Les Turner ALS Foundation to fund ALS research and provide support to people living with the disease and their families. In 2017, Brian Wallach and Sandra Abrevaya’s life together was just beginning. The couple, who met on the Obama campaign in 2008 and later worked down the hall from each othe ..read more
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January 2023 Foundation eNews
Les Turner ALS Foundation
by Ashley Rosenbrock
1w ago
Foundation News Mature ‘lab grown’ neurons hold promise for ALS and other neurodegenerative diseases Researchers at the Les Turner ALS Center at Northwestern Medicine and Northwestern University have created the first highly mature neurons from human induced pluripotent stem cells (iPSCs), which could lead to new opportunities for medical research and potential transplantation therapies for neurodegenerative diseases like ALS and traumatic injuries. “For the first time, we have been able to see adult-onset neurological protein aggregation in the stem cell-derived ALS patient motor neuro ..read more
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On the passing of Lin Brehmer, a true friend of the ALS community
Les Turner ALS Foundation
by Mark Heiden
2w ago
Chicago radio host Lin Brehmer died today at the age of 68. He was widely known and beloved for his time on-air at WXRT-FM 93.1, but the ALS community in the Midwest knew another side of Lin: a friend, spokesperson and supporter of ALS events and fundraisers for nearly 30 years. Andrea Pauls Backman, CEO of the Les Turner ALS Foundation, shares these reflections: “We lost a true friend today in Lin Brehmer. Lin’s dedication to the ALS community as a spokesperson of the Les Turner ALS Foundation was legendary. Whether as an emcee of our annual Lou Gehrig Day at Wrigley Field or the Mammoth Musi ..read more
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Faces of ALS: Giving New Meaning to ‘an ALS Journey’ …Road Trip!
Les Turner ALS Foundation
by Emily Cerbone
2w ago
Erin Weis generously offered her story for our 2021 Annual Appeal, helping raise vital funds for ALS care and research — just one of the many ways she volunteered to support the Les Turner ALS Foundation. But her story was only captured on the print brochure for that campaign, not our website. After Erin passed away in January 2023, we wanted to share her and Adam’s inspiring perspective and awesome road trip. Former Chicago schoolteacher Erin Weis is living her best life. Despite having been diagnosed with a fast-progressing form of ALS in September 2020, Erin is making the best of her ‘ALS J ..read more
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Faces of ALS: Hope Through Painting
Les Turner ALS Foundation
by Ashley Rosenbrock
2w ago
Please join us at the Hope Through Caring Gala on Saturday, Feb. 18, where Ken and his wife Ann, award honorees Brian Wallach & Sandra Abrevaya and First Bank Chicago, and people living with ALS will be our guests of honor. By attending the Hope Through Caring Gala, you make it possible for the Les Turner ALS Foundation to fund ALS research and clinical care and provide education and support.  Ken Avick picked up a brush and began painting as a child, and he hasn’t set it down since. In the beginning, he leaned towards large canvases with surreal imagery. Following the birth of his o ..read more
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Mature ‘lab grown’ neurons hold promise for ALS and other neurodegenerative diseases
Les Turner ALS Foundation
by Mark Heiden
3w ago
Researchers at Northwestern University and the Les Turner ALS Center at Northwestern Medicine have created the first highly mature neurons from human induced pluripotent stem cells (iPSCs) a feat that opens new opportunities for medical research and potential transplantation therapies for neurodegenerative diseases like amyotrophic lateral sclerosis (ALS) and traumatic injuries. Although previous researchers have differentiated stem cells to become neurons, those neurons were functionally immature — resembling neurons from embryonic or early postnatal stages. The limited maturation obtained wi ..read more
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January 2023 Foundation eNews
Les Turner ALS Foundation
by Emily Cerbone
1M ago
Foundation News Thank you We can’t thank you enough for your generosity during our end of year fundraising campaign. Your donations are making a profound impact not only on the lives of those living with ALS and their families, but also on ALS research and access to clinical care and clinical trials. Because of you, we can continue providing valuable resources, education and support to people living with ALS and their families. A special thanks to the Walter Boughton Foundation, Willow Springs Charitable Trust and an anonymous donor for their matching gifts – and to every donor, no matter wh ..read more
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Faces of ALS: From caregiver to advocate
Les Turner ALS Foundation
by Ashley Rosenbrock
1M ago
Tyler Gaetano’s mother Vera, a Navy veteran, worked in the research department at the VA Hospital in West Haven, CT. Because she had been experiencing slurring of her speech, she decided to seek medical advice. Due to her history of blood issues, the doctors suspected blood cancer, so she was prescribed chemotherapy and given plasma infusions. After these treatments proved ineffective and Vera began to develop issues with swallowing, she was diagnosed with bulbar ALS. “It was shocking when she was diagnosed, coupled with the fact that she had the ‘expedited version’ of ALS,” says Tyler, who w ..read more
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December 2022 Foundation eNews
Les Turner ALS Foundation
by Ashley Rosenbrock
1M ago
Foundation News Now is the time When a family is dealing with an ALS diagnosis, children are often more aware of what is going on than parents may realize. They can sense when a family member is stressed, and many times end up absorbing that stress —not knowing how to deal with their feelings of frustration. Victor was 14 years old when his father was diagnosed with ALS. As a teen, Victor struggled without an outlet for his frustrations about his dad’s ALS. He would talk with his coaches at school, but he knew they couldn’t truly relate. “As I was coping with my father’s sickness, I found it ..read more
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December 2022 Foundation eNews
Les Turner ALS Foundation
by Ashley Rosenbrock
1M ago
Foundation News  Giving back in gratitude For people who have lost a loved one to ALS, the holidays are a time of reflection and gratitude to those who cared for family and friends during their ALS journey. Victor was 14 years old when his father, an avid marathon runner, was diagnosed with ALS. Many years later, he has not forgotten the support his family received from the Les Turner ALS Foundation. “Anyone who is caring for someone diagnosed with ALS knows the struggles that arise from it,” says Victor. “My family was fortunate to have love and support throughout our father’s battle ..read more
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