Study Description Brief Summary: The goal of this clinical trial is to learn about the effectiveness of repeated immunoadsorption intervention in patients with chronic fatigue syndrome (CFS) including patients with post-acute COVID-19 CFS (PACS-CFS). The main questions it aims to answer are: (1) Does repeated immunoadsorption relieve fatigue and/or other symptoms associated with CSF and PACS-CSF? (2) Is repeated immunoadsorption safe and tolerable in this patient population? What are the... Randomized-controlled Trial of Immunoadsorption (IA) in Patients With Chronic Fatigue Syndrome (CFS ..read more

Some posts on this thread have been moved from the vaccination experiences thread and the long covid thread. Note also there is a separate thread... Can vaccines cure ME/CFS or Long Covid ..read more

I have lost a lot of flexibility over the years from osteoarthritis and various injuries. I love this 10-minute standing qigong routine on youtube. Qigong is slow and flowing and doesn't aggravate my existing pain. After doing this qigong for a couple of weeks, I'm more flexible and have increased range of motion. I think it has also enabled me to resume swimming. It used to be that swimming, no matter how slow and easy, would give me pain afterwards for days. Now I can tolerate it much... Simple qigong routine for flexibility ..read more

This post has been copied and following posts moved from: The IDO2 tryptophan trap hypothesis Spoiler: parts of this post about the IDO2 metabolic trap hypothesis There are some issues and concerns around the IDO2 tryptophan trap hypothesis about ME. These are my current thought directions, and should not be considered scientific fact. Please comment, add links, agree... Intermittent fasting - restricting daily hours of eating - and ME/CFS ..read more

Moved post Apologies for this tangential post but I didn't want to start a new thread for this and it is relevant here. There is an article on pain management that is suggesting there will be non-opioid targeted pain relievers in the near future due to some research work in the US. Article (longish): https://nautil.us/painkillers-that-dont-kill-14873/ With the diversity of pain in mind, over the past decade Bean and Woolf... Click to expand... Pain management - discussion thread ..read more

The Perrin technique is discussed here: Perrin Technique ***** I came across this article this morning. The link was from a canine massage therapist, but the article is about human massage. Apparently, it is a myth that massage disperses lactic acid from muscles after exercise, and that in fact massage has other anti-inflammatory effects. I thought this might be interesting for ME peeps.... Massage therapies including Bowen Therapy and myofascial release ..read more

Not a recommendation https://www.youtube.com/watch?v=__M8fqk6NVE youtube generated text 00:01 good morning my name is dr. Endre and 00:05 here is the latest report relating to 00:10 mecfs myalgic encephalomyelitis prana 00:13 fatigue syndrome I'm actually pleased to 00:17 announce today that we have a new 00:20 development in the treatment of mecfs 00:26 looking back over the history of the 00:30 condition in 1955 Melvin Ramsay the 00:34 brilliant elect English physician at the 00:37... Click to expand... K Pressin: new treatment for ME CFS(?) - video Dr Derek Enlander (25 June 2019 ..read more